Sharing Peter’s 15 year survival from julieincanada
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Sharing Peter’s 15 year survival from julieincanada

› Forums › General Melanoma Community › Sharing Peter’s 15 year survival from julieincanada

  • Post
    • May 19, 2016 at 5:35 pm
    arborbnb
    Participant

    Not sure if anyone remembers us .  I just wanted to pass along some good news and hope to those fighting the fight.  Peter was dx Stage 3 in 2001 and had 3 surgeries, a year of Interferon and radiation.  He has been NED since December 2001.  The radiation has left him with muscle contracture/ scarring etc in his upper back and he still takes gaba for neuropathy BUT he has beaten all the odds.  Don't give up!

     

    Julie

Viewing 14 reply threads
  • Replies
      • May 19, 2016 at 6:09 pm
      DZnDef
      Participant

      That's great news, Julie!  Thank you so much for sharing it with us.  It really does help to know that people have beaten this diseae.  I am very happy for you and Peter.

      • May 19, 2016 at 6:09 pm
      DZnDef
      Participant

      That's great news, Julie!  Thank you so much for sharing it with us.  It really does help to know that people have beaten this diseae.  I am very happy for you and Peter.

      • May 19, 2016 at 6:09 pm
      DZnDef
      Participant

      That's great news, Julie!  Thank you so much for sharing it with us.  It really does help to know that people have beaten this diseae.  I am very happy for you and Peter.

      • May 19, 2016 at 7:01 pm
      sister of patient
      Participant

      Hi Julie – All good news is always great to read and I sincerely wish that Peter always remains NED. Can you tell me please whereabouts you're located and what hospital he attended for treatment?

      Thanks.

      Barb (we're in Ontario)

        • May 20, 2016 at 5:48 pm
        arborbnb
        Participant

        Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

        • May 20, 2016 at 5:48 pm
        arborbnb
        Participant

        Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

        • May 20, 2016 at 5:48 pm
        arborbnb
        Participant

        Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

      • May 19, 2016 at 7:01 pm
      sister of patient
      Participant

      Hi Julie – All good news is always great to read and I sincerely wish that Peter always remains NED. Can you tell me please whereabouts you're located and what hospital he attended for treatment?

      Thanks.

      Barb (we're in Ontario)

      • May 19, 2016 at 7:01 pm
      sister of patient
      Participant

      Hi Julie – All good news is always great to read and I sincerely wish that Peter always remains NED. Can you tell me please whereabouts you're located and what hospital he attended for treatment?

      Thanks.

      Barb (we're in Ontario)

      • May 20, 2016 at 3:46 am
      LaurieGayle
      Participant

      Thanks for sharing such good news! 

      • May 20, 2016 at 3:46 am
      LaurieGayle
      Participant

      Thanks for sharing such good news! 

      • May 20, 2016 at 3:46 am
      LaurieGayle
      Participant

      Thanks for sharing such good news! 

      • May 21, 2016 at 7:14 pm
      Jydnew
      Participant

      That is fantastic!  I hope you don't mind if I piggy-back on your good news…I come on here once a year or so, when I get a little reminder in my head of the fear of going through my husband's melanoma diagnosis, to see what's new in the field as far as treatments go, and when I saw your post right up at the top, I felt compelled to add his story to yours to hopefully keep others' hope up.

      My husband is now 14 years NED after a stage 3A diagnosis in January 2002.  His treatment consisted of 2 surgeries – first was to remove the melanoma, and sentinal lymph nodes, and second was a complete lymph node removal after micrometastasis was found in the nodes.  He was 26 at the time of diagnosis – it was just a week after our honeymoon…  It was an incredibly fearful time for years, but we moved ahead and built our little family and keep hoping for continued health for all of us, and all of you who are enduring this terrible diagnosis.

      • May 21, 2016 at 7:14 pm
      Jydnew
      Participant

      That is fantastic!  I hope you don't mind if I piggy-back on your good news…I come on here once a year or so, when I get a little reminder in my head of the fear of going through my husband's melanoma diagnosis, to see what's new in the field as far as treatments go, and when I saw your post right up at the top, I felt compelled to add his story to yours to hopefully keep others' hope up.

      My husband is now 14 years NED after a stage 3A diagnosis in January 2002.  His treatment consisted of 2 surgeries – first was to remove the melanoma, and sentinal lymph nodes, and second was a complete lymph node removal after micrometastasis was found in the nodes.  He was 26 at the time of diagnosis – it was just a week after our honeymoon…  It was an incredibly fearful time for years, but we moved ahead and built our little family and keep hoping for continued health for all of us, and all of you who are enduring this terrible diagnosis.

      • May 21, 2016 at 7:14 pm
      Jydnew
      Participant

      That is fantastic!  I hope you don't mind if I piggy-back on your good news…I come on here once a year or so, when I get a little reminder in my head of the fear of going through my husband's melanoma diagnosis, to see what's new in the field as far as treatments go, and when I saw your post right up at the top, I felt compelled to add his story to yours to hopefully keep others' hope up.

      My husband is now 14 years NED after a stage 3A diagnosis in January 2002.  His treatment consisted of 2 surgeries – first was to remove the melanoma, and sentinal lymph nodes, and second was a complete lymph node removal after micrometastasis was found in the nodes.  He was 26 at the time of diagnosis – it was just a week after our honeymoon…  It was an incredibly fearful time for years, but we moved ahead and built our little family and keep hoping for continued health for all of us, and all of you who are enduring this terrible diagnosis.

      • June 30, 2016 at 7:36 am
      DebbieH
      Participant

      I remember you and Peter, Julie – congratulations!  I don't check in much anymore but I was so happy to see this tonight. 

      DebbieH, stage 3C, NED nearly 15 years, also after interferon

      • June 30, 2016 at 7:36 am
      DebbieH
      Participant

      I remember you and Peter, Julie – congratulations!  I don't check in much anymore but I was so happy to see this tonight. 

      DebbieH, stage 3C, NED nearly 15 years, also after interferon

      • June 30, 2016 at 7:36 am
      DebbieH
      Participant

      I remember you and Peter, Julie – congratulations!  I don't check in much anymore but I was so happy to see this tonight. 

      DebbieH, stage 3C, NED nearly 15 years, also after interferon

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