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Lung Biopsy Results

Forums General Melanoma Community Lung Biopsy Results

  • Post
    JoshF
    Participant

      I got the call from surgical oncologist on lung nodule today. It was positive for melanoma.He is postponing surgery indefinitely and called medical oncologist. So, I have an appointment with medical oncologist this afternoon. Not sure what this fight is going to look like but whatever it is I'm ready. What are my options? Not sure if lung met is braf positive or negative yet….though reoccurrence on cheek was negative. Advice on any questions I should ask…..as you know my brain is scrambled.

       

      Josh

    Viewing 26 reply threads
    • Replies
        washoegal
        Participant

          Josh, can't give you much advice as I have been lucky enough to hang in there at stage 3 but just wanted to let you know I am wishing you well and gending you good vibs and prayers.

          Mary.

          washoegal
          Participant

            Josh, can't give you much advice as I have been lucky enough to hang in there at stage 3 but just wanted to let you know I am wishing you well and gending you good vibs and prayers.

            Mary.

            washoegal
            Participant

              Josh, can't give you much advice as I have been lucky enough to hang in there at stage 3 but just wanted to let you know I am wishing you well and gending you good vibs and prayers.

              Mary.

              aldakota22
              Participant

                So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast.   Al

                aldakota22
                Participant

                  So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast.   Al

                  aldakota22
                  Participant

                    So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast.   Al

                    casagrayson
                    Participant

                      I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                      I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                      Susan

                        JoshF
                        Participant

                          I am seeing melanoma specialist. And definitely looking for advice. I'm going to start ipi followed by HD-IL2. Wonder if anyone else has been through this? I'm overwhelmed.

                          Josh

                          JoshF
                          Participant

                            I am seeing melanoma specialist. And definitely looking for advice. I'm going to start ipi followed by HD-IL2. Wonder if anyone else has been through this? I'm overwhelmed.

                            Josh

                            Gene_S
                            Participant

                              Hi Josh,

                              Sorry for the bad news about lung mets.

                              My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now.  You can read more in his profile if you want more information.

                              I am hoping it will work for you.

                              Judy (loving wife of Gene Stage IV and now NED)

                              Gene_S
                              Participant

                                Hi Josh,

                                Sorry for the bad news about lung mets.

                                My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now.  You can read more in his profile if you want more information.

                                I am hoping it will work for you.

                                Judy (loving wife of Gene Stage IV and now NED)

                                Gene_S
                                Participant

                                  Hi Josh,

                                  Sorry for the bad news about lung mets.

                                  My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now.  You can read more in his profile if you want more information.

                                  I am hoping it will work for you.

                                  Judy (loving wife of Gene Stage IV and now NED)

                                  DeniseK
                                  Participant

                                    Hey Josh,

                                    Well that sux! I was really hoping it was a false positive.  I think your choice of Ipi first and HD-IL2 is a GREAT choice.  I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor.  He's had great success with it and I've also heard of others that it has worked for.  I want this treatment but my Dr. said it's not an option for someone with brain mets.  I guess it causes edema and swelling in your brain and with brain mets it's not good.  I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.

                                    I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort.  Plus you look like a young and healthy young man so it should be a piece of cake.  I have a feeling you will be NED shortly and remain that way for a very long time.  

                                    All my best to you Josh

                                    Denise

                                    DeniseK
                                    Participant

                                      Hey Josh,

                                      Well that sux! I was really hoping it was a false positive.  I think your choice of Ipi first and HD-IL2 is a GREAT choice.  I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor.  He's had great success with it and I've also heard of others that it has worked for.  I want this treatment but my Dr. said it's not an option for someone with brain mets.  I guess it causes edema and swelling in your brain and with brain mets it's not good.  I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.

                                      I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort.  Plus you look like a young and healthy young man so it should be a piece of cake.  I have a feeling you will be NED shortly and remain that way for a very long time.  

                                      All my best to you Josh

                                      Denise

                                      DeniseK
                                      Participant

                                        Hey Josh,

                                        Well that sux! I was really hoping it was a false positive.  I think your choice of Ipi first and HD-IL2 is a GREAT choice.  I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor.  He's had great success with it and I've also heard of others that it has worked for.  I want this treatment but my Dr. said it's not an option for someone with brain mets.  I guess it causes edema and swelling in your brain and with brain mets it's not good.  I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.

                                        I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort.  Plus you look like a young and healthy young man so it should be a piece of cake.  I have a feeling you will be NED shortly and remain that way for a very long time.  

                                        All my best to you Josh

                                        Denise

                                        JoshF
                                        Participant

                                          I am seeing melanoma specialist. And definitely looking for advice. I'm going to start ipi followed by HD-IL2. Wonder if anyone else has been through this? I'm overwhelmed.

