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Patients on Keytruda or Opdivo Sought for Survey

Forums General Melanoma Community Patients on Keytruda or Opdivo Sought for Survey

  • Post
    acyr
    Participant

      Hello all,

      The Melanoma Network of Canada (MNC) is urgently seeking patient input into a survey regarding the latest Anti-PD1 therapies and patient experiences. Patients from the US and Canada are encouraged to participate and particularly patients treated with either Nivolumab (MDX 1106) or Pembrolizumab (MK 3475). Please click on the link below to access our survey. 

      The survey information will be used to help support patient the case coverage of these therapies so patients do not have to pay out of pocket in Canada.  Because of the small number of patients in Canada that were enrolled in the clinical trials, we are also asking patients in the US if they will lend a hand to share their experience with either drug by answering a few simple questions. Deadline for response in April 15th. MNC thanks you for you help in supporting access for all patients with this dreadful disease. Any inquiries may be directed to us at 1-877-560-8035

      https://www.surveymonkey.com/s/Pebmro-Nivo_survey

    Viewing 5 reply threads
    • Replies
        arthurjedi007
        Participant

          Question 5 doesn't seem right. It is claiming I receive keytruda via a pill. I do not and don't know anyone who does. It is an iv just like opdivo. Sooo I'm not sure how to proceed on this survey.

          Artie

          arthurjedi007
          Participant

            Question 5 doesn't seem right. It is claiming I receive keytruda via a pill. I do not and don't know anyone who does. It is an iv just like opdivo. Sooo I'm not sure how to proceed on this survey.

            Artie

            arthurjedi007
            Participant

              Question 5 doesn't seem right. It is claiming I receive keytruda via a pill. I do not and don't know anyone who does. It is an iv just like opdivo. Sooo I'm not sure how to proceed on this survey.

              Artie

              ed williams
              Participant

                Hi Annette, to my knowledge the only access to Nivolumab in Ontario, Canada was part of the phase 3 trial that started 14months ago. I was lucky enough to get into the study which has 3 arms ipi, ipi +nivo, or just nivo. We don't know for sure which arm we are in and therefore it would be hard to answer your survey. I am not aware of any other trials in Canada that had Nivo available before this one. Not 100% sure on that one.  The only way to know which drug or drugs you recieved, is if your oncologist had to take you off the study due to complications. There were 5 patients in Ottawa at the start, last January, and we are now down to 3 at present. I think both had issues with Diarrhea. Wishing you the best. Ed

                ed williams
                Participant

                  Hi Annette, to my knowledge the only access to Nivolumab in Ontario, Canada was part of the phase 3 trial that started 14months ago. I was lucky enough to get into the study which has 3 arms ipi, ipi +nivo, or just nivo. We don't know for sure which arm we are in and therefore it would be hard to answer your survey. I am not aware of any other trials in Canada that had Nivo available before this one. Not 100% sure on that one.  The only way to know which drug or drugs you recieved, is if your oncologist had to take you off the study due to complications. There were 5 patients in Ottawa at the start, last January, and we are now down to 3 at present. I think both had issues with Diarrhea. Wishing you the best. Ed

                  ed williams
                  Participant

                    Hi Annette, to my knowledge the only access to Nivolumab in Ontario, Canada was part of the phase 3 trial that started 14months ago. I was lucky enough to get into the study which has 3 arms ipi, ipi +nivo, or just nivo. We don't know for sure which arm we are in and therefore it would be hard to answer your survey. I am not aware of any other trials in Canada that had Nivo available before this one. Not 100% sure on that one.  The only way to know which drug or drugs you recieved, is if your oncologist had to take you off the study due to complications. There were 5 patients in Ottawa at the start, last January, and we are now down to 3 at present. I think both had issues with Diarrhea. Wishing you the best. Ed

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