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Second Scans Following Ipi-Nivo
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Second Scans Following Ipi-Nivo

› Forums › General Melanoma Community › Second Scans Following Ipi-Nivo

  • Post
    • June 3, 2016 at 8:13 pm
    Mat
    Participant

      "Previously described hypoenhancing hepatic metastases do not demonstrate increased FDG uptake compared to background liver activity." These are the sweetest words I've read since my Stage IV diagnosis (maybe ever).

      I had my second set of scans since ipi-nivo (~week 19), but this was my first PET scan since diagnosis. No new tumors, and none of my existing tumors (~10 liver tumors and a few lung nodules) show "uptake". If I didn't have a naturally skeptical disposition, I might think I was on the path to NEAD (no evidence of "active" disease). Nice to think about, but I've seen the movie before (including my 2015) where it seems like things are going well for the protoganist and then, well, you know. That said, I continue to take it one day at a time–and today is a good day!

      The PET did show some uptake (but not tumor) in my pancreas, which could be a sign of pancreatitis. I'll have labwork to confirm. If I have pancreatitis, I'll need to suspend nivo–but I'll save that potential obstacle for another day.

      In any case, we're getting ready to start my daughter's birthday weekend. She had just turned 4 when I was diagnosed. I'm so grateful to be here for her 7th birthday. Enjoy the weekend.

    Viewing 29 reply threads
    • Replies
        • June 3, 2016 at 8:58 pm
        Polymath
        Participant

          Way to go Mat, keep repeating those sweet words.  Your personality seems a lot like mine.  Respect the enemy, but plan for survival.  After years of bad news, it's so refreshing to finally say I am making progress as opposed to progression.  I too am getting my first, although only partial response to ipi/nivo combo with some radiation thrown in.  It's encouraging, and while its difficult to make long-term plans, I have a renewed sense that I can at least achieve my original milestone and see my daughter graduate high school (two years to go).  I sincerely wish the best to you and that you too see your little lady walk up that podium some day.

          Gary

           

          • June 3, 2016 at 8:58 pm
          Polymath
          Participant

            Way to go Mat, keep repeating those sweet words.  Your personality seems a lot like mine.  Respect the enemy, but plan for survival.  After years of bad news, it's so refreshing to finally say I am making progress as opposed to progression.  I too am getting my first, although only partial response to ipi/nivo combo with some radiation thrown in.  It's encouraging, and while its difficult to make long-term plans, I have a renewed sense that I can at least achieve my original milestone and see my daughter graduate high school (two years to go).  I sincerely wish the best to you and that you too see your little lady walk up that podium some day.

            Gary

             

            • June 3, 2016 at 8:58 pm
            Polymath
            Participant

              Way to go Mat, keep repeating those sweet words.  Your personality seems a lot like mine.  Respect the enemy, but plan for survival.  After years of bad news, it's so refreshing to finally say I am making progress as opposed to progression.  I too am getting my first, although only partial response to ipi/nivo combo with some radiation thrown in.  It's encouraging, and while its difficult to make long-term plans, I have a renewed sense that I can at least achieve my original milestone and see my daughter graduate high school (two years to go).  I sincerely wish the best to you and that you too see your little lady walk up that podium some day.

              Gary

               

              • June 3, 2016 at 9:00 pm
              Bubbles
              Participant

                Oh, Mat!!!!

                Yippie!!!  YAY!!!  WONDERFUL!!  AWESOME!!  Sooooo happy!!!  Happy birthday weekend indeed!!!  Congrats, buddy.  Was certainly your turn!!  Have a great day!  Love, c

                • June 3, 2016 at 9:00 pm
                Bubbles
                Participant

                  Oh, Mat!!!!

                  Yippie!!!  YAY!!!  WONDERFUL!!  AWESOME!!  Sooooo happy!!!  Happy birthday weekend indeed!!!  Congrats, buddy.  Was certainly your turn!!  Have a great day!  Love, c

                  • June 3, 2016 at 9:00 pm
                  Bubbles
                  Participant

                    Oh, Mat!!!!

                    Yippie!!!  YAY!!!  WONDERFUL!!  AWESOME!!  Sooooo happy!!!  Happy birthday weekend indeed!!!  Congrats, buddy.  Was certainly your turn!!  Have a great day!  Love, c

                    • June 3, 2016 at 9:36 pm
                    rosa1
                    Participant

                      Way to go Mat, really happy for you. I hope and pray you'll have many, many more birthdays to celebrate with your loved ones. My scans are also coming up on the 14th, stressing out already.

                      All the best…..

                      Rosa

                      • June 3, 2016 at 9:36 pm
                      rosa1
                      Participant

                        Way to go Mat, really happy for you. I hope and pray you'll have many, many more birthdays to celebrate with your loved ones. My scans are also coming up on the 14th, stressing out already.

                        All the best…..

                        Rosa

                        • June 3, 2016 at 9:36 pm
                        rosa1
                        Participant

                          Way to go Mat, really happy for you. I hope and pray you'll have many, many more birthdays to celebrate with your loved ones. My scans are also coming up on the 14th, stressing out already.

