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Scared about hip pain

Forums General Melanoma Community Scared about hip pain

  • Post
    A
    Participant

      Hello,

      Hello,

      For about a week, I have a pain in my posteriolateral part of the hip, which started suddenly one day and doesn't go away. It is not constantand and I feel it when walking or twisting my leg: it goes away with sitting or lying down. I am Stage 1B, 9 years post-diagnosis. I have a herniated disk but never had before such symptoms in the hip. Did someone experienced something similar?  I am scared and will appreciate any help. Thanks.

    Viewing 14 reply threads
    • Replies
        Janner
        Participant

          Look for the most likely explanation first.  THen look for zebras (melanoma).  Truthfully, 9 years out from a stage IB lesion is low risk, and hip pain when you have a herniated disk is high risk.  You can have sciatica, referred pain or other simple explanations.  I'd probably be talking to a back doctor if I were you.

          Best  w

          Janner
          Participant

            Look for the most likely explanation first.  THen look for zebras (melanoma).  Truthfully, 9 years out from a stage IB lesion is low risk, and hip pain when you have a herniated disk is high risk.  You can have sciatica, referred pain or other simple explanations.  I'd probably be talking to a back doctor if I were you.

            Best  w

            Janner
            Participant

              Look for the most likely explanation first.  THen look for zebras (melanoma).  Truthfully, 9 years out from a stage IB lesion is low risk, and hip pain when you have a herniated disk is high risk.  You can have sciatica, referred pain or other simple explanations.  I'd probably be talking to a back doctor if I were you.

              Best  w

              JerryfromFauq
              Participant

                YEP.

                Mat
                Participant
                  I’ll give you a different take. In January 2013–almost 10 years after having a stage I mole removed from my chest–I started to experience pain in my lower left arm and wrist. I didn’t get an X-ray because I knew I hadn’t injured my arm, fallen, etc. I would wear a brace and ice my arm (per primary doctor). In July 2013, I was diagnosed stage IV. To skip to the end, it turns out that I had a bone lesion (since radiated) as revealed by a simple X-ray. The arm pain was the earliest outward sign of metastatic disease–who knew? My suggestion would be to request an X-ray and tell the doctors that you are a melanoma patient. That said, as noted by others, it is statistically unlikely that you’re having a recurrence.
                  Mat
                  Participant
                    I’ll give you a different take. In January 2013–almost 10 years after having a stage I mole removed from my chest–I started to experience pain in my lower left arm and wrist. I didn’t get an X-ray because I knew I hadn’t injured my arm, fallen, etc. I would wear a brace and ice my arm (per primary doctor). In July 2013, I was diagnosed stage IV. To skip to the end, it turns out that I had a bone lesion (since radiated) as revealed by a simple X-ray. The arm pain was the earliest outward sign of metastatic disease–who knew? My suggestion would be to request an X-ray and tell the doctors that you are a melanoma patient. That said, as noted by others, it is statistically unlikely that you’re having a recurrence.
                    Mat
                    Participant
                      I’ll give you a different take. In January 2013–almost 10 years after having a stage I mole removed from my chest–I started to experience pain in my lower left arm and wrist. I didn’t get an X-ray because I knew I hadn’t injured my arm, fallen, etc. I would wear a brace and ice my arm (per primary doctor). In July 2013, I was diagnosed stage IV. To skip to the end, it turns out that I had a bone lesion (since radiated) as revealed by a simple X-ray. The arm pain was the earliest outward sign of metastatic disease–who knew? My suggestion would be to request an X-ray and tell the doctors that you are a melanoma patient. That said, as noted by others, it is statistically unlikely that you’re having a recurrence.
                      A
                      Participant

                        Sorry about your recurrence. What was the depth of your primary melanoma?
                        Could you also describe a pain pattern, please? Was it constant, increasing with time, more or less with movement, at night, etc.. Thanks!

                        JC
                        Participant

                          Mat, isn't it extremely rare for someone stage I (low risk) to get any type of scan?  Normally wouldn't have had a SNB either.  Insurance companies and oncologists typically don't go there for a 0.50.  Did you have other high risk characteristics to get all that follow up and a PET?

                          Mat
                          Participant
                            My primary melanoma was .51mm with signs of regression to about .70mm. I also had residual thymus tissue (admittedly I never quite understood why this was a concern.) Other than that, no special factors. I did have wide excision, SNB under left arm and PET in 2003 (no PET sine). I also got scanned (CT) for the first 3 years of the 10 of follow-up. Perhaps I had a combo of good insurance and a good melanoma specialist who knew how to spin the details with insurance. In the end, however, the stage IV wasn’t caught particularly early. In any case, my situation is not the norm-I’m just suggesting to be vigilant and ask for the X-ray (unlike me).

                            As for my left arm pain, not sure describing it will do much good since bone lesions and pain will present differently depending on location, right? The pain was, at times, steady and debilitating and, at other times, transient and manageable. It presented itself like tennis elbow-turning my lower arm, e.g., to type, became very painful.

                            JC
                            Participant

                              no chance there was another different primary?

                              A
                              Participant

                                Sorry for a stupid question, but are you saying that it hurted like "tennis elbow" injury? 
                                It aslo appears that your primary melanoma was "low risk". Did they count mitotic rate at that time?

                                Tina D
                                Participant

                                  Have to agree with Janner. Seems the most likely culprit is not going to be mel. My husband has years of back pain post injury and back pain can definitely radiate to the hip… it can radiate to many areas and with many intensities and types of pain. There can also be multiple other explanations. My oncologist told me years ago " we all have aches and pains, but if you develop one that lasts for 2 weeks, let me know and we will evaluate it. "  So, unless it was an excrutiating pain demanding more urgent treatment, I have gone by this rule of thumb. If this has been persitent, I would certainly go to my Dr to have it checkes out, and if no reasonable definitive diagnosis is come up with, I would pursue it until I was satisfied. BUT… I would say the very greatest possibility in your case is that it is unrelated to the mel.

