Leukine Question
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Leukine Question

› Forums › General Melanoma Community › Leukine Question

  • Post
    • May 13, 2013 at 5:01 pm
    buckytom
    Participant

    Working through my doc at Mayo I started the 14 day on/14 day off Leukine treatment on April 23 – last of the first round treatments was on May 6. Did not have any side effects the first week – started to feel it second week – but the worst was the week AFTER i was done with treatments, still feeling very fatiged/achy/headache yet today – 6 days after my last treatment. Does anyone have any experience where their side effects came after their last treatment? Just trying to gauge when I can expect to feel a little better – and what the next round of treatment might be like.

    Working through my doc at Mayo I started the 14 day on/14 day off Leukine treatment on April 23 – last of the first round treatments was on May 6. Did not have any side effects the first week – started to feel it second week – but the worst was the week AFTER i was done with treatments, still feeling very fatiged/achy/headache yet today – 6 days after my last treatment. Does anyone have any experience where their side effects came after their last treatment? Just trying to gauge when I can expect to feel a little better – and what the next round of treatment might be like.

    Any help would be appreciated!

    Tom

Viewing 5 reply threads
  • Replies
      • May 13, 2013 at 7:29 pm
      Harry in Fair Oaks
      Participant

      I did almost 3 years of this regimen.  There were side effects (large welts at sites of injection, also some fatigue) after first 2 or 3 cycles.  Then the side effects mostly went away.  I hope this will happen to you too.

      Best regards,

      Harry

      • May 13, 2013 at 7:29 pm
      Harry in Fair Oaks
      Participant

      I did almost 3 years of this regimen.  There were side effects (large welts at sites of injection, also some fatigue) after first 2 or 3 cycles.  Then the side effects mostly went away.  I hope this will happen to you too.

      Best regards,

      Harry

      • May 13, 2013 at 7:29 pm
      Harry in Fair Oaks
      Participant

      I did almost 3 years of this regimen.  There were side effects (large welts at sites of injection, also some fatigue) after first 2 or 3 cycles.  Then the side effects mostly went away.  I hope this will happen to you too.

      Best regards,

      Harry

      • May 13, 2013 at 10:43 pm
      triciad
      Participant

      Hi Tom,

      I'm sorry to hear about your side effects.  I have been on Leukine (14 days on/14 days off) since October.  I haven't had any major side effects, but I think my hair is thinning out now.  Initially, my doctor said side effects were likely around day nine of injections.  She has me take 2 Benadryl and 2 Tylenol one hour prior to injection.  So far, it's working like a charm.  I would definitely contact your doctor about the side effects and let him/her know just to be safe…it could just be a virus that's going around and have nothing to do with the drug.  As with any medication, side effects vary greatly from person to person.  I hope you feel better soon. 

      All the best,

      Tricia

      • May 13, 2013 at 10:43 pm
      triciad
      Participant

      Hi Tom,

      I'm sorry to hear about your side effects.  I have been on Leukine (14 days on/14 days off) since October.  I haven't had any major side effects, but I think my hair is thinning out now.  Initially, my doctor said side effects were likely around day nine of injections.  She has me take 2 Benadryl and 2 Tylenol one hour prior to injection.  So far, it's working like a charm.  I would definitely contact your doctor about the side effects and let him/her know just to be safe…it could just be a virus that's going around and have nothing to do with the drug.  As with any medication, side effects vary greatly from person to person.  I hope you feel better soon. 

      All the best,

      Tricia

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

        • May 14, 2013 at 4:23 pm
        buckytom
        Participant

        Thank you for all of the information Mary! It is very helpful to hear your experiences. I did find you on Facebook…just let me know how to find the group….sounds like it would be helpful. 

        Thanks!

        • May 14, 2013 at 4:23 pm
        buckytom
        Participant

        Thank you for all of the information Mary! It is very helpful to hear your experiences. I did find you on Facebook…just let me know how to find the group….sounds like it would be helpful. 

        Thanks!

        • May 14, 2013 at 4:23 pm
        buckytom
        Participant

        Thank you for all of the information Mary! It is very helpful to hear your experiences. I did find you on Facebook…just let me know how to find the group….sounds like it would be helpful. 

        Thanks!

        • May 13, 2013 at 11:30 pm
        F-melanoma
        Participant

        Hi Tom,

        I currently see Dr. Mark Albertini at UW Health in Madison. He had me do the Leukine injections from 2009-2010 after Interferon failed me. I went 2 years NED but had recurences in 2012 and recently February of this year. Compared to Interferon I handled Leukine very well. As some one else posted I did get large welts at the injection site and fatigue. I am a school teacher of young kids and could onky handle part time that year of Leukine. Interestingly, at my last appointment in April I asked Dr. Albertini if there was anything I could do (clinical trial, supplements, etc) since I hate this watching and waiting and then ultimately surgery he said there isn't anything he would prescribe as I am NED. I don't qualifiy for the Yervoy trial as I already did Interferon. So I proceeded to say what about more Leukine since it gave me 2 years of continuous NED status and he shocked me with,"New evidence is suggesting Leukine has no overall effect on a person's survival rate."  I don't want to discourage you but you may want to ask your doctor. Of course I was told the same thing about Interferon but I elected to do that anyway as I couln't stand "doing nothing". I don't regret the Leukiine as I said, Interferon was so much worse. No matter what your decision, don't stop believing. If you are on Facebook there is a closed group called, Bad Ass Melanoma Warriors and people are really quick to respond and give support. You have to "friend" a member in order to join. Feel free to look me up on FB (Mary Benesh-Zoeller). 

        Take care fellow melanoma warrior!

         

        Mary

      • May 13, 2013 at 10:43 pm
      triciad
      Participant

      Hi Tom,

      I'm sorry to hear about your side effects.  I have been on Leukine (14 days on/14 days off) since October.  I haven't had any major side effects, but I think my hair is thinning out now.  Initially, my doctor said side effects were likely around day nine of injections.  She has me take 2 Benadryl and 2 Tylenol one hour prior to injection.  So far, it's working like a charm.  I would definitely contact your doctor about the side effects and let him/her know just to be safe…it could just be a virus that's going around and have nothing to do with the drug.  As with any medication, side effects vary greatly from person to person.  I hope you feel better soon. 

      All the best,

      Tricia

Viewing 5 reply threads
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