› Forums › General Melanoma Community › Lung Biopsy Results
- This topic has 45 replies, 13 voices, and was last updated 10 years, 2 months ago by Jahendry12.
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- October 4, 2013 at 6:49 pm
I got the call from surgical oncologist on lung nodule today. It was positive for melanoma.He is postponing surgery indefinitely and called medical oncologist. So, I have an appointment with medical oncologist this afternoon. Not sure what this fight is going to look like but whatever it is I'm ready. What are my options? Not sure if lung met is braf positive or negative yet….though reoccurrence on cheek was negative. Advice on any questions I should ask…..as you know my brain is scrambled.
Josh
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- October 4, 2013 at 10:57 pm
So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast. Al
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- October 4, 2013 at 10:57 pm
So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast. Al
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- October 4, 2013 at 10:57 pm
So sorry to hear the bad news.Keep that PMA and you will win this fight.Going to be a rough road but there are options now and more comming.Hang tough.In my prayers. Beat the Beast. Al
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- October 4, 2013 at 11:39 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
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- October 5, 2013 at 1:17 pm
Hi Josh,
Sorry for the bad news about lung mets.
My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now. You can read more in his profile if you want more information.
I am hoping it will work for you.
Judy (loving wife of Gene Stage IV and now NED)
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- October 5, 2013 at 1:17 pm
Hi Josh,
Sorry for the bad news about lung mets.
My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now. You can read more in his profile if you want more information.
I am hoping it will work for you.
Judy (loving wife of Gene Stage IV and now NED)
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- October 5, 2013 at 1:17 pm
Hi Josh,
Sorry for the bad news about lung mets.
My husband took Ipi (10mg/kg) and GM-CSF Clinical Trial for his lung, liver, unresectable tumor and skin mets and he has been NED for 1 year now. You can read more in his profile if you want more information.
I am hoping it will work for you.
Judy (loving wife of Gene Stage IV and now NED)
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- October 7, 2013 at 11:38 pm
Hey Josh,
Well that sux! I was really hoping it was a false positive. I think your choice of Ipi first and HD-IL2 is a GREAT choice. I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor. He's had great success with it and I've also heard of others that it has worked for. I want this treatment but my Dr. said it's not an option for someone with brain mets. I guess it causes edema and swelling in your brain and with brain mets it's not good. I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.
I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort. Plus you look like a young and healthy young man so it should be a piece of cake. I have a feeling you will be NED shortly and remain that way for a very long time.
All my best to you Josh
Denise
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- October 7, 2013 at 11:38 pm
Hey Josh,
Well that sux! I was really hoping it was a false positive. I think your choice of Ipi first and HD-IL2 is a GREAT choice. I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor. He's had great success with it and I've also heard of others that it has worked for. I want this treatment but my Dr. said it's not an option for someone with brain mets. I guess it causes edema and swelling in your brain and with brain mets it's not good. I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.
I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort. Plus you look like a young and healthy young man so it should be a piece of cake. I have a feeling you will be NED shortly and remain that way for a very long time.
All my best to you Josh
Denise
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- October 7, 2013 at 11:38 pm
Hey Josh,
Well that sux! I was really hoping it was a false positive. I think your choice of Ipi first and HD-IL2 is a GREAT choice. I met a man in San Francisco that has been NED for 5 years after IL2 administered by my specialist Dr. Minor. He's had great success with it and I've also heard of others that it has worked for. I want this treatment but my Dr. said it's not an option for someone with brain mets. I guess it causes edema and swelling in your brain and with brain mets it's not good. I did finish 4 rounds of Ipi though and although I don't think it has kicked in yet, I guess it can take 3-5 months on average, I feel like it will kick in shortly.
I'm sure you have been warned that HD IL2 is a very rough treatment but the rewards far exceed the discomfort. Plus you look like a young and healthy young man so it should be a piece of cake. I have a feeling you will be NED shortly and remain that way for a very long time.
All my best to you Josh
Denise
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- October 4, 2013 at 11:39 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
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- October 4, 2013 at 11:39 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
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- October 4, 2013 at 11:47 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
-
- October 4, 2013 at 11:47 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
-
- October 4, 2013 at 11:47 pm
I'm sorry, Josh. I know that is not what you wanted to hear. Now it's time to beat this monster!! You are seeing a melanoma specialist, right?
I'm sure there will be others who will provide you with many options and good advice … I just wanted to lend my support.
Susan
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- October 5, 2013 at 10:59 am
Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best. -
- October 6, 2013 at 11:31 pm
I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.
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- October 6, 2013 at 11:31 pm
I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.
