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Stage 3B – 2 years NED
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Stage 3B – 2 years NED

› Forums › General Melanoma Community › Stage 3B – 2 years NED

  • Post
    • October 15, 2013 at 11:33 pm
    rlowe
    Participant
      I very rarely post, but check in regularly. I’m sending good mojo to everyone in their battle with the beast. I’m happy to say that I reached my 2 year NED mark in September with help from Vanderbilt and the 10mg ipi trial. I only had 3 infusions before my pituitary couldn’t take it though. I now move to 6 month scans woo hoo!!

      To everyone fighting..strength to those whose fight is over…peace

      Rusty

    Viewing 8 reply threads
    • Replies
        • October 16, 2013 at 12:40 am
        SABKLYN
        Participant
          Excellent… Wish you continued good health!
          • October 16, 2013 at 12:40 am
          SABKLYN
          Participant
            Excellent… Wish you continued good health!
            • October 16, 2013 at 12:40 am
            SABKLYN
            Participant
              Excellent… Wish you continued good health!
              • October 16, 2013 at 1:27 am
              Kim41
              Participant
                So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
                • October 16, 2013 at 1:27 am
                Kim41
                Participant
                  So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
                  • October 16, 2013 at 1:27 am
                  Kim41
                  Participant
                    So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
                    • October 16, 2013 at 1:44 am
                    Tina D
                    Participant

                      Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

                      Thanks and congratualtions on your good reports 🙂

                      Tina

                        • October 16, 2013 at 3:04 pm
                        rlowe
                        Participant
                          No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

                          I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

                          • October 17, 2013 at 2:52 am
                          Tina D
                          Participant

                            I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

                            Tina

                            • October 17, 2013 at 2:52 am
                            Tina D
                            Participant

                              I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

                              Tina

                              • October 17, 2013 at 2:52 am
                              Tina D
                              Participant

                                I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

                                Tina

                                • October 16, 2013 at 3:04 pm
                                rlowe
                                Participant
                                  No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

                                  I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

                                  • October 16, 2013 at 3:04 pm
                                  rlowe
                                  Participant
                                    No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

                                    I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

                                  • October 16, 2013 at 1:44 am
                                  Tina D
                                  Participant

                                    Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

                                    Thanks and congratualtions on your good reports 🙂

                                    Tina

                                    • October 16, 2013 at 1:44 am
                                    Tina D
                                    Participant

                                      Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

                                      Thanks and congratualtions on your good reports 🙂

                                      Tina

                                  Viewing 8 reply threads
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