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Round 2 of Ipi went well

Forums General Melanoma Community Round 2 of Ipi went well

  • Post
    Vermont_Donna
    Participant

    Hi,

    Hi,

    Had Round two of Ipi yesterday. My oncologist thought he saw some pigmentation changes in my skin (looked me over with a blacklight) and he said that was encouraging. Also he did agree that all my melanomas (2 dozen or so) on my leg and the sub-q's are all bigger ie inflamed and that if we are thinking on the hopeful side this would be a good sign as tumors get inflamed before withering away…..of course the dark side would be I have more melanomas and the ones I have are bigger and growing. But we are going to choose to think positively! The infusion went well, I fell asleep again and my ffriend who drove me and my mom knitted and chatted away. once awake I had a reiki session and some lunch! Everyone is so positive and so warm but professional too!

    My wounds are not cleaning up that well with the enzymatic debrider (Santyl) but we are going to try one more week before going to surgical debridement. I am having more pain in my calf and cant lay my leg on the bed to sleep, have to lay on my side with pillows between my legs to give "space" between my calves….cant have anything touch my calf as the wounds are too painful and throbbing. My oncologist drew two lines around one of the wounds…one round the really red part and the second one further out, around where the redness ends. If the redness exceeds the lines I am to go to two of my antibiotics a day instead of one and call him.

    So thats the update. Wishing you a very Merry Christmas and Happy Holiday for those who dont celebrate Christmas.

    Vermont_Donna

    stage 3a, have done many different treatments, currently doing an clinical trial of "Ipi"

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  • Replies
      killmel
      Participant

      Donna,

       

      So happy there are some positive signs IPI is working. Have you had any side effects with IPI & how are you manging them???

      Hope  for a xmas miracle for you!

      Wendy

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        Vermont_Donna
        Participant

        Hi Wendy,

        The biggest side effects I've had is extreme nausea, dry mouth and fatigue……I have some compazine for the nausea and my oncologist just gave me some Zofran. So far not too bad on the side effects, although when the nause hits I cant move….if I did I would vomit. So I just sit or lie very still.

        How are you doing?

        Vermont_Donna

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        Vermont_Donna
        Participant

        Hi Wendy,

        The biggest side effects I've had is extreme nausea, dry mouth and fatigue……I have some compazine for the nausea and my oncologist just gave me some Zofran. So far not too bad on the side effects, although when the nause hits I cant move….if I did I would vomit. So I just sit or lie very still.

        How are you doing?

        Vermont_Donna

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      killmel
      Participant

      Donna,

       

      So happy there are some positive signs IPI is working. Have you had any side effects with IPI & how are you manging them???

      Hope  for a xmas miracle for you!

      Wendy

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      Sharyn
      Participant

      Hi Donna!

      Well, now, isn't that a bit of good news! My sub-qs got inflamed and seemed to get much bigger, even after the 3rd infusion. But since the 4th infusion, they are literally melting away!! I'm hoping the same is happening to my lung and brain mets. I should get the scan results any day now. So breathe a sigh of relief, and enjoy the holidays. I wish you a very Merry Christmas, and a happy, healthy new year.

      Hugs

      Sharyn, Stage IV

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      Sharyn
      Participant

      Hi Donna!

      Well, now, isn't that a bit of good news! My sub-qs got inflamed and seemed to get much bigger, even after the 3rd infusion. But since the 4th infusion, they are literally melting away!! I'm hoping the same is happening to my lung and brain mets. I should get the scan results any day now. So breathe a sigh of relief, and enjoy the holidays. I wish you a very Merry Christmas, and a happy, healthy new year.

      Hugs

      Sharyn, Stage IV

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        Vermont_Donna
        Participant

        Thanks Sharyn, I am hoping things will start fading awa! I am having lots of "aches" in that darn right leg so am hoping if its mealnoma related that the aches also go away! Merry Christmas to you to dear!

        Vermont_Donna

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        Vermont_Donna
        Participant

        Thanks Sharyn, I am hoping things will start fading awa! I am having lots of "aches" in that darn right leg so am hoping if its mealnoma related that the aches also go away! Merry Christmas to you to dear!

        Vermont_Donna

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        ValinMtl
        Participant

        Sharyn, Sending positive thoughts for a wonderful scan report.  I do so pray that you get good results my tough little warrior. Merry Christmas. Val xx

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        ValinMtl
        Participant

        Sharyn, Sending positive thoughts for a wonderful scan report.  I do so pray that you get good results my tough little warrior. Merry Christmas. Val xx

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      King
      Participant

      Donna,

       

      Merry Christmas!  Stick with the positive thoughts.  Try to stay comfortable.  I know it can't be easy.

       

      Stay Strong

      King

      Stage IV 7/05 Liver mes

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      King
      Participant

      Donna,

       

      Merry Christmas!  Stick with the positive thoughts.  Try to stay comfortable.  I know it can't be easy.

