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NYKaren how are you doing
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NYKaren how are you doing

› Forums › General Melanoma Community › NYKaren how are you doing

  • Post
    • February 1, 2013 at 2:42 am
    awillett1991
    Participant
      Was just wondering how you, Zel, and prednisone are all getting along. I tried to taper from 7.5 mg to 5 mg but it didn’t go well at all, so back to 7.5 mg now. I’m so messed up still from Ipi I guess. Anyway, knew you were hurting and was just thinking of you. Hope you are feeling better.

      Amy

      Was just wondering how you, Zel, and prednisone are all getting along. I tried to taper from 7.5 mg to 5 mg but it didn’t go well at all, so back to 7.5 mg now. I’m so messed up still from Ipi I guess. Anyway, knew you were hurting and was just thinking of you. Hope you are feeling better.

      Amy

    Viewing 2 reply threads
    • Replies
        • February 1, 2013 at 2:58 am
        NYKaren
        Participant
          Hi Amy,
          Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
          My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
          We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
          Thank you so much for your post– it means so much to me.
          So what happened when you tried to taper?
          Hugs,
          Karen
          • February 1, 2013 at 2:58 am
          NYKaren
          Participant
            Hi Amy,
            Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
            My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
            We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
            Thank you so much for your post– it means so much to me.
            So what happened when you tried to taper?
            Hugs,
            Karen
              • February 1, 2013 at 8:20 am
              aldakota22
              Participant

                Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast.  Al

                • February 1, 2013 at 8:20 am
                aldakota22
                Participant

                  Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast.  Al

                  • February 1, 2013 at 8:20 am
                  aldakota22
                  Participant

                    Hi Karen, Glad to see your doc is happy with your progress on "Z".Too bad about the leg pain though.Hopefully the new plan on and off will be the right mix for you.Always kept in my prayers.Bet the Beast.  Al

                    • February 1, 2013 at 4:04 pm
                    awillett1991
                    Participant
                      So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.

                      I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.

                      Keep us updated!
                      Amy

                      • February 1, 2013 at 4:04 pm
                      awillett1991
                      Participant
                        So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.

                        I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.

                        Keep us updated!
                        Amy

                        • February 1, 2013 at 4:04 pm
                        awillett1991
                        Participant
                          So sorry to hear about your leg pain Karen, it is in the muscle? I’ve been thinking of trying acupuncture myself for various aches and pains, maybe it would help reduce my meds. Am trying 2 wks on/1 wk off for Zel, and I’ll talk to dr Tues about trying to taper Pred again. Had some N/V, dehydration I guess from the taper, but am better now. Maybe just wasn’t ready.

                          I had some wicked, awful, all over muscle pain in Dec. from combining Ipi & Zel, but sounds different from yours so I’m glad they are checking it.

                          Keep us updated!
                          Amy

                        • February 1, 2013 at 2:58 am
                        NYKaren
                        Participant
                          Hi Amy,
                          Thanks for checking. I saw onc today & he continues to be quite pleased with Zel response.
                          My leg pain is severe and nothing relieves it. Tomorrow I’m starting acupuncture. I’m back down on 5 mg of pred, doc wants me to stop it in case it’s exacerbating the pain, which he believes is muscular. I can be off over weekend.
                          We discussed on/off dosing of Zel, they suggested 3 weeks on, three off– that sounded too scary to me so we’re trying 3 on 2 off– dosage down from 8 pills/day to 6.
                          Thank you so much for your post– it means so much to me.
                          So what happened when you tried to taper?
                          Hugs,
                          Karen
                      Viewing 2 reply threads
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