› Forums › General Melanoma Community › Keytruda and anemia
- This topic has 21 replies, 4 voices, and was last updated 7 years, 7 months ago by Sknight.
- Post
-
- May 31, 2016 at 12:36 am
My husband had his 14th keytruda treatment Friday. Labs that day showed a hemoglobin 8.4. The previous 3 week lab level was 11. The PA says this is treatment related and can’t be corrected with diet or supplements yet we are waiting until Tuesday as directed to do another lab to check the level and then blood transfusion if indicated. Syptoms of severe shortness of breath and weakness in just trying to walk around. Anyone else experience this with keytruda?
- Replies
-
-
- June 1, 2016 at 1:12 am
Unfortunately, while anti-PD1 therapy provides a fairly good response rate…both nivo/Opdivo and Pembro/Keytruda come with some unfortunate side effects for some. A dear one of mine…Allyson…posted this here: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/keytruda-and-low-white-blood
And I have posted many strange side effects here: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/05/side-effect-to-immunotherapypart-4.html
Don't know that this helps specifcally…but while it may help us fight melanoma…anti-PD1 can also trigger many unpleasant immune responses
I wish you well. Celeste
-
- June 1, 2016 at 1:12 am
Unfortunately, while anti-PD1 therapy provides a fairly good response rate…both nivo/Opdivo and Pembro/Keytruda come with some unfortunate side effects for some. A dear one of mine…Allyson…posted this here: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/keytruda-and-low-white-blood
And I have posted many strange side effects here: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/05/side-effect-to-immunotherapypart-4.html
Don't know that this helps specifcally…but while it may help us fight melanoma…anti-PD1 can also trigger many unpleasant immune responses
I wish you well. Celeste
-
- June 1, 2016 at 1:12 am
Unfortunately, while anti-PD1 therapy provides a fairly good response rate…both nivo/Opdivo and Pembro/Keytruda come with some unfortunate side effects for some. A dear one of mine…Allyson…posted this here: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/keytruda-and-low-white-blood
And I have posted many strange side effects here: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/05/side-effect-to-immunotherapypart-4.html
Don't know that this helps specifcally…but while it may help us fight melanoma…anti-PD1 can also trigger many unpleasant immune responses
I wish you well. Celeste
-
- June 4, 2016 at 2:09 pm
Great news! The blood transfusion has GREATLY improved my husband's condition with the shortness of breath and weakness. In looking back on his hemoglobin and his statements that he knows something has changed and something was wrong…it correlates directly with his hemoglobin level graph showing the drop from 14 to 13 and then the continuous drop to 8.4. PLEASE DOCTORS…DO NOT THROW EVERYBODY INTO THE ONE SIZE FITS ALL BLOOD LEVELS…USE THESE RANGES AS GUIDES !! QUALITY OF LIFE MATTERS !!
-
- June 4, 2016 at 2:09 pm
Great news! The blood transfusion has GREATLY improved my husband's condition with the shortness of breath and weakness. In looking back on his hemoglobin and his statements that he knows something has changed and something was wrong…it correlates directly with his hemoglobin level graph showing the drop from 14 to 13 and then the continuous drop to 8.4. PLEASE DOCTORS…DO NOT THROW EVERYBODY INTO THE ONE SIZE FITS ALL BLOOD LEVELS…USE THESE RANGES AS GUIDES !! QUALITY OF LIFE MATTERS !!
-
- June 4, 2016 at 2:09 pm
Great news! The blood transfusion has GREATLY improved my husband's condition with the shortness of breath and weakness. In looking back on his hemoglobin and his statements that he knows something has changed and something was wrong…it correlates directly with his hemoglobin level graph showing the drop from 14 to 13 and then the continuous drop to 8.4. PLEASE DOCTORS…DO NOT THROW EVERYBODY INTO THE ONE SIZE FITS ALL BLOOD LEVELS…USE THESE RANGES AS GUIDES !! QUALITY OF LIFE MATTERS !!
-
- September 11, 2016 at 2:03 pm
Hi desertsun,
My father had same condition with low hemoglobin, even drop to 5.6. The blood transfusion also improved but only to 7.3. So I want to know some infomation about your husband on blood transfusion so that to find out some reasons.
My father is 62kg and the capacity of blood transfusion is 600ml, in 2 days the htemoglobin level become 5.6 to 7.3. What about your husband's?
Sorry for my poor english and I am very thanks if you can reply to me.
-
- September 11, 2016 at 2:03 pm
Hi desertsun,
My father had same condition with low hemoglobin, even drop to 5.6. The blood transfusion also improved but only to 7.3. So I want to know some infomation about your husband on blood transfusion so that to find out some reasons.
My father is 62kg and the capacity of blood transfusion is 600ml, in 2 days the htemoglobin level become 5.6 to 7.3. What about your husband's?
Sorry for my poor english and I am very thanks if you can reply to me.
-
- September 11, 2016 at 2:03 pm
Hi desertsun,
My father had same condition with low hemoglobin, even drop to 5.6. The blood transfusion also improved but only to 7.3. So I want to know some infomation about your husband on blood transfusion so that to find out some reasons.
My father is 62kg and the capacity of blood transfusion is 600ml, in 2 days the htemoglobin level become 5.6 to 7.3. What about your husband's?
Sorry for my poor english and I am very thanks if you can reply to me.
-
- You must be logged in to reply to this topic.