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Nervous about scans :(

Forums General Melanoma Community Nervous about scans :(

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      My husband has been on Keytruda since mid-November, and we added low-dose Yervoy to that just three weeks ago. On Wednesday we'll find out the results of his latest PET scan, which will tell us if Keytruda is working or not.

      In most ways he seems like he's improving (a little more energy, much better mobility), but his MRI in January showed a new spot in his brain. The spot is very small and it's possible it cropped up before he started Keytruda, since they were comparing the January MRI to his last MRI in August, which did not show the new spot. But like I said, he only started Keytruda in November. But there are also other possible explanations for his improved mobility (which has seemed like the biggest clue that Keytruda is working), since he did get a steroid epidural when he started Keytruda, too. He is getting SRS for the little spot in his brain tomorrow.

      I'm really nervous. I wish I could just fast-forward to Wednesday and stop dreading it. I feel like I should be optimistic — he definitely hasn't gotten WORSE since starting Keytruda in November, and really in most ways seems better — but the improvement has been pretty slow and he is still extremely fatigued (sleeps 15-18 hours a day) and experiences nausea every day. Our life is definitely still very much in "sick person mode." I guess that could also just be the immunotherapy doing its thing, though.

      Sigh. I don't have any questions. I'm just nervous and sad. I knew you guys would understand.

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          Hi there, 

          just wanted to share that we also are having an important appointment tomorrow for my husband ( stage 4 since April 2017). I completely understand how you feel, just like you mentioned, Waiting for scan result is the most stressful situation I’ve ever been in, you know! Reading through positive and hopeful stories in this forum has been a tremendous help for both of us! ( aside from anti anxiety medicine I take) 

          anyway just wanted to tell you, you are not alone 🙂 I am sure you will come back with one of these positive and hopeful posts on Wednesday, for many others like myself to read!

          best of luck



            Totally hear you, good luck for tomorrow

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