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PD1 update on me.Up coming scans.8 1/2 years stg IV!!

Forums General Melanoma Community PD1 update on me.Up coming scans.8 1/2 years stg IV!!

  • Post
    Tina D
    Participant

      First, I want to say Happy New Year to all. I am incredibly grateful to be alive here at the beginning of 2014. When I entered stage IV in 2005, that was a pretty unlikely scenario, so I thank God for each day I am gifted with.

      I started Merck's PD1 back in July, initial scans showed a whopping 67% shrinkage! Next scans 6 weeks later were stable with no changes. I will be having scans again on the 12th of January. I am feeling pretty well overall. Biggest issue has been when my thryroid quit entirely, and that has caused some major fatigue, but synthroid is bringing levels back up, and I am def doing better. I do have quite a bit of vitiligo on face and arms; halos around many moles.Eyelashes and brows turning white. I am trusting the Lord with the outcome, but do feel a little anxious about the upcoming scans since the previous ones had no shrinkage at all. My days are in His hands, and I am thankful… so very thankful for all the years He has blessed me with. I will turn 50 this year in April and there never was a woman more happy to be hitting the big five-o.

      When I was diagnosed with breast cancer in Jan 2002, and melanoma in March of 02 … our kiddos were still so young ( 2,5,10,11 and 14) and I was only 37. When I had that first mel recurrence in 2005, I knew my days could be short with my precious family. Thanking the Lord that now our children are 14,17,22,23 and 26 and I am glad for each extra day with them and with my wonderful hubby of 30 years. May each day of this New Year be one you cherish, and make memories with loved ones. Some days are much more trying than others for each of us, and this is not an easy road… but, as I look back, I have so many amazing wonderful memories of blessed days by the scores over these past 12 years since my initial diagnosis.

      With a thankful heart, and wishes for a blessed New Year for each of you,

      Tina

    Viewing 8 reply threads
    • Replies
        BrianP
        Participant

          Well said Tina.  Praying for more good news for you on the 12th.

            arthurjedi007
            Participant

              Thank you so much for the inspiration Tina. I started stage 4 last June 2013.

              Erinmay22
              Participant

                Tina –

                So great to hear your update!!! I had my 3 month scans Dec 27th!  Basically showed stable disease and nothing new.  Honestly, the May, Jul, Sept, and Dec have showed very little shirnkage or movement (no growth or anything new so I'm counting my blessings!).  I kind of wonder if maybe I did a PET scan it might show activity and they are there just dont light up?  who knows.  

                Have fatigue also and chronic sinus infeciton it seems.  My thyroid hasn't quite but everytime it seems to get lower and lower on the range!  I am getting the low dose of Merck's drug every 3 weeks!

                Here's positive thoughts your way!!

                Erin

                Erinmay22
                Participant

                  Tina –

                  So great to hear your update!!! I had my 3 month scans Dec 27th!  Basically showed stable disease and nothing new.  Honestly, the May, Jul, Sept, and Dec have showed very little shirnkage or movement (no growth or anything new so I'm counting my blessings!).  I kind of wonder if maybe I did a PET scan it might show activity and they are there just dont light up?  who knows.  

                  Have fatigue also and chronic sinus infeciton it seems.  My thyroid hasn't quite but everytime it seems to get lower and lower on the range!  I am getting the low dose of Merck's drug every 3 weeks!

                  Here's positive thoughts your way!!

                  Erin

                  Erinmay22
                  Participant

                    Tina –

                    So great to hear your update!!! I had my 3 month scans Dec 27th!  Basically showed stable disease and nothing new.  Honestly, the May, Jul, Sept, and Dec have showed very little shirnkage or movement (no growth or anything new so I'm counting my blessings!).  I kind of wonder if maybe I did a PET scan it might show activity and they are there just dont light up?  who knows.  

                    Have fatigue also and chronic sinus infeciton it seems.  My thyroid hasn't quite but everytime it seems to get lower and lower on the range!  I am getting the low dose of Merck's drug every 3 weeks!

                    Here's positive thoughts your way!!

                    Erin

                    arthurjedi007
                    Participant

                      Thank you so much for the inspiration Tina. I started stage 4 last June 2013.

                      arthurjedi007
                      Participant

                        Thank you so much for the inspiration Tina. I started stage 4 last June 2013.

                      BrianP
                      Participant

                        Well said Tina.  Praying for more good news for you on the 12th.

                        BrianP
                        Participant

                          Well said Tina.  Praying for more good news for you on the 12th.

                          JerryfromFauq
                          Participant

                            I keep looking for that NED, but have been hanging around with Stable most of the time since 2007.  Hopefully you have necrotic tissue and not active tumors.  Hoping for further reduction on next scans for you.

                            JerryfromFauq
                            Participant

                              I keep looking for that NED, but have been hanging around with Stable most of the time since 2007.  Hopefully you have necrotic tissue and not active tumors.  Hoping for further reduction on next scans for you.

                              JerryfromFauq
                              Participant

                                I keep looking for that NED, but have been hanging around with Stable most of the time since 2007.  Hopefully you have necrotic tissue and not active tumors.  Hoping for further reduction on next scans for you.

                                kpcollins31
                                Participant

                                  Congratulations, Tina – breast cancer and melanoma back-to-back diagnoses… talk about a double whammy. Each day is truly a blessing. I wish you the best on your upcoming scans.

                                  Kevin

                                   

                                  kpcollins31
                                  Participant

                                    Congratulations, Tina – breast cancer and melanoma back-to-back diagnoses… talk about a double whammy. Each day is truly a blessing. I wish you the best on your upcoming scans.

                                    Kevin

                                     

                                    kpcollins31
                                    Participant

                                      Congratulations, Tina – breast cancer and melanoma back-to-back diagnoses… talk about a double whammy. Each day is truly a blessing. I wish you the best on your upcoming scans.

                                      Kevin

                                       

                                  Viewing 8 reply threads
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