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Scanxiety
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Scanxiety

› Forums › General Melanoma Community › Scanxiety

  • Post
    • March 27, 2017 at 3:23 pm
    stevenallenschwartz
    Participant

      I just had my pet scan today after 5 infusions of Keytruda. Should hear within the next 24 hours where I stand regarding the efficacy of the treatment. Anxious but hopefuly!!!!

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    • Replies
        • March 27, 2017 at 3:56 pm
        MichelleRHG
        Participant
          Ugh. Scsnxietu is the worst. I hope the next 24 hours pass quickly for you and the results are NED.
          • March 27, 2017 at 4:13 pm
          Jahendry12
          Participant

            Hoping the Keytruda is doing its thing.  Agree, scanxiety is the worst.  We have both a CT & MRI this coming Saturday.  Keep us posted.

            • March 27, 2017 at 4:18 pm
            jennunicorn
            Participant

              Fingers crossed for good news! I had a brain MRI Friday evening due to symptoms and I've had to wait all weekend to hear the results… it's been an anxious weekend to say the least. 

              • March 27, 2017 at 5:35 pm
              Nick C
              Participant

                Just had my CT on Thursday after 4 infusions. Got my results on Friday evening…things are looking better. Hope the same for you.

                Nick

                • March 27, 2017 at 8:15 pm
                stevenallenschwartz
                Participant

                  Just got results; no evidence of disease. Boy do I feel lucky. Dr. says he want me to undergo 3 more Keytruda infusions than monitor me with pet scans for a prolonged period of time. Does this sound right? Thanks again for all your support and caring. 

                    • March 27, 2017 at 8:47 pm
                    Jahendry12
                    Participant

                      Awesome!!!  Congratulations.  Thanks for sharing the good news.

                      • March 27, 2017 at 10:22 pm
                      Marksa2570
                      Participant

                        wow…. that is excellent.  Congrats!  Great news!   

                        • March 27, 2017 at 10:29 pm
                        jennunicorn
                        Participant

                          Great news! Every 3 months is the typical scan interval. Is the doc saying he only wants you to do 3 more infusions and then no more? I know every doc has their own opinion on when to stop treatment, but that seems a little early to me, but also depends on how your body is tolerating it as well.

                          • March 27, 2017 at 11:01 pm
                          Nick C
                          Participant

                            Great news!!!!!

                            • March 28, 2017 at 12:46 pm
                            AliCat61
                            Participant

                              That is such wonderful news! Thank you for sharing with us. It's good to be able to celebrate sometimes! Please do get a second opinion about the optimal number of Keytruda treatments, or at the very least ask your doctor about his reasoning. The plan for my husband is a total of 4 Opdivo and Yervoy combo treatments, three weeks apart, followed by Opdivo every two weeks, indefinitely, as long as he is responding. Things are changing so quickly in the treatment of melanoma right now. Be sure that your doctor is on top of all the recent changes. Best of luck! And thanks again for sharing!

                            • March 27, 2017 at 10:58 pm
                            stevenallenschwartz
                            Participant

                              I also thought that 8 Keytruda sessions was not current with the majority's opinion for the proper protocol. It was my understanding that most patients receive a minimum of 24 months. I will get a second opinion in order to insure I am not cutting myself short.

                               

                                • March 27, 2017 at 11:04 pm
                                jennunicorn
                                Participant

                                  I've heard anywhere from 1 to 2 years after NED.. so 8 in total definitely seems minimal. I would ask your doc their reasoning on such a small amount of infusions.

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