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Stage 4-Keytruda
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Stage 4-Keytruda

› Forums › General Melanoma Community › Stage 4-Keytruda

  • Post
    • January 2, 2017 at 2:42 pm
    stevenallenschwartz
    Participant

      I was advised  January 2016 that I had stage 3c melonoma. They surgically removed the tumor from the back of my arm and 10 lymph nodes from my arm pit. I than had 4 infusions of yervoy. I had 1 petscan in July of 2016 that was clean and my recent petscan in December 2016 showed the return to my lungs and armpit. Dr. immediately put me on Keytruda and so far I have had 1 infusion. No side effects yet and going for my 2nd infusion next week? 

    Viewing 11 reply threads
    • Replies
        • January 2, 2017 at 4:17 pm
        Patrisa
        Participant

          Dear Steven,

          could wery well be that you will experience no side effects from keytruda and still have a great response….

          My father has developed some minor vitiligo after 6 months on keytruda and some fatigue but not noticable in every day activities, just when he is exercising, so nothing really

          Don't be worried that the drug might not be working if there aren't any side effects popping up!

          Hoping for some great results!

          Take care,

          Patrisa

          • January 2, 2017 at 4:17 pm
          Patrisa
          Participant

            Dear Steven,

            could wery well be that you will experience no side effects from keytruda and still have a great response….

            My father has developed some minor vitiligo after 6 months on keytruda and some fatigue but not noticable in every day activities, just when he is exercising, so nothing really

            Don't be worried that the drug might not be working if there aren't any side effects popping up!

            Hoping for some great results!

            Take care,

            Patrisa

            • January 2, 2017 at 4:17 pm
            Patrisa
            Participant

              Dear Steven,

              could wery well be that you will experience no side effects from keytruda and still have a great response….

              My father has developed some minor vitiligo after 6 months on keytruda and some fatigue but not noticable in every day activities, just when he is exercising, so nothing really

              Don't be worried that the drug might not be working if there aren't any side effects popping up!

              Hoping for some great results!

              Take care,

              Patrisa

                • January 2, 2017 at 8:51 pm
                stevenallenschwartz
                Participant

                  Patrisa-Thanks for your response. Glad to hear that I can feel ok and the Keytruda is kicking butt! Best for the New Year.

                  • January 2, 2017 at 8:51 pm
                  stevenallenschwartz
                  Participant

                    Patrisa-Thanks for your response. Glad to hear that I can feel ok and the Keytruda is kicking butt! Best for the New Year.

                    • January 2, 2017 at 8:51 pm
                    stevenallenschwartz
                    Participant

                      Patrisa-Thanks for your response. Glad to hear that I can feel ok and the Keytruda is kicking butt! Best for the New Year.

                    • January 3, 2017 at 7:15 am
                    Patina
                    Participant

                      Hi,

                      My Mom has had 23 infusions of Keytruda and all she has had was small red bumps (like a rash, but not itchy) and vitiligo.

                      Patients that get vitiligo, which usually turns up within 90 to 120 days, tend to do much better than others.

                      I'll keep my fingers crossed for you.

                        • January 3, 2017 at 2:12 pm
                        Patrisa
                        Participant

                          Hey Patina,

                           

                          just a quick Q, what if you develop vitiligo after 120 days? For my father it happened around 6 months after his first dose…Does he not qualify as a good respoder?

                          Thank you for your reply…

                          Patrisa

                          • January 3, 2017 at 2:12 pm
                          Patrisa
                          Participant

                            Hey Patina,

                             

                            just a quick Q, what if you develop vitiligo after 120 days? For my father it happened around 6 months after his first dose…Does he not qualify as a good respoder?

                            Thank you for your reply…

                            Patrisa

                            • January 3, 2017 at 2:12 pm
                            Patrisa
                            Participant

                              Hey Patina,

                               

                              just a quick Q, what if you develop vitiligo after 120 days? For my father it happened around 6 months after his first dose…Does he not qualify as a good respoder?

                              Thank you for your reply…

                              Patrisa

                            • January 3, 2017 at 7:15 am
                            Patina
                            Participant

                              Hi,

                              My Mom has had 23 infusions of Keytruda and all she has had was small red bumps (like a rash, but not itchy) and vitiligo.

                              Patients that get vitiligo, which usually turns up within 90 to 120 days, tend to do much better than others.