                          All the best…..

                          Rosa

                          • June 3, 2016 at 9:42 pm
                          Jubes
                          Participant

                            Such good news mat.!! Thanks so much for posting. Anne-Louise 

                            • June 3, 2016 at 9:42 pm
                            Jubes
                            Participant

                              Such good news mat.!! Thanks so much for posting. Anne-Louise 

                              • June 3, 2016 at 9:42 pm
                              Jubes
                              Participant

                                Such good news mat.!! Thanks so much for posting. Anne-Louise 

                                • June 4, 2016 at 1:16 am
                                BrianP
                                Participant

                                  Awesome news Mat.  So happy for you;  Enjoy that birthday party!

                                  Brian

                                  • June 4, 2016 at 1:16 am
                                  BrianP
                                  Participant

                                    Awesome news Mat.  So happy for you;  Enjoy that birthday party!

                                    Brian

                                    • June 4, 2016 at 1:16 am
                                    BrianP
                                    Participant

                                      Awesome news Mat.  So happy for you;  Enjoy that birthday party!

                                      Brian

                                      • June 4, 2016 at 2:29 am
                                      JoshF
                                      Participant

                                        Mat I'm just thrilled for you. This is the stuff I like to see posted! I know pancreas can show activity and be nothing so I'm praying for that. Enjoy your daughters bday weekend! Be well my friend!

                                        Josh

                                        • June 4, 2016 at 2:29 am
                                        JoshF
                                        Participant

                                          Mat I'm just thrilled for you. This is the stuff I like to see posted! I know pancreas can show activity and be nothing so I'm praying for that. Enjoy your daughters bday weekend! Be well my friend!

                                          Josh

                                          • June 4, 2016 at 2:29 am
                                          JoshF
                                          Participant

                                            Mat I'm just thrilled for you. This is the stuff I like to see posted! I know pancreas can show activity and be nothing so I'm praying for that. Enjoy your daughters bday weekend! Be well my friend!

                                            Josh

                                            • June 4, 2016 at 5:56 pm
                                            Gwen in Maine
                                            Participant

                                              Excellent news, Mat! Thanks for posting!

                                              Gwen

                                              • June 4, 2016 at 5:56 pm
                                              Gwen in Maine
                                              Participant

                                                Excellent news, Mat! Thanks for posting!

                                                Gwen

                                                • June 4, 2016 at 5:56 pm
                                                Gwen in Maine
                                                Participant

                                                  Excellent news, Mat! Thanks for posting!

                                                  Gwen

                                                  • June 4, 2016 at 7:11 pm
                                                  jade1111
                                                  Participant

                                                    That is good news! Enjoy the birthday weekend! Your post reminded me of some advice a cancer survivor friend gave me for me mom.. and really cna be applied to life in generall.. There are going to be ups and downs along the way. nice to know your on an Upride :0) Enjoy your daughters birthday weekend!!

                                                     

                                                    Best wishes! Thanks for sharing! I look forward to hsaring your post with my mom.

                                                    • June 4, 2016 at 7:11 pm
                                                    jade1111
                                                    Participant

                                                      That is good news! Enjoy the birthday weekend! Your post reminded me of some advice a cancer survivor friend gave me for me mom.. and really cna be applied to life in generall.. There are going to be ups and downs along the way. nice to know your on an Upride :0) Enjoy your daughters birthday weekend!!

                                                       

                                                      Best wishes! Thanks for sharing! I look forward to hsaring your post with my mom.

                                                      • June 4, 2016 at 7:11 pm
                                                      jade1111
                                                      Participant

                                                        That is good news! Enjoy the birthday weekend! Your post reminded me of some advice a cancer survivor friend gave me for me mom.. and really cna be applied to life in generall.. There are going to be ups and downs along the way. nice to know your on an Upride :0) Enjoy your daughters birthday weekend!!

                                                         

                                                        Best wishes! Thanks for sharing! I look forward to hsaring your post with my mom.

                                                        • June 9, 2016 at 11:54 pm
                                                        DZnDef
                                                        Participant

                                                          I just saw this!  What fantastic news, Mat!  I am so so so SO very happy for you!  I wish you many years of NEAD!

                                                          • June 9, 2016 at 11:54 pm
                                                          DZnDef
                                                          Participant

                                                            I just saw this!  What fantastic news, Mat!  I am so so so SO very happy for you!  I wish you many years of NEAD!

                                                            • June 9, 2016 at 11:54 pm
                                                            DZnDef
                                                            Participant

                                                              I just saw this!  What fantastic news, Mat!  I am so so so SO very happy for you!  I wish you many years of NEAD!

                                                              • June 10, 2016 at 12:25 am
                                                              casagrayson
                                                              Participant

                                                                Fabulous news, Mat!

                                                                • June 10, 2016 at 12:25 am
                                                                casagrayson
                                                                Participant

                                                                  Fabulous news, Mat!

                                                                  • June 10, 2016 at 12:25 am
                                                                  casagrayson
                                                                  Participant

                                                                    Fabulous news, Mat!

                                                                Viewing 29 reply threads
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