                                          Josh

                                        casagrayson
                                        Participant

                                          I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                                          I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                                          Susan

                                          casagrayson
                                          Participant

                                            I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                                            I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                                            Susan

                                            casagrayson
                                            Participant

                                              I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                                              I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                                              Susan

                                              casagrayson
                                              Participant

                                                I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                                                I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                                                Susan

                                                casagrayson
                                                Participant

                                                  I'm sorry, Josh.  I know that is not what you wanted to hear.  Now it's time to beat this monster!!  You are seeing a melanoma specialist, right?  

                                                  I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.

                                                  Susan

                                                  MattF
                                                  Participant

                                                    I'm so sorry man. Fight!

                                                    MattF
                                                    Participant

                                                      I'm so sorry man. Fight!

                                                        gostan
                                                        Participant
                                                          Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best.
                                                          JoshF
                                                          Participant

                                                            I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.

                                                            JoshF
                                                            Participant

                                                              I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.

                                                              sbrooks90
                                                              Participant

                                                                Thinkin about ya brotha! Keep up the fight

                                                                 

                                                                Samuel

                                                                sbrooks90
                                                                Participant

                                                                  Thinkin about ya brotha! Keep up the fight

                                                                   

                                                                  Samuel

                                                                  sbrooks90
                                                                  Participant

                                                                    Thinkin about ya brotha! Keep up the fight

                                                                     

                                                                    Samuel

                                                                    JoshF
                                                                    Participant

                                                                      I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.

                                                                      gostan
                                                                      Participant
                                                                        Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best.
                                                                        gostan
                                                                        Participant
                                                                          Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best.
                                                                        MattF
                                                                        Participant

                                                                          I'm so sorry man. Fight!

                                                                          Rebecca and Bob
                                                                          Participant

                                                                            HI Josh,

                                                                            Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies.  We will be praying that the choice you make is the one that works.

                                                                            Rebecca

                                                                            Rebecca and Bob
                                                                            Participant

                                                                              HI Josh,

                                                                              Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies.  We will be praying that the choice you make is the one that works.

                                                                              Rebecca

                                                                              Rebecca and Bob
                                                                              Participant

                                                                                HI Josh,

                                                                                Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies.  We will be praying that the choice you make is the one that works.

                                                                                Rebecca

                                                                                Tina D
                                                                                Participant

                                                                                  Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!

                                                                                  Wish you had gotten better news, but glad you have very good treatments available to you.

                                                                                  Tina

                                                                                  Tina D
                                                                                  Participant

                                                                                    Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!

                                                                                    Wish you had gotten better news, but glad you have very good treatments available to you.

                                                                                    Tina

                                                                                    Tina D
                                                                                    Participant

                                                                                      Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!

                                                                                      Wish you had gotten better news, but glad you have very good treatments available to you.

                                                                                      Tina

                                                                                      Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister.
                                                                                      Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister.
                                                                                      Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister.
                                                                                      Jahendry12
                                                                                      Participant

                                                                                        Hi Josh – just reading your recent update and was wondering how you are doing?  I know how devistating this news can be as we received the same news in March 2013.  My husband had 1 nodule removed from his lung in March and is currently doing well.  Did they discuss surgery to remove the nodule?  We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes.  Again, our mel specialist wanted to go in and see what was going on before deciding on treatment.  The nodes were too small, so our Thoracic surgeon took them out.  Surgery was on Dec 2 and all came back non malignant. 

                                                                                        I believe we are in the same area and are currently being treated at Rush Med Center.  Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.

                                                                                        You're in my thoughts.

                                                                                         

                                                                                        Jahendry12
                                                                                        Participant

                                                                                          Hi Josh – just reading your recent update and was wondering how you are doing?  I know how devistating this news can be as we received the same news in March 2013.  My husband had 1 nodule removed from his lung in March and is currently doing well.  Did they discuss surgery to remove the nodule?  We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes.  Again, our mel specialist wanted to go in and see what was going on before deciding on treatment.  The nodes were too small, so our Thoracic surgeon took them out.  Surgery was on Dec 2 and all came back non malignant. 

                                                                                          I believe we are in the same area and are currently being treated at Rush Med Center.  Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.

                                                                                          You're in my thoughts.

                                                                                           

                                                                                          Jahendry12
                                                                                          Participant

                                                                                            Hi Josh – just reading your recent update and was wondering how you are doing?  I know how devistating this news can be as we received the same news in March 2013.  My husband had 1 nodule removed from his lung in March and is currently doing well.  Did they discuss surgery to remove the nodule?  We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes.  Again, our mel specialist wanted to go in and see what was going on before deciding on treatment.  The nodes were too small, so our Thoracic surgeon took them out.  Surgery was on Dec 2 and all came back non malignant. 

                                                                                            I believe we are in the same area and are currently being treated at Rush Med Center.  Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.

                                                                                            You're in my thoughts.

                                                                                             

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