› Forums › General Melanoma Community › Keep on Trucking on Zelboraf
- This topic has 33 replies, 10 voices, and was last updated 11 years, 1 month ago by
Richard_K.
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- March 11, 2013 at 2:46 pm
Sunday evening marked my 1 1/2 year anniversry on "Z".Proving that there is a fighting chance to live with stage IV.Keping my PMA that this is only a small milestone.My posts here have been to offer hope to fellow fighters.My side affects have been tolerable,with the worst being bouts of the runs and gas.Scans in Feb still show almost at the NED status but officially not there yet.An area of concern did show up on brain MRI but the doc is waching closely with another scan in mid April.The other issue of concern is a low iron count.No real explanation as after a colonostopy &
Sunday evening marked my 1 1/2 year anniversry on "Z".Proving that there is a fighting chance to live with stage IV.Keping my PMA that this is only a small milestone.My posts here have been to offer hope to fellow fighters.My side affects have been tolerable,with the worst being bouts of the runs and gas.Scans in Feb still show almost at the NED status but officially not there yet.An area of concern did show up on brain MRI but the doc is waching closely with another scan in mid April.The other issue of concern is a low iron count.No real explanation as after a colonostopy & endoscopy revealed I have Acid Reflux Disease which did thicken the esopaghus.On iron supplement and a acid reflux med.I pray that with all the new research that very soon all of us here will find the right treatment to collect our Entitlement (Social Security-something we paid for) for a very long time.With Gods help and todays medicine we will all Beat the Beast . AL
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- March 11, 2013 at 2:57 pm
Al – congrats and sorry to hear about that little brain concern. Glad they are on top of it. They can just “zap that straight back to hell” if they need to. (My rad oncologists’s terminology).Oh the gas, I’ve tried everything. I’ve quit even apologizing or attempting to leave the room w my family. Too voluminous! Lol!
Keep posting and Beat the Beast!
Amy
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- March 11, 2013 at 2:57 pm
Al – congrats and sorry to hear about that little brain concern. Glad they are on top of it. They can just “zap that straight back to hell” if they need to. (My rad oncologists’s terminology).Oh the gas, I’ve tried everything. I’ve quit even apologizing or attempting to leave the room w my family. Too voluminous! Lol!
Keep posting and Beat the Beast!
Amy
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- March 11, 2013 at 2:57 pm
Al – congrats and sorry to hear about that little brain concern. Glad they are on top of it. They can just “zap that straight back to hell” if they need to. (My rad oncologists’s terminology).Oh the gas, I’ve tried everything. I’ve quit even apologizing or attempting to leave the room w my family. Too voluminous! Lol!
Keep posting and Beat the Beast!
Amy
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- March 11, 2013 at 4:02 pm
Hi Al,
Great news to hear you are almost NED. If you want to rid yourself of the prescription drug for acid reflux I have a few people that have told me that a little Aloe Vera Juice everyday does the same thing as the script and no side effects as well. You can put the juice in anything you wish and drink it or even take it by itself.
As far as the Social Security – if you are not working apply for it since you are Stage IV. Gene's went through pretty quick.
Judy (loving wife of Gene)
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- March 11, 2013 at 4:02 pm
Hi Al,
Great news to hear you are almost NED. If you want to rid yourself of the prescription drug for acid reflux I have a few people that have told me that a little Aloe Vera Juice everyday does the same thing as the script and no side effects as well. You can put the juice in anything you wish and drink it or even take it by itself.
As far as the Social Security – if you are not working apply for it since you are Stage IV. Gene's went through pretty quick.
Judy (loving wife of Gene)
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- March 11, 2013 at 4:57 pm
You might also like to try Tumeric or Curcurmin to help with the acid reflux here is part of a page about it:
1) Turmeric. One of the most medicinal spices known to man, turmeric, which is also commonly referred to as curcumin, its active ingredient, is a powerful anti-inflammatory herb that has been shown to help aid in the proper digestion of food. Because of its strong astringent qualities, turmeric can help seal the lining of the bowel and digestive tract, effectively blocking the condition commonly referred to as leaky gut syndrome.
Turmeric is also known to suppress the excess production of stomach acid, which can cause chronic stomach upset and even physical damage to the intestinal wall. And regular consumption of turmeric has been shown to help prevent gastroesophageal reflux, also known as heartburn, as well as prevent the formation of both gastric and duodenal ulcers.
