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My Warrior Wayne is “NED” after only 7 weeks on ZEL
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My Warrior Wayne is “NED” after only 7 weeks on ZEL

› Forums › General Melanoma Community › My Warrior Wayne is “NED” after only 7 weeks on ZEL

  • Post
    • June 16, 2012 at 12:08 am
    Snickers60
    Participant

      He was diagnosed March 13, 2012 with mets from a 1999 ear lobe mole, and started ZEL on April 23, 2012

      We returned home today from MDANSERSON bouncing off the walls with joy ! 

      Yesterday,  Dr. B showed us the PET and every single one of his tumors were GONE !

      He said he ALMOST NEVER saw Liver mets go, but Wayne's were, which put him in the 4% of folks who responded this well on ZEL.

      2 liver

      4 lung

      1  L-5

      1  Distal Leg bone

      ALLLLLLLLLLLLLLLLL GONE !!!!!!!!    

      He was diagnosed March 13, 2012 with mets from a 1999 ear lobe mole, and started ZEL on April 23, 2012

      We returned home today from MDANSERSON bouncing off the walls with joy ! 

      Yesterday,  Dr. B showed us the PET and every single one of his tumors were GONE !

      He said he ALMOST NEVER saw Liver mets go, but Wayne's were, which put him in the 4% of folks who responded this well on ZEL.

      2 liver

      4 lung

      1  L-5

      1  Distal Leg bone

      ALLLLLLLLLLLLLLLLL GONE !!!!!!!!    

      I hope this will encourage someone !    I pray it last.   He will continue on full dosage of ZEL for now and they will do all the SCANS

      again in 8 weeks.   We are so encouraged – we're JUST PLUM OUT OF OUR MINDS !   LOL LOL

      MAY YOU BE ENCOURAGED !!!!!!!!!!!!  :-))))))))))

    Viewing 20 reply threads
    • Replies
        • June 16, 2012 at 12:39 am
        hope4cure1
        Participant

          That is very happy news!!!  Perfect weekend to celebrate!

          Hope

          • June 16, 2012 at 12:39 am
          hope4cure1
          Participant

            That is very happy news!!!  Perfect weekend to celebrate!

            Hope

            • June 16, 2012 at 12:39 am
            hope4cure1
            Participant

              That is very happy news!!!  Perfect weekend to celebrate!

              Hope

              • June 16, 2012 at 1:13 am
              lhaley
              Participant

                Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

                Linda

                • June 16, 2012 at 1:13 am
                lhaley
                Participant

                  Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

                  Linda

                  • June 16, 2012 at 1:13 am
                  lhaley
                  Participant

                    Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

                    Linda

                    • June 16, 2012 at 2:55 am
                    Linny
                    Participant

                      This is wonderful news!!!!!! Now go out and celebrate, you two!

                      • June 16, 2012 at 2:55 am
                      Linny
                      Participant

                        This is wonderful news!!!!!! Now go out and celebrate, you two!

                        • June 16, 2012 at 2:55 am
                        Linny
                        Participant

                          This is wonderful news!!!!!! Now go out and celebrate, you two!

                          • June 16, 2012 at 3:05 am
                          MeNDave
                          Participant

                            Good news = Happy Dance!  Congrats!

                              • June 17, 2012 at 4:30 am
                              Erinmay22
                              Participant

                                So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

                                Thoughts and prayers your way!

                                Erin

                                • June 17, 2012 at 4:30 am
                                Erinmay22
                                Participant

                                  So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

                                  Thoughts and prayers your way!

                                  Erin

                                  • June 17, 2012 at 4:30 am
                                  Erinmay22
                                  Participant

                                    So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

                                    Thoughts and prayers your way!

                                    Erin

                                  • June 16, 2012 at 3:05 am
                                  MeNDave
                                  Participant

                                    Good news = Happy Dance!  Congrats!

                                    • June 16, 2012 at 3:05 am
                                    MeNDave
                                    Participant

                                      Good news = Happy Dance!  Congrats!

                                      • June 17, 2012 at 12:37 pm
                                      aldakota22
                                      Participant

                                        Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

                                        • June 17, 2012 at 12:37 pm
                                        aldakota22
                                        Participant

                                          Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

                                          • June 17, 2012 at 12:37 pm
                                          aldakota22
                                          Participant

                                            Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

                                            • June 17, 2012 at 10:24 pm
                                            Eileen L
                                            Participant

                                              Congratulations! Hope you are having a wonderful, celebratory weekend.

                                              Eileen L

                                              • June 17, 2012 at 10:24 pm
                                              Eileen L
                                              Participant

                                                Congratulations! Hope you are having a wonderful, celebratory weekend.

                                                Eileen L

                                                • June 17, 2012 at 10:24 pm
                                                Eileen L
                                                Participant

                                                  Congratulations! Hope you are having a wonderful, celebratory weekend.

                                                  Eileen L

                                                  • June 19, 2012 at 12:05 am
                                                  pfloyd
                                                  Participant

                                                    That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

                                                    … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

                                                     

                                                     

                                                    Michael

                                                    • June 19, 2012 at 12:05 am
                                                    pfloyd
                                                    Participant

                                                      That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

                                                      … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

                                                       

                                                       

                                                      Michael

                                                      • June 19, 2012 at 12:05 am
                                                      pfloyd
                                                      Participant

                                                        That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

                                                        … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

                                                         

                                                         

                                                        Michael

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