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Stable Scans Again!

Forums General Melanoma Community Stable Scans Again!

  • Post
    Eileen L
    Participant

      Hi to everyone. I haven't been on the board much since the new format was instituted, but think of this wonderful community often. I am a stage IV survivor, diagnosed stage IV over three years ago.

      Hi to everyone. I haven't been on the board much since the new format was instituted, but think of this wonderful community often. I am a stage IV survivor, diagnosed stage IV over three years ago.

      Wanted to share my good news with you all. I had my four month scans this week and everything remains stable, no new growths. Just a few relatively small tumors hanging out in my lung and right adrenal gland, not growing and not causing any problems. I feel so blessed! For those of you who don't know or remember me, I am one of the very few people who responded to soreafinib/Nexavar. I have been on a full dose of the medication for over three years now.

      Thanks to all on this board who continue to share their experiences and hope with our community!

      Eileen L

      Stage IV

    Viewing 17 reply threads
    • Replies
        lhaley
        Participant

          Stable for 3 years! How wonderful!!  You sure bring hope to many!!

          Linda

          lhaley
          Participant

            Stable for 3 years! How wonderful!!  You sure bring hope to many!!

            Linda

            MaryD
            Participant

              Fantastic news Eileen!   Thanks for sharing the good news and wishing you many more stable scans . .

              Best regards,

              Mary

              MaryD
              Participant

                Fantastic news Eileen!   Thanks for sharing the good news and wishing you many more stable scans . .

                Best regards,

                Mary

                killmel
                Participant

                  Hi

                  Great news

                  I read your history are you still taking supplement regime:green tea extract/mushroom combo, 10 grams of Omega 3, 8,000 mg curcumin, and 5.000 IU of Vitamin D on a daily basis. Does yourdoctors  think that it has difference?/

                  Hope for many more years of stability & NED for you.

                  killmel
                  Participant

                    Hi

                    Great news

                    I read your history are you still taking supplement regime:green tea extract/mushroom combo, 10 grams of Omega 3, 8,000 mg curcumin, and 5.000 IU of Vitamin D on a daily basis. Does yourdoctors  think that it has difference?/

                    Hope for many more years of stability & NED for you.

                      Eileen L
                      Participant

                        Thanks for your good wishes.

                        As far as the supplements are concerned, I still take them. Haven't been as vigilant recently as I have been in the past, haven't been very consistent! As far as my doctors are concerned, they don't believe the supplements do any good but are OK with me taking them.

                        Eileen L
                        Participant

                          Thanks for your good wishes.

                          As far as the supplements are concerned, I still take them. Haven't been as vigilant recently as I have been in the past, haven't been very consistent! As far as my doctors are concerned, they don't believe the supplements do any good but are OK with me taking them.

                        James from Sydney
                        Participant

                          Hi Eileen

                          great to hear your still going strong. It shows that even though some drugs have low stats for success there is always someone belonging in that small percentage. 

                          best wishes

                          James

                          James from Sydney
                          Participant

                            Hi Eileen

                            great to hear your still going strong. It shows that even though some drugs have low stats for success there is always someone belonging in that small percentage. 

                            best wishes

                            James

                            jag
                            Participant

                              Very happy for you Eileen, we hope to hear many more negative scan reports in the future.

                              Best

                              John

                              jag
                              Participant

                                Very happy for you Eileen, we hope to hear many more negative scan reports in the future.

                                Best

                                John

                                JerryfromFauq
                                Participant

                                  Great tohear from you and even greater to hear the great news.  Show it how, Gal!

                                  JerryfromFauq
                                  Participant

                                    Great tohear from you and even greater to hear the great news.  Show it how, Gal!

                                    King
                                    Participant

                                      Eileen,

                                       

                                      Great to hear from you and especially good to hear the news!  I know you will celebrate and don't take it for granted.  I'm on a 4 month scan schedule, too.

                                       

                                      Thanks for giving hope to others.

                                       

                                      Stay Strong
                                      King

                                      Stage IV 7/05 Liver mets

                                      King
                                      Participant

                                        Eileen,

                                         

                                        Great to hear from you and especially good to hear the news!  I know you will celebrate and don't take it for granted.  I'm on a 4 month scan schedule, too.

                                         

                                        Thanks for giving hope to others.

                                         

                                        Stay Strong
                                        King

                                        Stage IV 7/05 Liver mets

                                        Wow! Keep on going, you're doing awesome.  Is that particular drug still available?  I am happy to hear about the stage IV people out there who are still going strong. 

                                        With love and prayers,

                                        Shelly

                                        Wow! Keep on going, you're doing awesome.  Is that particular drug still available?  I am happy to hear about the stage IV people out there who are still going strong. 

                                        With love and prayers,

                                        Shelly

                                          Eileen L
                                          Participant

                                            Thanks! The drug I am on is FDA approved for other cancers, so it is hypothetically available. However, since it "failed" its Phase III trial, your doctor might be reticent to prescribe it. Also, it is very costly about $7,000/month and many insurance companies in the US won't pay for it since it is not FDA approved for melanoma.

                                            Eileen

                                            Eileen L
                                            Participant

                                              Thanks! The drug I am on is FDA approved for other cancers, so it is hypothetically available. However, since it "failed" its Phase III trial, your doctor might be reticent to prescribe it. Also, it is very costly about $7,000/month and many insurance companies in the US won't pay for it since it is not FDA approved for melanoma.

                                              Eileen

                                            Bruce in NH
                                            Participant

                                              Hi Eileen, great news that you continue to be stable after 3 years. I just completed the 10 week ipi trial and I too am stable. I have learned that stable is good! Hang in there and keep fighting.

                                              Bruce

                                              Bruce in NH
                                              Participant

                                                Hi Eileen, great news that you continue to be stable after 3 years. I just completed the 10 week ipi trial and I too am stable. I have learned that stable is good! Hang in there and keep fighting.

                                                Bruce

                                            Viewing 17 reply threads
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