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Night Sweats & ipilimumab
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Night Sweats & ipilimumab

› Forums › General Melanoma Community › Night Sweats & ipilimumab

  • Post
    • January 5, 2013 at 4:13 pm
    CLPrice31
    Participant

      Happy New Year, everyone! Stage III warrior here with a quick question. I am going through the maintence phase of the ipilimumab/placebo trial and just completed another treatment about a week ago. I've had this reaction before; however, it's a bit more intense this time and about 2 weeks early: Night sweats.

      Happy New Year, everyone! Stage III warrior here with a quick question. I am going through the maintence phase of the ipilimumab/placebo trial and just completed another treatment about a week ago. I've had this reaction before; however, it's a bit more intense this time and about 2 weeks early: Night sweats.

      I wake up completely drenched yet shivering. I finally got up this morning and took my temperature: only 99.99! I just had my scans that showed no evidence of disease, just a cyst on my ovary that I will have an ultrasound on, but everything looks "unremarkable" and "unchanged."

      Have you had this happen? According to Google, night sweats and low grade fevers are signs of the drug, but also signs of 100 other things including menopause! wink I'm only 25 so I definitely hope that's not the case!

      Any advice/suggestions you can give me are greatly appreciated. I'm getting a bit tired of having to wash the sheets daily…

    Viewing 5 reply threads
    • Replies
        • January 5, 2013 at 4:42 pm
        awillett1991
        Participant
          Yes, yes yes! I was diagnosed hyperthyroid, totally messed with my hormones. This continued until just recently when I started prednisone, now my thyroid hormones are normal and I feel much better.

          Call in and I bet they’ll run a blood test to check. You might end up with a work up by an endocrinologist.

          Love your blog!
          Amy

            • January 5, 2013 at 5:55 pm
            CLPrice31
            Participant

              Hi Amy!

              Thank you so much for your response. I will definitely give them a call! 🙂 Have a great weekend!

              • January 5, 2013 at 11:52 pm
              NYKaren
              Participant
                Hi Chelsea,
                So glad to see you here (well, you know what I mean.)
                I couldn’t agree with Amy more. For me’ ippy brought on colitis and adrenal insufficiency. I must stress, see an endo with ippy experience. At Sloan it’s Dr. Monica Girotra. I don’t know if there is more than her. Your onc might have to get you that first appt. she knew the subtle endo things that finally got me feeling better.
                All the best,
                Karen
                • January 5, 2013 at 11:52 pm
                NYKaren
                Participant
                  Hi Chelsea,
                  So glad to see you here (well, you know what I mean.)
                  I couldn’t agree with Amy more. For me’ ippy brought on colitis and adrenal insufficiency. I must stress, see an endo with ippy experience. At Sloan it’s Dr. Monica Girotra. I don’t know if there is more than her. Your onc might have to get you that first appt. she knew the subtle endo things that finally got me feeling better.
                  All the best,
                  Karen
                  • January 5, 2013 at 11:52 pm
                  NYKaren
                  Participant
                    Hi Chelsea,
                    So glad to see you here (well, you know what I mean.)
                    I couldn’t agree with Amy more. For me’ ippy brought on colitis and adrenal insufficiency. I must stress, see an endo with ippy experience. At Sloan it’s Dr. Monica Girotra. I don’t know if there is more than her. Your onc might have to get you that first appt. she knew the subtle endo things that finally got me feeling better.
                    All the best,
                    Karen
                    • January 5, 2013 at 5:55 pm
                    CLPrice31
                    Participant

                      Hi Amy!

                      Thank you so much for your response. I will definitely give them a call! 🙂 Have a great weekend!

                      • January 5, 2013 at 5:55 pm
                      CLPrice31
                      Participant

                        Hi Amy!

                        Thank you so much for your response. I will definitely give them a call! 🙂 Have a great weekend!

                      • January 5, 2013 at 4:42 pm
                      awillett1991
                      Participant
                        Yes, yes yes! I was diagnosed hyperthyroid, totally messed with my hormones. This continued until just recently when I started prednisone, now my thyroid hormones are normal and I feel much better.

                        Call in and I bet they’ll run a blood test to check. You might end up with a work up by an endocrinologist.

                        Love your blog!
                        Amy

                        • January 5, 2013 at 4:42 pm
                        awillett1991
                        Participant
                          Yes, yes yes! I was diagnosed hyperthyroid, totally messed with my hormones. This continued until just recently when I started prednisone, now my thyroid hormones are normal and I feel much better.

                          Call in and I bet they’ll run a blood test to check. You might end up with a work up by an endocrinologist.

                          Love your blog!
                          Amy

                          • January 12, 2013 at 5:27 am
                          LindyVA
                          Participant

                            Yes, my husband would wake up soaking wet, even the sheets were damp. His fever would be 99 to 101. Tylenol and cold compresses usually worked. He would shake and have bad headaches like the flu. But the tumors got smaller so it was the lessor of two evils.

                            Linda

                            • January 12, 2013 at 5:27 am
                            LindyVA
                            Participant

                              Yes, my husband would wake up soaking wet, even the sheets were damp. His fever would be 99 to 101. Tylenol and cold compresses usually worked. He would shake and have bad headaches like the flu. But the tumors got smaller so it was the lessor of two evils.

                              Linda

                              • January 12, 2013 at 5:27 am
                              LindyVA
                              Participant

                                Yes, my husband would wake up soaking wet, even the sheets were damp. His fever would be 99 to 101. Tylenol and cold compresses usually worked. He would shake and have bad headaches like the flu. But the tumors got smaller so it was the lessor of two evils.

                                Linda

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