Hi everyone,
My sweetie died on July 14, 2019, just two weeks after we were told there weren’t any more treatment options for him. He was not in any pain, and his whole family was able to come say goodbye. We were all with him when he passed.
I haven’t talked much about our personal details because I wanted to preserve his privacy while he was alive. But now it’s important to me that everybody gets to see just what an amazing person my husband was.
We have a memorial page for him hosted at the University of British Columbia, where Jordan completed his PhD and a postdoctoral fellowship. (Also where he met me!!)
You can read a little more about him here: https://memorial.support.ubc.ca/jordan-burke/
Thanks, everyone, for all of your encouragement and support over the past year and a half of his illness. You guys were so great at knowing when to cheerlead and stay positive, and when to be sad with me when things stopped looking up. I found this board immensely helpful. One time a doctor assumed I was a fellow medical professional, because I was so informed about treatment options, side effects and medications!
I won’t be posting or checking this board any more, but I wish everybody GOOD LUCK in their journey with this horrific disease — whether you’re a survivor, current patient, caregiver, or friend. Don’t let Jordan’s story get you down — a lot of people make it a long time with this disease these days. And even though Jordan’s life was way too short, he lived A LOT during his 36 years! (Trust me, a lot of his stories did NOT make it into the formal memorial page… ha!)
Thanks again,
Caleigh
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