       

      Stay Strong

      King

      Stage IV 7/05 Liver mes

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        Vermont_Donna
        Participant

        Hi King, Thanks for the support!    Merry Christmas!!

        Hugs, Vermont_Donna

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        Vermont_Donna
        Participant

        Hi King, Thanks for the support!    Merry Christmas!!

        Hugs, Vermont_Donna

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      Merry Christmas Donna!  It sounds like you have some real positive signs to focus on.  I am so happy for you. 

      May you have a very peace-filled and joyous day today.  May you feel that peace that God brings to our hearts.

      Many blessings,

      Shelly

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      Merry Christmas Donna!  It sounds like you have some real positive signs to focus on.  I am so happy for you. 

      May you have a very peace-filled and joyous day today.  May you feel that peace that God brings to our hearts.

      Many blessings,

      Shelly

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        Vermont_Donna
        Participant

        Thanks Shelly,

        I am encouraged by Dr Ernstoff's assessment of some positive signs….but as I went through the day yesterday I couldnt help thinking "is this my last Christmas?" I am under a little dark cloud and I will shake it, but I am worried about another symptom in my leg that I didnt tell him about….one section of my thight is achy….at first I thought I pulled a muscle but I am not sure anymore. I keep thinking bone mets, but my bone scan right before Ipi was negative. Could bone mets happen just like that?? I will bring it up when I call him tomorrow to let him know I went back on augmentin twicwe a day rather than once as I feel the infection in my wounds went beyond the black circle he drew. I am not going to wait til 1/12, my next oncology appt and ipi date. I am going to tell him now as I am worried. Anyways, enough about me. Shelly how are you doing and feeling?? How was Christmas in Switzerland??

        hugs,

        Vermont_Donna

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        Vermont_Donna
        Participant

        Thanks Shelly,

        I am encouraged by Dr Ernstoff's assessment of some positive signs….but as I went through the day yesterday I couldnt help thinking "is this my last Christmas?" I am under a little dark cloud and I will shake it, but I am worried about another symptom in my leg that I didnt tell him about….one section of my thight is achy….at first I thought I pulled a muscle but I am not sure anymore. I keep thinking bone mets, but my bone scan right before Ipi was negative. Could bone mets happen just like that?? I will bring it up when I call him tomorrow to let him know I went back on augmentin twicwe a day rather than once as I feel the infection in my wounds went beyond the black circle he drew. I am not going to wait til 1/12, my next oncology appt and ipi date. I am going to tell him now as I am worried. Anyways, enough about me. Shelly how are you doing and feeling?? How was Christmas in Switzerland??

        hugs,

        Vermont_Donna

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      ValinMtl
      Participant

      Hi Donna

      Round 2…isn't it amazing how the time flies!  I pray that you have a wonderful response and that your leg starts healing!  Your oncologist seems on top of everything!  A reiki session now that sounds very interesting. 
      I hope Christimas was full of wonderful events for you.  Val xx

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      ValinMtl
      Participant

      Hi Donna

      Round 2…isn't it amazing how the time flies!  I pray that you have a wonderful response and that your leg starts healing!  Your oncologist seems on top of everything!  A reiki session now that sounds very interesting. 
      I hope Christimas was full of wonderful events for you.  Val xx

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        Vermont_Donna
        Participant

        Hi Val,

         Thanks! Yes DHMC offers reiki to their chemo patients while receiving chemo treatments. Its great. They also have upstairs in one of their open spaces music being played….piano or harp and you can hear it in the waiting room. Thay have a lot of nice features to this hospital. How are you doing?

        Hugs,

        Vermont_Donna

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        Vermont_Donna
        Participant

        Hi Val,

         Thanks! Yes DHMC offers reiki to their chemo patients while receiving chemo treatments. Its great. They also have upstairs in one of their open spaces music being played….piano or harp and you can hear it in the waiting room. Thay have a lot of nice features to this hospital. How are you doing?

        Hugs,

        Vermont_Donna

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      Bruce in NH
      Participant

      Hi Donna, no doubt this is a difficult journey for you but hang in there! We are all pulling for you to successfully complete the ipi infusions and see real progress in melanoma regression. My thoughts and prayers continue for you and your family, hoping for a brighter 2011 for you.

      All the best,

      Bruce in NH

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      Bruce in NH
      Participant

      Hi Donna, no doubt this is a difficult journey for you but hang in there! We are all pulling for you to successfully complete the ipi infusions and see real progress in melanoma regression. My thoughts and prayers continue for you and your family, hoping for a brighter 2011 for you.

      All the best,

      Bruce in NH

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        Vermont_Donna
        Participant

        Hi Bruce,

        Thanks for your support. So you are waiting for more scans in February…..how are you holding up?? Feeling ok??

        Vermont_Donna

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        Vermont_Donna
        Participant

        Hi Bruce,

        Thanks for your support. So you are waiting for more scans in February…..how are you holding up?? Feeling ok??

        Vermont_Donna

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