› Forums › General Melanoma Community › NYKaren how are you doing
- This topic has 9 replies, 3 voices, and was last updated 10 years, 4 months ago by
awillett1991.
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- February 1, 2013 at 2:42 am
Was just wondering how you, Zel, and prednisone are all getting along. I tried to taper from 7.5 mg to 5 mg but it didn’t go well at all, so back to 7.5 mg now. I’m so messed up still from Ipi I guess. Anyway, knew you were hurting and was just thinking of you. Hope you are feeling better.Amy
Was just wondering how you, Zel, and prednisone are all getting along. I tried to taper from 7.5 mg to 5 mg but it didn’t go well at all, so back to 7.5 mg now. I’m so messed up still from Ipi I guess. Anyway, knew you were hurting and was just thinking of you. Hope you are feeling better.
Amy
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- February 1, 2013 at 2:58 am
Hi Amy,
Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
Thank you so much for your post– it means so much to me.
So what happened when you tried to taper?
Hugs,
Karen -
- February 1, 2013 at 2:58 am
Hi Amy,
Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
Thank you so much for your post– it means so much to me.
So what happened when you tried to taper?
Hugs,
Karen-
- February 1, 2013 at 8:20 am
Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast. Al
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- February 1, 2013 at 8:20 am
Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast. Al
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- February 1, 2013 at 8:20 am
Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast. Al
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- February 1, 2013 at 4:04 pm
So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.
Keep us updated!
Amy -
- February 1, 2013 at 4:04 pm
So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.
Keep us updated!
Amy -
- February 1, 2013 at 4:04 pm
So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.
Keep us updated!
Amy
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- February 1, 2013 at 2:58 am
Hi Amy,
Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
Thank you so much for your post– it means so much to me.
So what happened when you tried to taper?
Hugs,
Karen
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