Stage 4 NED
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Stage 4 NED

› Forums › General Melanoma Community › Stage 4 NED

  • Post
    • June 14, 2016 at 12:50 pm
    dodgedh2
    Participant

    I still browse this forum since it helped me through many difficult times. Just wanted to pop in and say that it is officially 8 years now of being NED at Stage 4. There is hope out there, but NED doesn't take away all the worry about recurrance. I'm living life differntly than I was before, and starting to feel that i do have a future. Still in my mind that I may not have a long future, but making evry day count with the grandkids and family now!

Viewing 17 reply threads
  • Replies
      • June 14, 2016 at 1:00 pm
      blessd4x
      Participant

      God Bless you!  So good to read a hopeful post.  I hope my stage IV husband will be where you are one day.  Enjoy each day! 

      R

      • June 14, 2016 at 1:00 pm
      blessd4x
      Participant

      God Bless you!  So good to read a hopeful post.  I hope my stage IV husband will be where you are one day.  Enjoy each day! 

      R

      • June 14, 2016 at 1:00 pm
      blessd4x
      Participant

      God Bless you!  So good to read a hopeful post.  I hope my stage IV husband will be where you are one day.  Enjoy each day! 

      R

      • June 14, 2016 at 2:10 pm
      youngann
      Participant

      Thank you!

      • June 14, 2016 at 2:10 pm
      youngann
      Participant

      Thank you!

      • June 14, 2016 at 2:10 pm
      youngann
      Participant

      Thank you!

      • June 14, 2016 at 4:43 pm
      Randy437
      Participant

      I have been stage IV for 6 years and understand your feelings.  I give thanks for my good fortune but it's also in my head that I'm just once scan away from starting all over (though with much better treatment options).  While I don't want to leave the planet early, I take some comfort knowing that since I was first diagnosed I've been able to walk both of my daughters down the aisle and now have grandsons.  So if I'm run over by a bus tomorrow, it's still been a pretty good run.

      • June 14, 2016 at 4:43 pm
      Randy437
      Participant

      I have been stage IV for 6 years and understand your feelings.  I give thanks for my good fortune but it's also in my head that I'm just once scan away from starting all over (though with much better treatment options).  While I don't want to leave the planet early, I take some comfort knowing that since I was first diagnosed I've been able to walk both of my daughters down the aisle and now have grandsons.  So if I'm run over by a bus tomorrow, it's still been a pretty good run.

      • June 14, 2016 at 4:43 pm
      Randy437
      Participant

      I have been stage IV for 6 years and understand your feelings.  I give thanks for my good fortune but it's also in my head that I'm just once scan away from starting all over (though with much better treatment options).  While I don't want to leave the planet early, I take some comfort knowing that since I was first diagnosed I've been able to walk both of my daughters down the aisle and now have grandsons.  So if I'm run over by a bus tomorrow, it's still been a pretty good run.

      • June 14, 2016 at 5:09 pm
      sister of patient
      Participant

      Hi "Dodged" – so pleased for you and hope you enjoy many more years of NED!!! All the best!

      Barb

      • June 14, 2016 at 5:09 pm
      sister of patient
      Participant

      Hi "Dodged" – so pleased for you and hope you enjoy many more years of NED!!! All the best!

      Barb

      • June 14, 2016 at 5:09 pm
      sister of patient
      Participant

      Hi "Dodged" – so pleased for you and hope you enjoy many more years of NED!!! All the best!

      Barb

      • June 14, 2016 at 5:12 pm
      kpcollins31
      Participant

      Congratulations! 8 years is quite the milestone.

      Kevin

      • June 14, 2016 at 5:12 pm
      kpcollins31
      Participant

      Congratulations! 8 years is quite the milestone.

      Kevin

        • June 15, 2016 at 2:54 pm
        dodgedh2
        Participant

        Thanks for the good thoughts. I'm starting to get anxious again because there have been a number of other mel warriors that were NED and received bad news around their 10 year milestone. I'm keeping positive, but the thoughts never completely go away.

        • June 15, 2016 at 2:54 pm
        dodgedh2
        Participant

        Thanks for the good thoughts. I'm starting to get anxious again because there have been a number of other mel warriors that were NED and received bad news around their 10 year milestone. I'm keeping positive, but the thoughts never completely go away.

        • June 15, 2016 at 2:54 pm
        dodgedh2
        Participant

        Thanks for the good thoughts. I'm starting to get anxious again because there have been a number of other mel warriors that were NED and received bad news around their 10 year milestone. I'm keeping positive, but the thoughts never completely go away.

      • June 14, 2016 at 5:12 pm
      kpcollins31
      Participant

      Congratulations! 8 years is quite the milestone.

      Kevin

      • June 17, 2016 at 12:00 am
      DZnDef
      Participant

      Congratulations, Dodgedh2!  That is cause for celebration!  Try not to worry too much.  Any one of us could be hit by a bus or slip in the shower.  No guarantee melanoma will be the thing to take us out.  Just enjoy being alive each day you are alive.  No one's future is certain.  Now is all we have.  Don't miss out on it worrying about something  that hasn't happened and possibly never will.  Best to you!

      • June 17, 2016 at 12:00 am
      DZnDef
      Participant

      Congratulations, Dodgedh2!  That is cause for celebration!  Try not to worry too much.  Any one of us could be hit by a bus or slip in the shower.  No guarantee melanoma will be the thing to take us out.  Just enjoy being alive each day you are alive.  No one's future is certain.  Now is all we have.  Don't miss out on it worrying about something  that hasn't happened and possibly never will.  Best to you!

      • June 17, 2016 at 12:00 am
      DZnDef
      Participant

      Congratulations, Dodgedh2!  That is cause for celebration!  Try not to worry too much.  Any one of us could be hit by a bus or slip in the shower.  No guarantee melanoma will be the thing to take us out.  Just enjoy being alive each day you are alive.  No one's future is certain.  Now is all we have.  Don't miss out on it worrying about something  that hasn't happened and possibly never will.  Best to you!

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