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Sharing good news: 3 years NED, Stage IV
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Sharing good news: 3 years NED, Stage IV

› Forums › General Melanoma Community › Sharing good news: 3 years NED, Stage IV

  • Post
    • October 6, 2011 at 10:38 pm
    MaryD
    Participant

      Just wanted to share some encouraging news – I am so humbled and grateful to report that my recent scans were clear and finally made a 3 year mark without a  recurrence.

      I was DX in 2001 and in 2007 moved to stage IV status via one lung met.   During the past 10 years, I've done 1 year interferon, a peptide vaccine trial, radiation, an Ipi trial for resected disease, and finally, 6 months of pulsed IL-2 treatments two years ago.

      Just wanted to share some encouraging news – I am so humbled and grateful to report that my recent scans were clear and finally made a 3 year mark without a  recurrence.

      I was DX in 2001 and in 2007 moved to stage IV status via one lung met.   During the past 10 years, I've done 1 year interferon, a peptide vaccine trial, radiation, an Ipi trial for resected disease, and finally, 6 months of pulsed IL-2 treatments two years ago.

      Needless to say, I will never take this for granted.   Over the many years I have been on this board, there have been so many brave warriors fighting this disease with such grace and dignity  and there seems to be no rhyme or reason as to the outcome.

      I can only hope that this news provides hope and encouragement to all of you who are fighting this battle.   Please know my prayers and good thoughts go out to all of you . .

      Best regards,

      Mary

    Viewing 38 reply threads
    • Replies
        • October 6, 2011 at 11:24 pm
        jimjoeb
        Participant

          Love the good news stories! They give me the hope.

          • October 6, 2011 at 11:24 pm
          jimjoeb
          Participant

            Love the good news stories! They give me the hope.

            • October 6, 2011 at 11:24 pm
            jimjoeb
            Participant

              Love the good news stories! They give me the hope.

              • October 6, 2011 at 11:42 pm
              mom3girlsFL
              Participant

                Hey Mary,

                Thanks so much for posting your good news!

                Congratulations!

                • October 6, 2011 at 11:42 pm
                mom3girlsFL
                Participant

                  Hey Mary,

                  Thanks so much for posting your good news!

                  Congratulations!

                  • October 6, 2011 at 11:42 pm
                  mom3girlsFL
                  Participant

                    Hey Mary,

                    Thanks so much for posting your good news!

                    Congratulations!

                    • October 6, 2011 at 11:46 pm
                    jim Breitfeller
                    Participant

                      Mary,

                      Contrats!!!!!

                       

                      So your last TWO Therapies were…

                      Ipilimumab Then IL-2

                      Very Interesting to say the least.

                       

                      Jimmy B

                      • October 6, 2011 at 11:46 pm
                      jim Breitfeller
                      Participant

                        Mary,

                        Contrats!!!!!

                         

                        So your last TWO Therapies were…

                        Ipilimumab Then IL-2

                        Very Interesting to say the least.

                         

                        Jimmy B

                        • October 6, 2011 at 11:46 pm
                        jim Breitfeller
                        Participant

                          Mary,

                          Contrats!!!!!

                           

                          So your last TWO Therapies were…

                          Ipilimumab Then IL-2

                          Very Interesting to say the least.

                           

                          Jimmy B

                          • October 7, 2011 at 12:39 am
                          King
                          Participant

                            Mary,

                             

                            I am so happy for you and I'm so happy to see that you posted this awesome news.  And I'm also happy that we've become east coast and west coast friends. :)))))))))))))

                            It's a happy night!

                             

                            Stay Strong

                            Kathie

                            • October 7, 2011 at 12:39 am
                            King
                            Participant

                              Mary,

                               

                              I am so happy for you and I'm so happy to see that you posted this awesome news.  And I'm also happy that we've become east coast and west coast friends. :)))))))))))))

                              It's a happy night!

                               

                              Stay Strong

                              Kathie

                              • October 7, 2011 at 12:39 am
                              King
                              Participant

                                Mary,

                                 

                                I am so happy for you and I'm so happy to see that you posted this awesome news.  And I'm also happy that we've become east coast and west coast friends. :)))))))))))))

                                It's a happy night!

                                 

                                Stay Strong

                                Kathie

                                • October 7, 2011 at 1:11 am
                                jax2007gxp
                                Participant

                                  Yippee!!  Congratulations on three years!  You have definitely done all the work to earn it!

                                  Jacki

                                  • October 7, 2011 at 1:11 am
                                  jax2007gxp
                                  Participant

                                    Yippee!!  Congratulations on three years!  You have definitely done all the work to earn it!

                                    Jacki

                                    • October 7, 2011 at 1:11 am
                                    jax2007gxp
                                    Participant

                                      Yippee!!  Congratulations on three years!  You have definitely done all the work to earn it!

                                      Jacki

                                      • October 7, 2011 at 1:15 am
                                      akls
                                      Participant

                                        Such great news Mary.  Thanks for sharing!

                                         

                                        Amy S. in Michigan

                                        • October 7, 2011 at 1:15 am
                                        akls
                                        Participant

                                          Such great news Mary.  Thanks for sharing!

                                           

                                          Amy S. in Michigan

                                          • October 7, 2011 at 1:15 am
                                          akls
                                          Participant

                                            Such great news Mary.  Thanks for sharing!

