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running with metastatic melanoma

Forums General Melanoma Community running with metastatic melanoma

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        Wow! Great share, Edwin! I too ran through Stage III and IV mel as well as 2 1/2 years of nivo. (Not to mention the fun life and times of post Ex-goblet cell adenocarcinoma of the appendix and 3 months of old school chemo!) It is not always easy. It is not always fun. It is not a matter of how far or how fast I run – beyond how I challenge myself. I am certain keeping up the fight and my strength in this way has enabled me to continue to be here! As counter-intuitive as it may seem (especially in the middle of a long hard run!!!) – exercise has been proven to GIVE us energy and decrease fatigue overall. It is hard to face running when you are feeling tired. But, I encourage folks to give exercise a try. Do stretches while sitting, until you can do more. Take a walk. Just to the mailbox at first. Each step counts. It really will make you feel better, sleep better, and be less tired in general. As ever, the best part of running? Stopping! HA! Keep running, Edwin! Hang tough, all of you. Celeste
          Great article. Along those lines, you might have seen the reports around Gabe Grunewald here in MN ( Another testament to the power of running (exercise in general, or even broader, keeping as active as possible).
          I’d been running between 3 and 7 days per week for the better part of 40 years, when I got my stage 3 dx and started immunotherapy. Kept running through the first six months of it, but started getting really bad shortness of breath during the runs, which eventually forced me to stop. Have been able to keep biking though. Pretty long rides too (40+). Have been trying to get back into running since stopping the immunotherapy ~ 5 months ago, but still not able to go more than a mile or so before the wheezing and shortness of breath kick in. Will keep trying though.
              I have been running for 38 years except for 5 months in 2016. Trying to run was too painful from February to July in 2016 due to melanoma in my bones. I thought that I would probably never run again. I was able to bicycle from May to July that year. On May 26, 2019 I ran the MDRA (Minnesota Distance Running Association) Mississippi 10 Mile in St Paul in 1:26:48.
              Movement always helps me. Definitely gives me energy, never regret it.
                I’m not a runner anymore but I do believe that exercise and movement has been a huge part of how I’ve been able to fight this beast and deal with the side effects! Thank you for sharing!
                  You are pretty amazing Edwin! No joke, you do more with a debilitating disease and keep on running! As Forrest Gump said “”That day, for no particular reason, I decided to go for a little run” and kept on running!
                    Brother Edwin! Long see no time! You know you should NEVER run with either scissors, your favorite cocktail or Melanoma! To risky! Keep the faith bro!
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