NED for 7 Years
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

NED for 7 Years

› Forums › General Melanoma Community › NED for 7 Years

  • Post
    • June 9, 2012 at 11:52 pm
    LibbyinVA
    Participant
    Just wanted to share my story and some positive, hopeful news. On 6/6/2012 I celebrated 7 years of being NED. I was dx’ed in 2005 with stage IIIb metastatic melanoma. Treatment included several surgeries and a vaccine clinical trial in 2006 under Dr Anna Pavlick at NYU. Feeling very lucky to be alive but, missing too many friends made here on this board who were not as fortunate. I hope and pray daily for a cure for this awful disease. Never give up hope and believe in miracles…I am one!

    Wishing everyone the best!

    LibbyinVA

    Just wanted to share my story and some positive, hopeful news. On 6/6/2012 I celebrated 7 years of being NED. I was dx’ed in 2005 with stage IIIb metastatic melanoma. Treatment included several surgeries and a vaccine clinical trial in 2006 under Dr Anna Pavlick at NYU. Feeling very lucky to be alive but, missing too many friends made here on this board who were not as fortunate. I hope and pray daily for a cure for this awful disease. Never give up hope and believe in miracles…I am one!

    Wishing everyone the best!

    LibbyinVA

Viewing 23 reply threads
  • Replies
      • June 10, 2012 at 1:01 am
      Angela C
      Participant

      Congrats, Libby!! That is so great. It's always encouraging to hear of others who are NED for years. I'm so happy that you found a treatment that worked for you. It's what we all hope and pray for!

      ~Angela

      • June 10, 2012 at 1:01 am
      Angela C
      Participant

      Congrats, Libby!! That is so great. It's always encouraging to hear of others who are NED for years. I'm so happy that you found a treatment that worked for you. It's what we all hope and pray for!

      ~Angela

      • June 10, 2012 at 1:01 am
      Angela C
      Participant

      Congrats, Libby!! That is so great. It's always encouraging to hear of others who are NED for years. I'm so happy that you found a treatment that worked for you. It's what we all hope and pray for!

      ~Angela

      • June 10, 2012 at 1:07 am
      noisy77
      Participant

      Great news!

      • June 10, 2012 at 1:07 am
      noisy77
      Participant

      Great news!

      • June 10, 2012 at 1:07 am
      noisy77
      Participant

      Great news!

      • June 10, 2012 at 9:20 am
      Linny
      Participant

      What wonderful encouraging news!!! Congratulaltions!!! May you have many more NED years.

      Which vaccine trial were you on?

      • June 10, 2012 at 9:20 am
      Linny
      Participant

      What wonderful encouraging news!!! Congratulaltions!!! May you have many more NED years.

      Which vaccine trial were you on?

      • June 10, 2012 at 9:20 am
      Linny
      Participant

      What wonderful encouraging news!!! Congratulaltions!!! May you have many more NED years.

      Which vaccine trial were you on?

      • June 10, 2012 at 1:32 pm
      Gene_S
      Participant

      Libby, that is wonderful news thanks for sharing.  Here is hoping that the rest of your life is NED.  This gives hope to all the rest still fighting.

      Judy (loving wife and caregiver of Gene)

      • June 10, 2012 at 1:32 pm
      Gene_S
      Participant

      Libby, that is wonderful news thanks for sharing.  Here is hoping that the rest of your life is NED.  This gives hope to all the rest still fighting.

      Judy (loving wife and caregiver of Gene)

      • June 10, 2012 at 1:32 pm
      Gene_S
      Participant

      Libby, that is wonderful news thanks for sharing.  Here is hoping that the rest of your life is NED.  This gives hope to all the rest still fighting.

      Judy (loving wife and caregiver of Gene)

      • June 10, 2012 at 2:04 pm
      jag
      Participant

      Great news! thanks for the update!

      • June 10, 2012 at 2:04 pm
      jag
      Participant

      Great news! thanks for the update!

      • June 10, 2012 at 2:04 pm
      jag
      Participant

      Great news! thanks for the update!

      • June 10, 2012 at 4:42 pm
      yoopergirl
      Participant

      That is wondeful news and hope for us here that will be going into a clinical trial.

      • June 10, 2012 at 4:42 pm
      yoopergirl
      Participant

      That is wondeful news and hope for us here that will be going into a clinical trial.

      • June 10, 2012 at 4:42 pm
      yoopergirl
      Participant

      That is wondeful news and hope for us here that will be going into a clinical trial.

      • June 12, 2012 at 6:45 pm
      LibbyinVA
      Participant
      Thank you for all your kind words…so appreciated!

      For those who asked about the trial I participated in at NYU, here are the details:

      Doctor: Dr Anna C Pavlick
      Treatment Center: NYU Cancer Institute
      Clinical Trial(s): Comparison of Dendritic Cells Versus Montanide as Adjuvants in a Melanoma Vaccine – NYU 02-10, NCT 00124124

      For more information, please feel free to review my patient profile on this site.

      As always, keeping all of you in thought & prayer!

      • June 12, 2012 at 6:45 pm
      LibbyinVA
      Participant
      Thank you for all your kind words…so appreciated!

      For those who asked about the trial I participated in at NYU, here are the details:

      Doctor: Dr Anna C Pavlick
      Treatment Center: NYU Cancer Institute
      Clinical Trial(s): Comparison of Dendritic Cells Versus Montanide as Adjuvants in a Melanoma Vaccine – NYU 02-10, NCT 00124124

      For more information, please feel free to review my patient profile on this site.

      As always, keeping all of you in thought & prayer!

      • June 12, 2012 at 6:45 pm
      LibbyinVA
      Participant
      Thank you for all your kind words…so appreciated!

      For those who asked about the trial I participated in at NYU, here are the details:

      Doctor: Dr Anna C Pavlick
      Treatment Center: NYU Cancer Institute
      Clinical Trial(s): Comparison of Dendritic Cells Versus Montanide as Adjuvants in a Melanoma Vaccine – NYU 02-10, NCT 00124124

      For more information, please feel free to review my patient profile on this site.

      As always, keeping all of you in thought & prayer!

      • June 12, 2012 at 6:47 pm
      LibbyinVA
      Participant
      Sorry, posted reply on the wrong thread…ugh…hope you can all see it below
      • June 12, 2012 at 6:47 pm
      LibbyinVA
      Participant
      Sorry, posted reply on the wrong thread…ugh…hope you can all see it below
      • June 12, 2012 at 6:47 pm
      LibbyinVA
      Participant
      Sorry, posted reply on the wrong thread…ugh…hope you can all see it below
Viewing 23 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.