                                             

                                            Amy S. in Michigan

                                            • October 7, 2011 at 1:44 am
                                            momof2kids
                                            Participant

                                              I hope it continues for you with the NED…it's always great to see others getting to NED, and hope that the rest of us can hopefully get there too!

                                              • October 7, 2011 at 1:44 am
                                              momof2kids
                                              Participant

                                                I hope it continues for you with the NED…it's always great to see others getting to NED, and hope that the rest of us can hopefully get there too!

                                                • October 7, 2011 at 1:44 am
                                                momof2kids
                                                Participant

                                                  I hope it continues for you with the NED…it's always great to see others getting to NED, and hope that the rest of us can hopefully get there too!

                                                  • October 7, 2011 at 2:33 am
                                                  ValinMtl
                                                  Participant

                                                    Mary, this is such wonderful news.  I'm doing the happy dance for you.  Val xx

                                                    • October 7, 2011 at 2:33 am
                                                    ValinMtl
                                                    Participant

                                                      Mary, this is such wonderful news.  I'm doing the happy dance for you.  Val xx

                                                      • October 7, 2011 at 2:33 am
                                                      ValinMtl
                                                      Participant

                                                        Mary, this is such wonderful news.  I'm doing the happy dance for you.  Val xx

                                                        • October 7, 2011 at 10:33 am
                                                        Jim M.
                                                        Participant

                                                          Hi Mary,

                                                           That is such awesome news!!! I could always count on you to compare notes when we were on the same trial. You have been a big support for me and it's a blessing for me to know you. I will pray you stay NED.

                                                           God Bless,

                                                          Jim M.

                                                          • October 7, 2011 at 10:33 am
                                                          Jim M.
                                                          Participant

                                                            Hi Mary,

                                                             That is such awesome news!!! I could always count on you to compare notes when we were on the same trial. You have been a big support for me and it's a blessing for me to know you. I will pray you stay NED.

                                                             God Bless,

                                                            Jim M.

                                                            • October 7, 2011 at 10:33 am
                                                            Jim M.
                                                            Participant

                                                              Hi Mary,

                                                               That is such awesome news!!! I could always count on you to compare notes when we were on the same trial. You have been a big support for me and it's a blessing for me to know you. I will pray you stay NED.

                                                               God Bless,

                                                              Jim M.

                                                              • October 7, 2011 at 1:32 pm
                                                              NYKaren
                                                              Participant

                                                                Fantastic news, Mary.

                                                                I'm doing IL-2 after Ipi too.  also Aldera creme on my mel, which is on my face. 

                                                                I'm so happy for you, and you certainly give us all hope.

                                                                All the best,

                                                                karen

                                                                • October 7, 2011 at 1:32 pm
                                                                NYKaren
                                                                Participant

                                                                  Fantastic news, Mary.

                                                                  I'm doing IL-2 after Ipi too.  also Aldera creme on my mel, which is on my face. 

                                                                  I'm so happy for you, and you certainly give us all hope.

                                                                  All the best,

                                                                  karen

                                                                  • October 7, 2011 at 1:32 pm
                                                                  NYKaren
                                                                  Participant

                                                                    Fantastic news, Mary.

                                                                    I'm doing IL-2 after Ipi too.  also Aldera creme on my mel, which is on my face. 

                                                                    I'm so happy for you, and you certainly give us all hope.

                                                                    All the best,

                                                                    karen

                                                                    • October 9, 2011 at 3:37 am
                                                                    KellieSue
                                                                    Participant

                                                                      Congrats on your NED status!

                                                                      Many more years of NED!

                                                                      Kellie(from Iowa) Stage IV

                                                                      • October 9, 2011 at 3:37 am
                                                                      KellieSue
                                                                      Participant

                                                                        Congrats on your NED status!

                                                                        Many more years of NED!

                                                                        Kellie(from Iowa) Stage IV

                                                                        • October 9, 2011 at 3:37 am
                                                                        KellieSue
                                                                        Participant

                                                                          Congrats on your NED status!

                                                                          Many more years of NED!

                                                                          Kellie(from Iowa) Stage IV

                                                                          • October 9, 2011 at 9:39 pm
                                                                          triciad
                                                                          Participant

                                                                            So happy to hear this…I just love happy stories!  May you have many decades of NED status!!!

                                                                            • October 9, 2011 at 9:39 pm
                                                                            triciad
                                                                            Participant

                                                                              So happy to hear this…I just love happy stories!  May you have many decades of NED status!!!

                                                                              • October 9, 2011 at 9:39 pm
                                                                              triciad
                                                                              Participant

                                                                                So happy to hear this…I just love happy stories!  May you have many decades of NED status!!!

                                                                                • October 11, 2011 at 2:56 pm
                                                                                CKasper
                                                                                Participant

                                                                                  Great! Super! Wonderful!   

                                                                                  • October 11, 2011 at 2:56 pm
                                                                                  CKasper
                                                                                  Participant

                                                                                    Great! Super! Wonderful!   

                                                                                    • October 11, 2011 at 2:56 pm
                                                                                    CKasper
                                                                                    Participant

                                                                                      Great! Super! Wonderful!   

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