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Mouth sores from Keytruda
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Mouth sores from Keytruda

› Forums › General Melanoma Community › Mouth sores from Keytruda

  • Post
    • April 14, 2016 at 10:19 pm
    Jahendry12
    Participant

      Has anyone else experienced sores in their mouth & throat from keytruda?  If so, any ideas on how to get some relief?

      thanks

      Julie

    Viewing 11 reply threads
    • Replies
        • April 14, 2016 at 10:41 pm
        Coneflowers
        Participant

          Call your doctor, there is some magic mouthwash that is supposed to help. Not sure what to do about your throat 🙁 Maybe try some tea and honey.

          Hope you feel better soon!

          Amanda

          • April 14, 2016 at 10:41 pm
          Coneflowers
          Participant

            Call your doctor, there is some magic mouthwash that is supposed to help. Not sure what to do about your throat 🙁 Maybe try some tea and honey.

            Hope you feel better soon!

            Amanda

            • April 14, 2016 at 10:41 pm
            Coneflowers
            Participant

              Call your doctor, there is some magic mouthwash that is supposed to help. Not sure what to do about your throat 🙁 Maybe try some tea and honey.

              Hope you feel better soon!

              Amanda

              • April 14, 2016 at 11:43 pm
              keepthefaith11
              Participant
                Magic mouthwash is amazing. I do not think it is available as a brand anymore but your Pharmacy can mix it up. My son had bad mouth sores with a viral infection and it helped tremendously.
                • April 14, 2016 at 11:43 pm
                keepthefaith11
                Participant
                  Magic mouthwash is amazing. I do not think it is available as a brand anymore but your Pharmacy can mix it up. My son had bad mouth sores with a viral infection and it helped tremendously.
                  • April 14, 2016 at 11:43 pm
                  keepthefaith11
                  Participant
                    Magic mouthwash is amazing. I do not think it is available as a brand anymore but your Pharmacy can mix it up. My son had bad mouth sores with a viral infection and it helped tremendously.
                    • April 15, 2016 at 12:41 am
                    Charlie S
                    Participant

                      The "magic mouthwash" others are referring to is basically lidocaine, but compounded by a pharmacist.

                       

                      Here is the recipe from Mayo Clinic

                      http://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071

                       

                      It really does work pretty well for thrush (mouth and throat sores)

                       

                      Cheers,

                      Charlie S

                      • April 15, 2016 at 12:41 am
                      Charlie S
                      Participant

                        The "magic mouthwash" others are referring to is basically lidocaine, but compounded by a pharmacist.

                         

                        Here is the recipe from Mayo Clinic

                        http://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071

                         

                        It really does work pretty well for thrush (mouth and throat sores)

                         

                        Cheers,

                        Charlie S

                        • April 15, 2016 at 12:41 am
                        Charlie S
                        Participant

                          The "magic mouthwash" others are referring to is basically lidocaine, but compounded by a pharmacist.

                           

                          Here is the recipe from Mayo Clinic

                          http://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071

                           

                          It really does work pretty well for thrush (mouth and throat sores)

                           

                          Cheers,

                          Charlie S

                          • April 15, 2016 at 12:04 pm
                          Bubbles
                          Participant

                            Hi Julie,

                            Sorry you are dealing with this. I developed actual mouth ulcers while on my nivo trial (and still have occasional flares…though they are not as bad as they used to be) while my other ratties only had dry mouth and milder mucositis. However, since then many folks have reached out for help regarding their ulcers while on both anti-PD1 products (nivo/opdivo and pembro/keytruda). Here's what I posted earlier:

                             http://www.melanoma.org/comment/90927#comment-90927

                            So…nystatin, lidocaine lolly pops (which happened to give me heart palpitations!) as well as warm saline gargles…magic mouthwash (you can make your own with a one to one ratio of liquid benadryl and maalox….swish and spit about 10ml…or if your're ready to go to bed…swallow!….or from a pharmacy it is the same mixture but with lido added as well) were all things I tried…and they provided varying degrees of temporary comfort. It wasn't until I was treated with valcyclovir and peridex from my dentist that I got a bit better….though as I mentioned…I still have flares all these years later.

                            But, first thing first would to be to call your onc and see what they think. Hope I've helped a bit and wish you well!  Celeste

                             

                             

                            • April 15, 2016 at 12:04 pm
                            Bubbles
                            Participant

                              Hi Julie,

                              Sorry you are dealing with this. I developed actual mouth ulcers while on my nivo trial (and still have occasional flares…though they are not as bad as they used to be) while my other ratties only had dry mouth and milder mucositis. However, since then many folks have reached out for help regarding their ulcers while on both anti-PD1 products (nivo/opdivo and pembro/keytruda). Here's what I posted earlier:

                               http://www.melanoma.org/comment/90927#comment-90927

                              So…nystatin, lidocaine lolly pops (which happened to give me heart palpitations!) as well as warm saline gargles…magic mouthwash (you can make your own with a one to one ratio of liquid benadryl and maalox….swish and spit about 10ml…or if your're ready to go to bed…swallow!….or from a pharmacy it is the same mixture but with lido added as well) were all things I tried…and they provided varying degrees of temporary comfort. It wasn't until I was treated with valcyclovir and peridex from my dentist that I got a bit better….though as I mentioned…I still have flares all these years later.

                              But, first thing first would to be to call your onc and see what they think. Hope I've helped a bit and wish you well!  Celeste

                               

                               

                              • April 15, 2016 at 12:04 pm
                              Bubbles
                              Participant

                                Hi Julie,

                                Sorry you are dealing with this. I developed actual mouth ulcers while on my nivo trial (and still have occasional flares…though they are not as bad as they used to be) while my other ratties only had dry mouth and milder mucositis. However, since then many folks have reached out for help regarding their ulcers while on both anti-PD1 products (nivo/opdivo and pembro/keytruda). Here's what I posted earlier:

                                 http://www.melanoma.org/comment/90927#comment-90927

                                So…nystatin, lidocaine lolly pops (which happened to give me heart palpitations!) as well as warm saline gargles…magic mouthwash (you can make your own with a one to one ratio of liquid benadryl and maalox….swish and spit about 10ml…or if your're ready to go to bed…swallow!….or from a pharmacy it is the same mixture but with lido added as well) were all things I tried…and they provided varying degrees of temporary comfort. It wasn't until I was treated with valcyclovir and peridex from my dentist that I got a bit better….though as I mentioned…I still have flares all these years later.

                                But, first thing first would to be to call your onc and see what they think. Hope I've helped a bit and wish you well!  Celeste

                                 

                                 

                            Viewing 11 reply threads
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