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Still Kicking
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Still Kicking

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  • Post
    • July 16, 2013 at 10:12 am
    AllyNTAus
    Participant
      Today marks 1 week since I had a large chunk of my right atrium removed to get rid of a nasty cardiac met that had popped up quite quickly. The surgery went really well, all the tumour was removed, but I had to have a pacemaker inserted. I believe there might have been some evidence seen of other mets but I have not seen any reports or talked in detail with the surgeon about this.

      Today marks 1 week since I had a large chunk of my right atrium removed to get rid of a nasty cardiac met that had popped up quite quickly. The surgery went really well, all the tumour was removed, but I had to have a pacemaker inserted. I believe there might have been some evidence seen of other mets but I have not seen any reports or talked in detail with the surgeon about this. All I know is that he has bought me some time to keep on fighting, because his words to my husband were that if we had not got this met out, I would have been dead in a few weeks, that’s how much it was starting to block the chamber.

      I am still recovering in hospital, having been more troubled since by some terrible gastro issues, which are being investigated. I had an irritable bowel before I came into hospital, and I think being pumped full of all sorts of drugs on a basically empty stomach just made things 100 times worse. Anyway should get some answers on this tomorrow.

      Next step is to see my melanoma oncologist on Monday, and hopefully get my first infusion of Ipi. Just praying that can be given ok and that it kicks in quick!

      It’s been great to get support from everyone here, especially cardiac met buddy Amy
      Cheers
      Ally

    Viewing 16 reply threads
    • Replies
        • July 16, 2013 at 5:57 pm
        BrianP
        Participant

          Best of luck with your recovery and your IPI infusions.  I'll be praying for you!

          Brian

          • July 16, 2013 at 5:57 pm
          BrianP
          Participant

            Best of luck with your recovery and your IPI infusions.  I'll be praying for you!

            Brian

            • July 16, 2013 at 5:57 pm
            BrianP
            Participant

              Best of luck with your recovery and your IPI infusions.  I'll be praying for you!

              Brian

              • July 16, 2013 at 6:21 pm
              awillett1991
              Participant
                Just keep fighting Ally! Good,luck w Ipi. I didn’t have any serious problems, just loads of fatigue. My dr had me restart Zelboaf during Ipi though so we will never know if it worked for me or not.

                Amy

                • July 16, 2013 at 6:21 pm
                awillett1991
                Participant
                  Just keep fighting Ally! Good,luck w Ipi. I didn’t have any serious problems, just loads of fatigue. My dr had me restart Zelboaf during Ipi though so we will never know if it worked for me or not.

                  Amy

                  • July 16, 2013 at 6:21 pm
                  awillett1991
                  Participant
                    Just keep fighting Ally! Good,luck w Ipi. I didn’t have any serious problems, just loads of fatigue. My dr had me restart Zelboaf during Ipi though so we will never know if it worked for me or not.

                    Amy

                    • July 16, 2013 at 11:52 pm
                    benp
                    Participant

                      That's great they managed to get it out safely! Best of luck for the Ipi.

                      Ben (from Sydney).

                      • July 16, 2013 at 11:52 pm
                      benp
                      Participant

                        That's great they managed to get it out safely! Best of luck for the Ipi.

                        Ben (from Sydney).

                        • July 16, 2013 at 11:52 pm
                        benp
                        Participant

                          That's great they managed to get it out safely! Best of luck for the Ipi.

                          Ben (from Sydney).

                          • July 17, 2013 at 3:09 am
                          POW
                          Participant

                            Thanks for the update, Ally. I've been thinking about you every day. It sounds like you have an excellent surgeon and a new lease on life. Good for you! Now I just hope they can get your digestive problems straightened out quickly. 

                            Here's to a speedy recovery and hoping that you get to start ipi on Monday.

                            • July 17, 2013 at 3:09 am
                            POW
                            Participant

                              Thanks for the update, Ally. I've been thinking about you every day. It sounds like you have an excellent surgeon and a new lease on life. Good for you! Now I just hope they can get your digestive problems straightened out quickly. 

                              Here's to a speedy recovery and hoping that you get to start ipi on Monday.

                              • July 17, 2013 at 3:09 am
                              POW
                              Participant

                                Thanks for the update, Ally. I've been thinking about you every day. It sounds like you have an excellent surgeon and a new lease on life. Good for you! Now I just hope they can get your digestive problems straightened out quickly. 

                                Here's to a speedy recovery and hoping that you get to start ipi on Monday.

                                • July 17, 2013 at 11:30 pm
                                deardad
                                Participant

                                  Hi Ally, that's great news they got the heart met out! Hope recovering is quick. Hand in there and stay positive.

                                  Luv Nahmi from Melbourne

                                  • July 18, 2013 at 10:28 pm
                                  deardad
                                  Participant

                                    I meant hang in there!…

                                    • July 19, 2013 at 1:51 am
                                    AllyNTAus
                                    Participant
                                      Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.

                                      I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.

                                      • July 19, 2013 at 1:51 am
                                      AllyNTAus
                                      Participant
                                        Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.

                                        I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.

                                        • July 19, 2013 at 1:51 am
                                        AllyNTAus
                                        Participant
                                          Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.

                                          I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.

                                          • July 17, 2013 at 11:30 pm
                                          deardad
                                          Participant

                                            Hi Ally, that's great news they got the heart met out! Hope recovering is quick. Hand in there and stay positive.

                                            Luv Nahmi from Melbourne

                                            • July 17, 2013 at 11:30 pm
                                            deardad
                                            Participant

                                              Hi Ally, that's great news they got the heart met out! Hope recovering is quick. Hand in there and stay positive.

                                              Luv Nahmi from Melbourne

                                              • July 18, 2013 at 10:28 pm
                                              deardad
                                              Participant

                                                I meant hang in there!…

                                                • July 18, 2013 at 10:28 pm
                                                deardad
                                                Participant

                                                  I meant hang in there!…

                                              Viewing 16 reply threads
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