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nivolumab and ipilimumab Skin rash
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nivolumab and ipilimumab Skin rash

› Forums › General Melanoma Community › nivolumab and ipilimumab Skin rash

  • Post
    • May 22, 2020 at 11:42 am
    Anni
    Participant
      Hi, I’m just wondering did anyone have a skin reaction from nivolumab and ipilimumab , opdivo and ketruda, my sister is experiencing raised psoriasis like rash pretty much all over, did anyone find any relief using any topical or other treatment?
      Thank you
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    • Replies
        • May 22, 2020 at 2:08 pm
        gopher38
        Participant
          I believe it is probably the most common reaction. I had some itching and rash on opdivo alone, but a much-worse, pronounced rash all over torso with the combo. I was given triamcinolone acetonide ointment to treat it, which helped. Still took several months to taper down, and I still have worse than normal itching. Occasional flare-ups which I treat with the ointment.
            • May 22, 2020 at 2:59 pm
            Anni
            Participant
              Thank you very much
            • May 22, 2020 at 2:27 pm
            KAP715
            Participant
              I got bad psoriasis on the palms of my hands on pembro alone. My onc sent me to my dermatologist and I was given clobetasol propitianate ointment to rub on my hands twice a day. It’s a pretty strong topical steroid and cleared it up within a week. I highly suggest you visit your derm and have it treated with a topical.
                • May 22, 2020 at 2:59 pm
                Anni
                Participant
                  Thank you very much, I will do that
                • May 22, 2020 at 3:18 pm
                Bubbles
                Participant
                  Sorry for the rash your sister is dealing with. They can certainly make one miserable. But, there is an possible upside – https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2018/06/icky-skin-stuff-good-in-relation-to.html

                  Best wishes for you and your sis! celeste

                    • May 22, 2020 at 5:04 pm
                    Anni
                    Participant
                      Thank you Celeste, that has brightened up a tough day for her . Best wishes to you
                    • May 23, 2020 at 4:42 am
                    MelMel
                    Participant
                      I have developed a measles like rash on my torso after the second infusion of ipi/nivo. It lasted about 3 weeks but as it was not itchy nor did it progress I did not use anything and eventually it went away on it’s own. 7 months later I have developed vitiligo which started around my neck and shoulders and spread throughout my arms and shins as well as top of my feet and hands. I have not had any rashes since however from time to time small areas of my skin may itch for a few days but it resolves on it’s own.
                      Melanie
                        • May 26, 2020 at 6:09 am
                        Anni
                        Participant
                          Thanks for your reply Melanie, I hope you’re doing well . My sister is post second infusion and the side effects have been much worse, hopefully they will ease soon.
                          • May 26, 2020 at 6:09 am
                          Anni
                          Participant
                            Thanks for your reply Melanie, I hope you’re doing well . My sister is post second infusion and the side effects have been much worse, hopefully they will ease soon.
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