Keytruda side effect
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Keytruda side effect

› Forums › General Melanoma Community › Keytruda side effect

  • Post
    • April 27, 2015 at 8:47 am
    Jubes
    Participant

    Hi all. I have been on keytruda since September 2014  I recently posted about a problem I have had with cramps all over my torso. It is like frozen shoulder but from top of neck down to hips. It was agony and I couldn't move. I am in Europe and was worried I couldn't get home to Australia. My dr gave me the ok to take 25 mg prednisone and it is like a magic wand. Up to now I had been taking 900 mg ibuprofen every 6 hours and it didn't really help much. I know the prednisone counteracts the Pembro but at least I can get home now and I'm sure my doctor will have a plan 🙂 he is amazing.  I just wanted to share this with you as this problem has been increasing over the last 10 weeks until it became unbearable. I could only find one other person on this site that has had the same side effect 

    anne-Louise 

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  • Replies
      • April 27, 2015 at 1:03 pm
      ed williams
      Participant

      Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed

      • April 27, 2015 at 1:03 pm
      ed williams
      Participant

      Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed

      • April 27, 2015 at 1:03 pm
      ed williams
      Participant

      Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed

      • April 28, 2015 at 4:06 am
      Bubbles
      Participant

      Ed is right, Anne-Louise!!  The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later.  So many times the things I shared were met with…"Wow!  This stuff is WEIRD!"  So be it.  Thanks for sharing.  Yours, C

      • April 28, 2015 at 4:06 am
      Bubbles
      Participant

      Ed is right, Anne-Louise!!  The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later.  So many times the things I shared were met with…"Wow!  This stuff is WEIRD!"  So be it.  Thanks for sharing.  Yours, C

      • April 28, 2015 at 4:06 am
      Bubbles
      Participant

      Ed is right, Anne-Louise!!  The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later.  So many times the things I shared were met with…"Wow!  This stuff is WEIRD!"  So be it.  Thanks for sharing.  Yours, C

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