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- October 6, 2013 at 11:31 pm
I have ong nodule in mid-lobe. Thought now is that it spread through blood but doc said melanoma does what it wants. 5 years NED then this? I was told at last appt. that my recurrence was so low….I'm sorry about your bad news…I pray we can beat this.
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- October 5, 2013 at 10:59 am
Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best. -
- October 5, 2013 at 10:59 am
Josh, this is always hard news to digest. I was really taken aback after receiving similR news 6 months ago after 5 years NED. Do you have one nodule or multiple nodules and what is the size of largest? There are many of us going thru similar experiences. So, we are there with you wishing for the best.
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- October 5, 2013 at 9:13 pm
HI Josh,
Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies. We will be praying that the choice you make is the one that works.
Rebecca
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- October 5, 2013 at 9:13 pm
HI Josh,
Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies. We will be praying that the choice you make is the one that works.
Rebecca
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- October 5, 2013 at 9:13 pm
HI Josh,
Sorry you got this news. It might be hard but if you have a medical team you trust and you stay on this you can beat it. It is hard to focus with this new information but try and get a good plan from your team on how to deal with it. There a lot of people posting lately, stage IV having sucess with new therapies. We will be praying that the choice you make is the one that works.
Rebecca
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- October 11, 2013 at 2:24 am
Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!
Wish you had gotten better news, but glad you have very good treatments available to you.
Tina
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- October 11, 2013 at 2:24 am
Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!
Wish you had gotten better news, but glad you have very good treatments available to you.
Tina
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- October 11, 2013 at 2:24 am
Josh, I am so sorry and I know your head and heart are reeling right now. I am glad to see that you now have a plan. Thankful there are options now… so different than just several years ago, and lots of hope!!
Wish you had gotten better news, but glad you have very good treatments available to you.
Tina
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- October 11, 2013 at 2:25 am
Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister. -
- October 11, 2013 at 2:25 am
Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister. -
- October 11, 2013 at 2:25 am
Josh, wasn’t that lung biopsy something else? I am nearing the end of my third year Stage IV, and you should know that nothing since has been as hard as that test. It sure fights off boredom doesn’t it? I have no idea what comes next, but if you are BRAF positive I sure would consider what I call “Smith and Wesson.” That’s the GSK combo that has saved me. I have over 1,000 minutes in the MRI brain scanner, and 20 CTs to prove it kicks hell out of tumors. It starts with courage, which allows us to look for hope, which brings strength. You will find your answer but get the genome study results and go from there. Carry hope and gratitude and vigilance in your backpack. You already climbed a huge mountain sliding around on that ironing board going back and forth into the scanner as they lined up that huge needle they stuck in your back and pushed into your lung. Everything else has been like kissing your sister. -
- January 2, 2014 at 2:10 am
Hi Josh – just reading your recent update and was wondering how you are doing? I know how devistating this news can be as we received the same news in March 2013. My husband had 1 nodule removed from his lung in March and is currently doing well. Did they discuss surgery to remove the nodule? We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes. Again, our mel specialist wanted to go in and see what was going on before deciding on treatment. The nodes were too small, so our Thoracic surgeon took them out. Surgery was on Dec 2 and all came back non malignant.
I believe we are in the same area and are currently being treated at Rush Med Center. Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.
You're in my thoughts.
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- January 2, 2014 at 2:10 am
Hi Josh – just reading your recent update and was wondering how you are doing? I know how devistating this news can be as we received the same news in March 2013. My husband had 1 nodule removed from his lung in March and is currently doing well. Did they discuss surgery to remove the nodule? We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes. Again, our mel specialist wanted to go in and see what was going on before deciding on treatment. The nodes were too small, so our Thoracic surgeon took them out. Surgery was on Dec 2 and all came back non malignant.
I believe we are in the same area and are currently being treated at Rush Med Center. Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.
You're in my thoughts.
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- January 2, 2014 at 2:10 am
Hi Josh – just reading your recent update and was wondering how you are doing? I know how devistating this news can be as we received the same news in March 2013. My husband had 1 nodule removed from his lung in March and is currently doing well. Did they discuss surgery to remove the nodule? We did have another scare a few weeks ago – a recent CT showed nodules on the lung and a few enlarged lymph nodes. Again, our mel specialist wanted to go in and see what was going on before deciding on treatment. The nodes were too small, so our Thoracic surgeon took them out. Surgery was on Dec 2 and all came back non malignant.
I believe we are in the same area and are currently being treated at Rush Med Center. Wondering what your experience has been your doctor at Lutheran General and if (like I mentioned above), surgery has been discussed at all.
You're in my thoughts.
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