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Scans showing something that is really nothing

Forums General Melanoma Community Scans showing something that is really nothing

  • Post
    sweetaugust
    Participant

    Hi guys,

    I am just posting this in hopes that it helps all of you that go through that scan anxiety that we know so well.  I am still on the MK-3475/Pembro/Keytruda clinical trial.  I have been on it for 2.5 years and have had great results with it. All my scans have been great since the drug started doing its thing…so I am lucky to say that my scanning anxiety has been less over the past year and a half. 

    My recent scan in December showed some intestinal wall thickening…so they were worried that I might be experiencing some colitis…but I was not.  And my scan a few weeks ago showed that same intestinal wall thickening, as well as what looked like intestinal wall collapsing (which is very dangerous), and some suspicious lesions in my colon.  So they were worried that perhaps the drug was hurting my intestines and that perhaps the melanoma had traveled south to my digestive system and they wanted to do a colonoscopy. 

    The colonoscopy showed that everything was very healthy.  No intestinal wall thickening or collapsing and no spots.  They took several biopsies anyway to make sure…and all came back totally normal.  Diagnosis: No need for another colonoscopy for at least 10 years.  For me to hear 10 years….was such a strange feeling.  A feeling like I was a normal person without this metastatic melanoma cloud over my head.  A person that easily has 10 years to live without question.  :)

    So my point is….try your best not to waste too much time stressing and worrying until you truly have all the tests back.  Our doctors are doing the best they can to help us. 

    Love, health and happiness to you all, Laurie

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  • Replies
      Gwen in Maine
      Participant

      Thanks so much for posting this, Laurie. In December, my first scans since starting Keytruda showed many of my tumors shrinking. I'm still finding it hard to relax until I get results from the scans I had yesterday. Your experience helps!

      Gwen

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        sweetaugust
        Participant

        That's great news Gwen…that your first scans showed shrinking.  Sounds like you are on the right track. I love hearing that.  Have a great day, Laurie

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        sweetaugust
        Participant

        That's great news Gwen…that your first scans showed shrinking.  Sounds like you are on the right track. I love hearing that.  Have a great day, Laurie

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        sweetaugust
        Participant

        That's great news Gwen…that your first scans showed shrinking.  Sounds like you are on the right track. I love hearing that.  Have a great day, Laurie

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      Gwen in Maine
      Participant

      Thanks so much for posting this, Laurie. In December, my first scans since starting Keytruda showed many of my tumors shrinking. I'm still finding it hard to relax until I get results from the scans I had yesterday. Your experience helps!

      Gwen

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      Gwen in Maine
      Participant

      Thanks so much for posting this, Laurie. In December, my first scans since starting Keytruda showed many of my tumors shrinking. I'm still finding it hard to relax until I get results from the scans I had yesterday. Your experience helps!

      Gwen

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      magnus31
      Participant

      Fantastic! I am so happy to hear this great news. And it really is such an inspiration to others in stage IV like myself. Thanks for sharing.

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      magnus31
      Participant

      Fantastic! I am so happy to hear this great news. And it really is such an inspiration to others in stage IV like myself. Thanks for sharing.

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      magnus31
      Participant

      Fantastic! I am so happy to hear this great news. And it really is such an inspiration to others in stage IV like myself. Thanks for sharing.

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      dvd
      Participant

      9 months after being NED on ipi plus nivo or placebo trial I had a hot spot in my spine on PET scan. Obviously concerned, but without any symptoms, I had a folow-up MRI of the area which showed nothing. That was three months ago so I'm patiently waiting for the scan results from my PET yesterday… 

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      dvd
      Participant

      9 months after being NED on ipi plus nivo or placebo trial I had a hot spot in my spine on PET scan. Obviously concerned, but without any symptoms, I had a folow-up MRI of the area which showed nothing. That was three months ago so I'm patiently waiting for the scan results from my PET yesterday… 

      Loading spinner
      dvd
      Participant

      9 months after being NED on ipi plus nivo or placebo trial I had a hot spot in my spine on PET scan. Obviously concerned, but without any symptoms, I had a folow-up MRI of the area which showed nothing. That was three months ago so I'm patiently waiting for the scan results from my PET yesterday… 

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