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OncoVex and GM-CSF for recurrence that takes me to a IIIc
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OncoVex and GM-CSF for recurrence that takes me to a IIIc

› Forums › General Melanoma Community › OncoVex and GM-CSF for recurrence that takes me to a IIIc

  • Post
    • March 16, 2011 at 3:50 pm
    Ali
    Participant

      I was stage IIIb 4 years ago.  Did 9 months of interferon.  I had one in transit met removed from my leg and they found another in my thigh during a PET scan.  Biopsy confirmed melanoma.  ILI and ILP have been ruled out as possibilites because the tumor is too high up in the thigh.  I have seen many Dr.s, and the surgeons here are recommending the OncoVex trial.  I am a little worried about getting the GM-CSF arm.  Any thoughts on that?  It seems like from what I read some people have the tumor taken out and then get the GM-CSF injections, but is it n

      I was stage IIIb 4 years ago.  Did 9 months of interferon.  I had one in transit met removed from my leg and they found another in my thigh during a PET scan.  Biopsy confirmed melanoma.  ILI and ILP have been ruled out as possibilites because the tumor is too high up in the thigh.  I have seen many Dr.s, and the surgeons here are recommending the OncoVex trial.  I am a little worried about getting the GM-CSF arm.  Any thoughts on that?  It seems like from what I read some people have the tumor taken out and then get the GM-CSF injections, but is it normal too to take them with a tumor that has not been excised? 

      I am 32 with three kids, my treatment goal is a cure. I would do whatever it takes.

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    • Replies
        • March 16, 2011 at 5:02 pm
        KatyWI
        Participant

          I grappled with the same questions, as I was considering this trial until brain mets knocked me out.  As I recall, the research librarian at the hospital was unable to locate any studies of GM-CSF being used to treat active disease.  For this reason, I felt uncomfortable with the trial.  I will double check my notes at home.

          KatyWI

          • March 16, 2011 at 5:02 pm
          KatyWI
          Participant

            I grappled with the same questions, as I was considering this trial until brain mets knocked me out.  As I recall, the research librarian at the hospital was unable to locate any studies of GM-CSF being used to treat active disease.  For this reason, I felt uncomfortable with the trial.  I will double check my notes at home.

            KatyWI

            • March 17, 2011 at 10:17 am
            FormerCaregiver
            Participant

              You may be interested in reading what people have said regarding "NED at
              Stage IV and GM-CSF (Leukine)".

              Here is the link to the topic:
              http://www.melanoma.org/community/mpip-melanoma-patients-information-page/ned-stage-iv-and-gm-csf-leukine

              Frank

              • March 17, 2011 at 10:17 am
              FormerCaregiver
              Participant

                You may be interested in reading what people have said regarding "NED at
                Stage IV and GM-CSF (Leukine)".

                Here is the link to the topic:
                http://www.melanoma.org/community/mpip-melanoma-patients-information-page/ned-stage-iv-and-gm-csf-leukine

                Frank

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