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Stage IV NED scan schudule
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Stage IV NED scan schudule

› Forums › General Melanoma Community › Stage IV NED scan schudule

  • Post
    • July 18, 2016 at 5:00 pm
    Randy437
    Participant

      I am now 6+ years NED after mets to brain, lungs and small intestine.  Both brain MRI and body CT + blood work were negative today.  So I'm moving to scans every 6 months from every 3/4 months.  Onc said one factor was that I've never "failed" a treatment – mets were surgically removed (brain met followed up with GammaKnife).  It seems there are no standard protocols for long term stage IV survivors – it's an individual decision between patient and doc.  At ten years, we'll revist (knock on wood).

    Viewing 17 reply threads
    • Replies
        • July 18, 2016 at 8:16 pm
        sister of patient
        Participant

          Way to go Randy!! May you always remain NED! Best thoughts always.

          Barb

          • July 18, 2016 at 8:16 pm
          sister of patient
          Participant

            Way to go Randy!! May you always remain NED! Best thoughts always.

            Barb

            • July 18, 2016 at 8:16 pm
            sister of patient
            Participant

              Way to go Randy!! May you always remain NED! Best thoughts always.

              Barb

              • July 18, 2016 at 8:36 pm
              youngann
              Participant

                Excellent news. Here's to NED forever!

                  • July 19, 2016 at 1:01 am
                  HopefulOne
                  Participant

                    Congratulations!! So happy to read your story. 

                    • July 19, 2016 at 1:01 am
                    HopefulOne
                    Participant

                      Congratulations!! So happy to read your story. 

                      • July 19, 2016 at 1:01 am
                      HopefulOne
                      Participant

                        Congratulations!! So happy to read your story. 

                      • July 18, 2016 at 8:36 pm
                      youngann
                      Participant

                        Excellent news. Here's to NED forever!

                        • July 18, 2016 at 8:36 pm
                        youngann
                        Participant

                          Excellent news. Here's to NED forever!

                          • July 19, 2016 at 2:46 am
                          jamieth29
                          Participant
                            That’s awesome Randy hope Ned for rest of your long life!
                            • July 19, 2016 at 2:46 am
                            jamieth29
                            Participant
                              That’s awesome Randy hope Ned for rest of your long life!
                              • July 19, 2016 at 2:46 am
                              jamieth29
                              Participant
                                That’s awesome Randy hope Ned for rest of your long life!
                                • July 19, 2016 at 3:17 am
                                JoshF
                                Participant

                                  Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

                                  Josh

                                  • July 19, 2016 at 3:17 am
                                  JoshF
                                  Participant

                                    Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

                                    Josh

                                    • July 19, 2016 at 3:17 am
                                    JoshF
                                    Participant

                                      Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

                                      Josh

                                      • July 20, 2016 at 1:07 am
                                      sweetaugust
                                      Participant

                                        So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

                                        • July 20, 2016 at 1:07 am
                                        sweetaugust
                                        Participant

                                          So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

                                          • July 20, 2016 at 1:07 am
                                          sweetaugust
                                          Participant

                                            So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

                                            • July 20, 2016 at 8:19 am
                                            Kim K
                                            Participant

                                              Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

                                              My follow up was as follows:

                                              Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

                                              • July 20, 2016 at 8:19 am
                                              Kim K
                                              Participant

                                                Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

                                                My follow up was as follows:

                                                Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

                                                • July 20, 2016 at 8:19 am
                                                Kim K
                                                Participant

                                                  Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

                                                  My follow up was as follows:

                                                  Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

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