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Not NED yet, but…
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Not NED yet, but…

› Forums › General Melanoma Community › Not NED yet, but…

  • Post
    • August 22, 2012 at 12:43 am
    audgator
    Participant

      …my onc was VERY pleased. I had a CT scan & MRI today a week after the end of the 2nd phase of my anti-PD1 trial at Moffitt. The MRI showed nothing in my brain just as before. We didn't get the radiologist's report before I left but my oncologist showed me the pictures on her computer. Some formerly big spots in my lungs & liver are now little spots and some formerly little spots were not visible.  So, yeah, I was very pleased too. Now on to the maintenance phase, infusion & scans every 3 months.    Dan

      …my onc was VERY pleased. I had a CT scan & MRI today a week after the end of the 2nd phase of my anti-PD1 trial at Moffitt. The MRI showed nothing in my brain just as before. We didn't get the radiologist's report before I left but my oncologist showed me the pictures on her computer. Some formerly big spots in my lungs & liver are now little spots and some formerly little spots were not visible.  So, yeah, I was very pleased too. Now on to the maintenance phase, infusion & scans every 3 months.    Dan

    Viewing 20 reply threads
    • Replies
        • August 22, 2012 at 1:50 am
        Charlie S
        Participant

          Close enough for jazz and a plenty good reason to dance.

          Charlie S

          • August 22, 2012 at 1:50 am
          Charlie S
          Participant

            Close enough for jazz and a plenty good reason to dance.

            Charlie S

            • August 22, 2012 at 1:50 am
            Charlie S
            Participant

              Close enough for jazz and a plenty good reason to dance.

              Charlie S

              • August 22, 2012 at 5:15 am
              JerryfromFauq
              Participant

                Sounds great to me ! 

                • August 22, 2012 at 5:15 am
                JerryfromFauq
                Participant

                  Sounds great to me ! 

                  • August 22, 2012 at 5:15 am
                  JerryfromFauq
                  Participant

                    Sounds great to me ! 

                    • August 22, 2012 at 2:13 pm
                    triciad
                    Participant

                      Many blessings for continued success!

                      Tricia

                      • August 22, 2012 at 2:13 pm
                      triciad
                      Participant

                        Many blessings for continued success!

                        Tricia

                        • August 22, 2012 at 2:13 pm
                        triciad
                        Participant

                          Many blessings for continued success!

                          Tricia

                          • August 22, 2012 at 5:48 pm
                          Linny
                          Participant

                            Fantastic news Dan!! Congratulations!!!

                            • August 22, 2012 at 5:48 pm
                            Linny
                            Participant

                              Fantastic news Dan!! Congratulations!!!

                                • August 22, 2012 at 6:45 pm
                                Snickers60
                                Participant

                                  WAY TO GO……………HOPE it keeps getting better and better !   :-)))

                                  • August 22, 2012 at 6:45 pm
                                  Snickers60
                                  Participant

                                    WAY TO GO……………HOPE it keeps getting better and better !   :-)))

                                    • August 22, 2012 at 6:45 pm
                                    Snickers60
                                    Participant

                                      WAY TO GO……………HOPE it keeps getting better and better !   :-)))

                                    • August 22, 2012 at 5:48 pm
                                    Linny
                                    Participant

                                      Fantastic news Dan!! Congratulations!!!

                                      • August 22, 2012 at 11:06 pm
                                      s Mom
                                      Participant

                                        YAY!!  That is GREAT news!

                                        Next update= NED!!!!!!!

                                        Bridgette (Jeff's Mom)

                                         

                                        • August 22, 2012 at 11:06 pm
                                        s Mom
                                        Participant

                                          YAY!!  That is GREAT news!

                                          Next update= NED!!!!!!!

                                          Bridgette (Jeff's Mom)

                                           

                                          • August 22, 2012 at 11:06 pm
                                          s Mom
                                          Participant

                                            YAY!!  That is GREAT news!

                                            Next update= NED!!!!!!!

                                            Bridgette (Jeff's Mom)

                                             

                                            • August 23, 2012 at 7:31 pm
                                            TSchulz
                                            Participant

                                              Great news, congratulations!  Thanks for posting.  NED is right around the corner….

                                              Best, Troy

                                              • August 23, 2012 at 7:31 pm
                                              TSchulz
                                              Participant

                                                Great news, congratulations!  Thanks for posting.  NED is right around the corner….

                                                Best, Troy

                                                • August 23, 2012 at 7:31 pm
                                                TSchulz
                                                Participant

                                                  Great news, congratulations!  Thanks for posting.  NED is right around the corner….

                                                  Best, Troy

                                                  • September 2, 2012 at 1:18 am
                                                  LynnLuc
                                                  Participant

                                                    Well Dan,

                                                    How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

                                                    • September 2, 2012 at 1:18 am
                                                    LynnLuc
                                                    Participant

                                                      Well Dan,

                                                      How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

                                                      • September 2, 2012 at 1:18 am
                                                      LynnLuc
                                                      Participant

                                                        Well Dan,

                                                        How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

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