                              I'll keep my fingers crossed for you.

                              • January 3, 2017 at 7:15 am
                              Patina
                              Participant

                                Hi,

                                My Mom has had 23 infusions of Keytruda and all she has had was small red bumps (like a rash, but not itchy) and vitiligo.

                                Patients that get vitiligo, which usually turns up within 90 to 120 days, tend to do much better than others.

                                I'll keep my fingers crossed for you.

                                • January 3, 2017 at 5:39 pm
                                Jahendry12
                                Participant

                                  My husband was on Keytruda and experienced the rash, vitiligo, and unfortunately colitis (but they didn't call it colitis).  He stopped treatment after about 7 treatments as the tumor they were watching disappeared 🙂

                                  We too, were told by the doctor that folks that experienced vitligo had a better response. 

                                  Best of luck to you.  Keep us posted.

                                  • January 3, 2017 at 5:39 pm
                                  Jahendry12
                                  Participant

                                    My husband was on Keytruda and experienced the rash, vitiligo, and unfortunately colitis (but they didn't call it colitis).  He stopped treatment after about 7 treatments as the tumor they were watching disappeared 🙂

                                    We too, were told by the doctor that folks that experienced vitligo had a better response. 

                                    Best of luck to you.  Keep us posted.

                                    • January 3, 2017 at 5:39 pm
                                    Jahendry12
                                    Participant

                                      My husband was on Keytruda and experienced the rash, vitiligo, and unfortunately colitis (but they didn't call it colitis).  He stopped treatment after about 7 treatments as the tumor they were watching disappeared 🙂

                                      We too, were told by the doctor that folks that experienced vitligo had a better response. 

                                      Best of luck to you.  Keep us posted.

                                      • January 3, 2017 at 11:20 pm
                                      ed williams
                                      Participant

                                        Weber talking about Vitiligo at 31:30 mark of video,https://www.youtube.com/watch?v=ysbSCeqJpq0 best wishes!!!Ed

                                        • January 3, 2017 at 11:20 pm
                                        ed williams
                                        Participant

                                          Weber talking about Vitiligo at 31:30 mark of video,https://www.youtube.com/watch?v=ysbSCeqJpq0 best wishes!!!Ed

                                          • January 3, 2017 at 11:20 pm
                                          ed williams
                                          Participant

                                            Weber talking about Vitiligo at 31:30 mark of video,https://www.youtube.com/watch?v=ysbSCeqJpq0 best wishes!!!Ed

                                              • January 5, 2017 at 11:13 pm
                                              stevenallenschwartz
                                              Participant

                                                Can it be? I just returned from my oncologist who said the tumor in my right armpit could not be felt. I have only had 1 infusion of Keytruda and am due for my next treatment this coming Monday.

                                                • January 6, 2017 at 12:54 pm
                                                maperny
                                                Participant

                                                  Yes!!!! It could be!  That is wondeful!

                                                  • January 6, 2017 at 12:54 pm
                                                  maperny
                                                  Participant

                                                    Yes!!!! It could be!  That is wondeful!

                                                    • January 9, 2017 at 10:45 pm
                                                    stevenallenschwartz
                                                    Participant

                                                      Had my second infusion of Keytruda today. Hoping for no reaction and the immuno to work!

                                                      • January 9, 2017 at 10:45 pm
                                                      stevenallenschwartz
                                                      Participant

                                                        Had my second infusion of Keytruda today. Hoping for no reaction and the immuno to work!

                                                        • January 9, 2017 at 10:45 pm
                                                        stevenallenschwartz
                                                        Participant

                                                          Had my second infusion of Keytruda today. Hoping for no reaction and the immuno to work!

                                                          • January 6, 2017 at 12:54 pm
                                                          maperny
                                                          Participant

                                                            Yes!!!! It could be!  That is wondeful!

                                                            • January 5, 2017 at 11:13 pm
                                                            stevenallenschwartz
                                                            Participant

                                                              Can it be? I just returned from my oncologist who said the tumor in my right armpit could not be felt. I have only had 1 infusion of Keytruda and am due for my next treatment this coming Monday.

                                                              • January 5, 2017 at 11:13 pm
                                                              stevenallenschwartz
                                                              Participant

                                                                Can it be? I just returned from my oncologist who said the tumor in my right armpit could not be felt. I have only had 1 infusion of Keytruda and am due for my next treatment this coming Monday.

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