MRF-Logo2019-Horizontal-RGB
Mk3475 12 wk update
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Mk3475 12 wk update

› Forums › General Melanoma Community › Mk3475 12 wk update

  • Post
    • July 30, 2013 at 9:26 pm
    awillett1991
    Participant
      Scans show no new signs of Mel and cardiac tumor is shrinking just enough to stay on the trial. I will rescan and they will reevaluate in 6 weeks. The worst side effect is fatigue. I also have chills in the evenings and sweats at night. I’m having trouble w my protein, my ALP, and hemoglobin keeps dropping below 9. Otherwise, much easier than other therapies I’ve tried. I am thankful to God for every day.

      Amy

      Scans show no new signs of Mel and cardiac tumor is shrinking just enough to stay on the trial. I will rescan and they will reevaluate in 6 weeks. The worst side effect is fatigue. I also have chills in the evenings and sweats at night. I’m having trouble w my protein, my ALP, and hemoglobin keeps dropping below 9. Otherwise, much easier than other therapies I’ve tried. I am thankful to God for every day.

      Amy

    Viewing 18 reply threads
    • Replies
        • July 30, 2013 at 10:24 pm
        Tim–MRF
        Guest

          Great news!  I was just thinking of you a couple of days ago and am happy to hear this update.

           

          Tim–MRF

          • July 30, 2013 at 10:24 pm
          Tim–MRF
          Guest

            Great news!  I was just thinking of you a couple of days ago and am happy to hear this update.

             

            Tim–MRF

            • July 30, 2013 at 10:24 pm
            Tim–MRF
            Guest

              Great news!  I was just thinking of you a couple of days ago and am happy to hear this update.

               

              Tim–MRF

              • July 30, 2013 at 10:31 pm
              Everymoment
              Participant

                This is great news:-) 

                • July 30, 2013 at 10:31 pm
                Everymoment
                Participant

                  This is great news:-) 

                  • July 30, 2013 at 10:31 pm
                  Everymoment
                  Participant

                    This is great news:-) 

                    • July 31, 2013 at 12:27 am
                    Jaryllane
                    Participant

                      Hi Amy:

                      So glad to hear that your cardiac tumor is shrinking.  From what little I have heard it can take a while for this drug to work.  I had my second infusion last week and this time no shortness of breath or serious fatigue afterwards.  This is my first therapy for metastatic melanoma so I'm always encouraged when I hear positive reports from other patients.

                      • July 31, 2013 at 12:27 am
                      Jaryllane
                      Participant

                        Hi Amy:

                        So glad to hear that your cardiac tumor is shrinking.  From what little I have heard it can take a while for this drug to work.  I had my second infusion last week and this time no shortness of breath or serious fatigue afterwards.  This is my first therapy for metastatic melanoma so I'm always encouraged when I hear positive reports from other patients.

                        • July 31, 2013 at 12:27 am
                        Jaryllane
                        Participant

                          Hi Amy:

                          So glad to hear that your cardiac tumor is shrinking.  From what little I have heard it can take a while for this drug to work.  I had my second infusion last week and this time no shortness of breath or serious fatigue afterwards.  This is my first therapy for metastatic melanoma so I'm always encouraged when I hear positive reports from other patients.

                          • July 31, 2013 at 10:29 am
                          Brendan
                          Participant

                            Hi Amy,

                            Glad to hear the cardiac tumor is shrinking.  Great news!  Good luck.

                            Brendan

                            • July 31, 2013 at 10:29 am
                            Brendan
                            Participant

                              Hi Amy,

                              Glad to hear the cardiac tumor is shrinking.  Great news!  Good luck.

                              Brendan

                              • July 31, 2013 at 10:29 am
                              Brendan
                              Participant

                                Hi Amy,

                                Glad to hear the cardiac tumor is shrinking.  Great news!  Good luck.

                                Brendan

                                • July 31, 2013 at 3:31 pm
                                NYKaren
                                Participant

                                  Hi Amy,

                                  So glad it's shrinking. 

                                  Be well,

                                  Karen

                                  • August 1, 2013 at 2:14 am
                                  JerryfromFauq
                                  Participant

                                    Love hearing this, Amy.

                                    • August 1, 2013 at 2:14 am
                                    JerryfromFauq
                                    Participant

                                      Love hearing this, Amy.

                                      • August 1, 2013 at 2:14 am
                                      JerryfromFauq
                                      Participant

                                        Love hearing this, Amy.

                                        • August 1, 2013 at 2:03 pm
                                        awillett1991
                                        Participant
                                          Thanks y’all!
                                          • August 1, 2013 at 2:03 pm
                                          awillett1991
                                          Participant
                                            Thanks y’all!
                                            • August 1, 2013 at 2:03 pm
                                            awillett1991
                                            Participant
                                              Thanks y’all!
                                              • July 31, 2013 at 3:31 pm
                                              NYKaren
                                              Participant

                                                Hi Amy,

                                                So glad it's shrinking. 

                                                Be well,

                                                Karen

                                                • July 31, 2013 at 3:31 pm
                                                NYKaren
                                                Participant

                                                  Hi Amy,

                                                  So glad it's shrinking. 

                                                  Be well,

                                                  Karen

                                              Viewing 18 reply threads
                                              • You must be logged in to reply to this topic.
                                              About the MRF Patient Forum

                                              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                              Popular Topics