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Starting treatment

› Forums › General Melanoma Community › Starting treatment

  • Post
    • August 15, 2010 at 10:46 am
    Janet2
    Participant

      My CT scan just over a week ago revealed that the tumours on my liver and in my lungs have increased in size, plus there is other new stuff. I have been turned down for Ipilimumab on compassionate grounds because of other health problems so I'm starting carboplatin on Tuesday, plus the injection in my stomach to boost white blood cells the day after.

      Janet 

      My CT scan just over a week ago revealed that the tumours on my liver and in my lungs have increased in size, plus there is other new stuff. I have been turned down for Ipilimumab on compassionate grounds because of other health problems so I'm starting carboplatin on Tuesday, plus the injection in my stomach to boost white blood cells the day after.

      Janet 

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    • Replies
        • August 15, 2010 at 2:44 pm
        King
        Participant

          Janet, 

          Best of luck!  Keep us posted!  Are you looking for other options as well?

           

          Stay Strong

          King

          Stage IV 7/05 Liver mets

            • August 15, 2010 at 4:46 pm
            Sharon in Reno
            Participant

              Janet,

              I'm so sorry those suckers are growing again. I'm putting them on my "sap them back to hell" prayer list. Please stock up on pain meds. I know you don't want to get hooked on them but trust me…,bite the bullet on this one. About 3-4 days after your white blood cell booster shot your bones are gonna start screaming (I know everyone's different so this might not happen, fingers crossed). My pain seems to go where my weakest link is, like my lower back always gives me problems and that's excatly where my pain wants to go to first. I surrendered to pain meds a month ago and 'em so glad I did. Eat well, rest, get some funny moives, take pain meds, you'll be fine, you can do this…fight….love, Sharon in Reno Stage IV

              • August 15, 2010 at 5:05 pm
              Janet2
              Participant

                Thanks to Sharon and King for their messages and for Sharon's advice — much appreciated. I am not looking at other options at the moment regarding treatment as I've already found out I do not have the necessary mutation for  Mek inhibitors. I'm in the UK and we have limited trials. However I seem to find out more from people on this forum and that is why I asked my oncologist to find out Ipilimumab.
                Janet

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