Hi guys,
I am just posting this in hopes that it helps all of you that go through that scan anxiety that we know so well. I am still on the MK-3475/Pembro/Keytruda clinical trial. I have been on it for 2.5 years and have had great results with it. All my scans have been great since the drug started doing its thing…so I am lucky to say that my scanning anxiety has been less over the past year and a half.
My recent scan in December showed some intestinal wall thickening…so they were worried that I might be experiencing some colitis…but I was not. And my scan a few weeks ago showed that same intestinal wall thickening, as well as what looked like intestinal wall collapsing (which is very dangerous), and some suspicious lesions in my colon. So they were worried that perhaps the drug was hurting my intestines and that perhaps the melanoma had traveled south to my digestive system and they wanted to do a colonoscopy.
The colonoscopy showed that everything was very healthy. No intestinal wall thickening or collapsing and no spots. They took several biopsies anyway to make sure…and all came back totally normal. Diagnosis: No need for another colonoscopy for at least 10 years. For me to hear 10 years….was such a strange feeling. A feeling like I was a normal person without this metastatic melanoma cloud over my head. A person that easily has 10 years to live without question. 🙂
So my point is….try your best not to waste too much time stressing and worrying until you truly have all the tests back. Our doctors are doing the best they can to help us.
Love, health and happiness to you all, Laurie
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