My Warrior Wayne is “NED” after only 7 weeks on ZEL
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My Warrior Wayne is “NED” after only 7 weeks on ZEL

› Forums › General Melanoma Community › My Warrior Wayne is “NED” after only 7 weeks on ZEL

  • Post
    • June 16, 2012 at 12:08 am
    Snickers60
    Participant

    He was diagnosed March 13, 2012 with mets from a 1999 ear lobe mole, and started ZEL on April 23, 2012

    We returned home today from MDANSERSON bouncing off the walls with joy ! 

    Yesterday,  Dr. B showed us the PET and every single one of his tumors were GONE !

    He said he ALMOST NEVER saw Liver mets go, but Wayne's were, which put him in the 4% of folks who responded this well on ZEL.

    2 liver

    4 lung

    1  L-5

    1  Distal Leg bone

    ALLLLLLLLLLLLLLLLL GONE !!!!!!!!    

    He was diagnosed March 13, 2012 with mets from a 1999 ear lobe mole, and started ZEL on April 23, 2012

    We returned home today from MDANSERSON bouncing off the walls with joy ! 

    Yesterday,  Dr. B showed us the PET and every single one of his tumors were GONE !

    He said he ALMOST NEVER saw Liver mets go, but Wayne's were, which put him in the 4% of folks who responded this well on ZEL.

    2 liver

    4 lung

    1  L-5

    1  Distal Leg bone

    ALLLLLLLLLLLLLLLLL GONE !!!!!!!!    

    I hope this will encourage someone !    I pray it last.   He will continue on full dosage of ZEL for now and they will do all the SCANS

    again in 8 weeks.   We are so encouraged – we're JUST PLUM OUT OF OUR MINDS !   LOL LOL

    MAY YOU BE ENCOURAGED !!!!!!!!!!!!  :-))))))))))

Viewing 20 reply threads
  • Replies
      • June 16, 2012 at 12:39 am
      hope4cure1
      Participant

      That is very happy news!!!  Perfect weekend to celebrate!

      Hope

      • June 16, 2012 at 12:39 am
      hope4cure1
      Participant

      That is very happy news!!!  Perfect weekend to celebrate!

      Hope

      • June 16, 2012 at 12:39 am
      hope4cure1
      Participant

      That is very happy news!!!  Perfect weekend to celebrate!

      Hope

      • June 16, 2012 at 1:13 am
      lhaley
      Participant

      Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

      Linda

      • June 16, 2012 at 1:13 am
      lhaley
      Participant

      Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

      Linda

      • June 16, 2012 at 1:13 am
      lhaley
      Participant

      Wonderful news!  This was worth the side effects he had at first.  So happy for both of you!

      Linda

      • June 16, 2012 at 2:55 am
      Linny
      Participant

      This is wonderful news!!!!!! Now go out and celebrate, you two!

      • June 16, 2012 at 2:55 am
      Linny
      Participant

      This is wonderful news!!!!!! Now go out and celebrate, you two!

      • June 16, 2012 at 2:55 am
      Linny
      Participant

      This is wonderful news!!!!!! Now go out and celebrate, you two!

      • June 16, 2012 at 3:05 am
      MeNDave
      Participant

      Good news = Happy Dance!  Congrats!

      • June 16, 2012 at 3:05 am
      MeNDave
      Participant

      Good news = Happy Dance!  Congrats!

      • June 16, 2012 at 3:05 am
      MeNDave
      Participant

      Good news = Happy Dance!  Congrats!

        • June 17, 2012 at 4:30 am
        Erinmay22
        Participant

        So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

        Thoughts and prayers your way!

        Erin

        • June 17, 2012 at 4:30 am
        Erinmay22
        Participant

        So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

        Thoughts and prayers your way!

        Erin

        • June 17, 2012 at 4:30 am
        Erinmay22
        Participant

        So glad to hear!!!  Hoping Zelboraf helps me too!  Will scan in about 4 weeks.  Just took a week off due to bad rash…  back on at reduced dose.

        Thoughts and prayers your way!

        Erin

      • June 17, 2012 at 12:37 pm
      aldakota22
      Participant

      Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

      • June 17, 2012 at 12:37 pm
      aldakota22
      Participant

      Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

      • June 17, 2012 at 12:37 pm
      aldakota22
      Participant

      Great news.What a Happy Fathers Day for you and family.Pray "Z" keeps you NED  for life.Want the same for all the other fathers and battlers on site.  Al

      • June 17, 2012 at 10:24 pm
      Eileen L
      Participant

      Congratulations! Hope you are having a wonderful, celebratory weekend.

      Eileen L

      • June 17, 2012 at 10:24 pm
      Eileen L
      Participant

      Congratulations! Hope you are having a wonderful, celebratory weekend.

      Eileen L

      • June 17, 2012 at 10:24 pm
      Eileen L
      Participant

      Congratulations! Hope you are having a wonderful, celebratory weekend.

      Eileen L

      • June 19, 2012 at 12:05 am
      pfloyd
      Participant

      That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

      … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

       

       

      Michael

      • June 19, 2012 at 12:05 am
      pfloyd
      Participant

      That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

      … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

       

       

      Michael

      • June 19, 2012 at 12:05 am
      pfloyd
      Participant

      That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

      … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

       

       

      Michael

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