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OncoVex and GM-CSF for recurrence that takes me to a IIIc

Forums General Melanoma Community OncoVex and GM-CSF for recurrence that takes me to a IIIc

  • Post
    Ali
    Participant

    I was stage IIIb 4 years ago.  Did 9 months of interferon.  I had one in transit met removed from my leg and they found another in my thigh during a PET scan.  Biopsy confirmed melanoma.  ILI and ILP have been ruled out as possibilites because the tumor is too high up in the thigh.  I have seen many Dr.s, and the surgeons here are recommending the OncoVex trial.  I am a little worried about getting the GM-CSF arm.  Any thoughts on that?  It seems like from what I read some people have the tumor taken out and then get the GM-CSF injections, but is it n

    I was stage IIIb 4 years ago.  Did 9 months of interferon.  I had one in transit met removed from my leg and they found another in my thigh during a PET scan.  Biopsy confirmed melanoma.  ILI and ILP have been ruled out as possibilites because the tumor is too high up in the thigh.  I have seen many Dr.s, and the surgeons here are recommending the OncoVex trial.  I am a little worried about getting the GM-CSF arm.  Any thoughts on that?  It seems like from what I read some people have the tumor taken out and then get the GM-CSF injections, but is it normal too to take them with a tumor that has not been excised? 

    I am 32 with three kids, my treatment goal is a cure. I would do whatever it takes.

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      KatyWI
      Participant

      I grappled with the same questions, as I was considering this trial until brain mets knocked me out.  As I recall, the research librarian at the hospital was unable to locate any studies of GM-CSF being used to treat active disease.  For this reason, I felt uncomfortable with the trial.  I will double check my notes at home.

      KatyWI

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      KatyWI
      Participant

      I grappled with the same questions, as I was considering this trial until brain mets knocked me out.  As I recall, the research librarian at the hospital was unable to locate any studies of GM-CSF being used to treat active disease.  For this reason, I felt uncomfortable with the trial.  I will double check my notes at home.

      KatyWI

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      FormerCaregiver
      Participant

      You may be interested in reading what people have said regarding "NED at
      Stage IV and GM-CSF (Leukine)".

      Here is the link to the topic:
      http://www.melanoma.org/community/mpip-melanoma-patients-information-page/ned-stage-iv-and-gm-csf-leukine

      Frank

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      FormerCaregiver
      Participant

      You may be interested in reading what people have said regarding "NED at
      Stage IV and GM-CSF (Leukine)".

      Here is the link to the topic:
      http://www.melanoma.org/community/mpip-melanoma-patients-information-page/ned-stage-iv-and-gm-csf-leukine

      Frank

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