                                  Let us know what you decide and what you find out. Hopefully you can quickly get peace of mind over it.

                                  Tina

                                  Tina D
                                  Participant

                                    Have to agree with Janner. Seems the most likely culprit is not going to be mel. My husband has years of back pain post injury and back pain can definitely radiate to the hip… it can radiate to many areas and with many intensities and types of pain. There can also be multiple other explanations. My oncologist told me years ago " we all have aches and pains, but if you develop one that lasts for 2 weeks, let me know and we will evaluate it. "  So, unless it was an excrutiating pain demanding more urgent treatment, I have gone by this rule of thumb. If this has been persitent, I would certainly go to my Dr to have it checkes out, and if no reasonable definitive diagnosis is come up with, I would pursue it until I was satisfied. BUT… I would say the very greatest possibility in your case is that it is unrelated to the mel.

                                    Let us know what you decide and what you find out. Hopefully you can quickly get peace of mind over it.

                                    Tina

                                    Tina D
                                    Participant

                                      Have to agree with Janner. Seems the most likely culprit is not going to be mel. My husband has years of back pain post injury and back pain can definitely radiate to the hip… it can radiate to many areas and with many intensities and types of pain. There can also be multiple other explanations. My oncologist told me years ago " we all have aches and pains, but if you develop one that lasts for 2 weeks, let me know and we will evaluate it. "  So, unless it was an excrutiating pain demanding more urgent treatment, I have gone by this rule of thumb. If this has been persitent, I would certainly go to my Dr to have it checkes out, and if no reasonable definitive diagnosis is come up with, I would pursue it until I was satisfied. BUT… I would say the very greatest possibility in your case is that it is unrelated to the mel.

                                      Let us know what you decide and what you find out. Hopefully you can quickly get peace of mind over it.

                                      Tina

                                      JerryfromFauq
                                      Participant

                                        YEP.

                                        JerryfromFauq
                                        Participant

                                          YEP.

                                          A
                                          Participant

                                            Sorry about your recurrence. What was the depth of your primary melanoma?
                                            Could you also describe a pain pattern, please? Was it constant, increasing with time, more or less with movement, at night, etc.. Thanks!

                                            A
                                            Participant

                                              Sorry about your recurrence. What was the depth of your primary melanoma?
                                              Could you also describe a pain pattern, please? Was it constant, increasing with time, more or less with movement, at night, etc.. Thanks!

                                              JC
                                              Participant

                                                Mat, isn't it extremely rare for someone stage I (low risk) to get any type of scan?  Normally wouldn't have had a SNB either.  Insurance companies and oncologists typically don't go there for a 0.50.  Did you have other high risk characteristics to get all that follow up and a PET?

                                                JC
                                                Participant

                                                  Mat, isn't it extremely rare for someone stage I (low risk) to get any type of scan?  Normally wouldn't have had a SNB either.  Insurance companies and oncologists typically don't go there for a 0.50.  Did you have other high risk characteristics to get all that follow up and a PET?

                                                  Mat
                                                  Participant
                                                    My primary melanoma was .51mm with signs of regression to about .70mm. I also had residual thymus tissue (admittedly I never quite understood why this was a concern.) Other than that, no special factors. I did have wide excision, SNB under left arm and PET in 2003 (no PET sine). I also got scanned (CT) for the first 3 years of the 10 of follow-up. Perhaps I had a combo of good insurance and a good melanoma specialist who knew how to spin the details with insurance. In the end, however, the stage IV wasn’t caught particularly early. In any case, my situation is not the norm-I’m just suggesting to be vigilant and ask for the X-ray (unlike me).

                                                    As for my left arm pain, not sure describing it will do much good since bone lesions and pain will present differently depending on location, right? The pain was, at times, steady and debilitating and, at other times, transient and manageable. It presented itself like tennis elbow-turning my lower arm, e.g., to type, became very painful.

                                                    Mat
                                                    Participant
                                                      My primary melanoma was .51mm with signs of regression to about .70mm. I also had residual thymus tissue (admittedly I never quite understood why this was a concern.) Other than that, no special factors. I did have wide excision, SNB under left arm and PET in 2003 (no PET sine). I also got scanned (CT) for the first 3 years of the 10 of follow-up. Perhaps I had a combo of good insurance and a good melanoma specialist who knew how to spin the details with insurance. In the end, however, the stage IV wasn’t caught particularly early. In any case, my situation is not the norm-I’m just suggesting to be vigilant and ask for the X-ray (unlike me).

                                                      As for my left arm pain, not sure describing it will do much good since bone lesions and pain will present differently depending on location, right? The pain was, at times, steady and debilitating and, at other times, transient and manageable. It presented itself like tennis elbow-turning my lower arm, e.g., to type, became very painful.

                                                      JC
                                                      Participant

                                                        no chance there was another different primary?

                                                        JC
                                                        Participant

                                                          no chance there was another different primary?

                                                          A
                                                          Participant

                                                            Sorry for a stupid question, but are you saying that it hurted like "tennis elbow" injury? 
                                                            It aslo appears that your primary melanoma was "low risk". Did they count mitotic rate at that time?

                                                            A
                                                            Participant

                                                              Sorry for a stupid question, but are you saying that it hurted like "tennis elbow" injury? 
                                                              It aslo appears that your primary melanoma was "low risk". Did they count mitotic rate at that time?

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