(http://www.life-enhancement.com)Learn more: http://www.naturalnews.com/039436_gut_health_healing_spices.html#ixzz2NFdWsJcF
Judy
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- March 11, 2013 at 4:57 pm
You might also like to try Tumeric or Curcurmin to help with the acid reflux here is part of a page about it:
1) Turmeric. One of the most medicinal spices known to man, turmeric, which is also commonly referred to as curcumin, its active ingredient, is a powerful anti-inflammatory herb that has been shown to help aid in the proper digestion of food. Because of its strong astringent qualities, turmeric can help seal the lining of the bowel and digestive tract, effectively blocking the condition commonly referred to as leaky gut syndrome.
Turmeric is also known to suppress the excess production of stomach acid, which can cause chronic stomach upset and even physical damage to the intestinal wall. And regular consumption of turmeric has been shown to help prevent gastroesophageal reflux, also known as heartburn, as well as prevent the formation of both gastric and duodenal ulcers.
(http://www.life-enhancement.com)Learn more: http://www.naturalnews.com/039436_gut_health_healing_spices.html#ixzz2NFdWsJcF
Judy
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- March 11, 2013 at 4:57 pm
You might also like to try Tumeric or Curcurmin to help with the acid reflux here is part of a page about it:
1) Turmeric. One of the most medicinal spices known to man, turmeric, which is also commonly referred to as curcumin, its active ingredient, is a powerful anti-inflammatory herb that has been shown to help aid in the proper digestion of food. Because of its strong astringent qualities, turmeric can help seal the lining of the bowel and digestive tract, effectively blocking the condition commonly referred to as leaky gut syndrome.
Turmeric is also known to suppress the excess production of stomach acid, which can cause chronic stomach upset and even physical damage to the intestinal wall. And regular consumption of turmeric has been shown to help prevent gastroesophageal reflux, also known as heartburn, as well as prevent the formation of both gastric and duodenal ulcers.
(http://www.life-enhancement.com)Learn more: http://www.naturalnews.com/039436_gut_health_healing_spices.html#ixzz2NFdWsJcF
Judy
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- March 11, 2013 at 4:02 pm
Hi Al,
Great news to hear you are almost NED. If you want to rid yourself of the prescription drug for acid reflux I have a few people that have told me that a little Aloe Vera Juice everyday does the same thing as the script and no side effects as well. You can put the juice in anything you wish and drink it or even take it by itself.
As far as the Social Security – if you are not working apply for it since you are Stage IV. Gene's went through pretty quick.
Judy (loving wife of Gene)
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- March 12, 2013 at 12:31 am
AL,
Always inspired by reading your posts. Congrats on the 18 months on Z and wish you many more good scans.
I know where your coming from with the gas as I’m right behind you with 18 months on Z in about a week.
Feel very fortunate and fairly healthy, fighting the big M with you!
Bruce -
- March 12, 2013 at 12:31 am
AL,
Always inspired by reading your posts. Congrats on the 18 months on Z and wish you many more good scans.
I know where your coming from with the gas as I’m right behind you with 18 months on Z in about a week.
Feel very fortunate and fairly healthy, fighting the big M with you!
Bruce -
- March 12, 2013 at 12:31 am
AL,
Always inspired by reading your posts. Congrats on the 18 months on Z and wish you many more good scans.
I know where your coming from with the gas as I’m right behind you with 18 months on Z in about a week.
Feel very fortunate and fairly healthy, fighting the big M with you!
Bruce -
- March 12, 2013 at 12:21 pm
Thank you to everybody.The words of encouragement mean so much.There are times ,very few and short lasting I get down a little.It is then I read these kind words to get me over the funk.Feeds my PMA.Love to see that there are more people who are kicking cancers ass on these new treatments.We will Beat the Beast. Al
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- March 12, 2013 at 12:21 pm
Thank you to everybody.The words of encouragement mean so much.There are times ,very few and short lasting I get down a little.It is then I read these kind words to get me over the funk.Feeds my PMA.Love to see that there are more people who are kicking cancers ass on these new treatments.We will Beat the Beast. Al
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- March 12, 2013 at 12:21 pm
Thank you to everybody.The words of encouragement mean so much.There are times ,very few and short lasting I get down a little.It is then I read these kind words to get me over the funk.Feeds my PMA.Love to see that there are more people who are kicking cancers ass on these new treatments.We will Beat the Beast. Al
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- March 12, 2013 at 12:33 pm
Al,
WONDERFUL milestone 🙂 !! Congratulations on this and thanks so much for always being so faithful to post! I am so happy to hear abt your nearly NED status. I hope your low iron levels aren't sapping your energy too much & that they can figure a way to keep that up for you so you can feel well.Hoping along with you that the MRI concern will be nothing. That is the one thing abt having such frequent scans…many people have little things that would show up, then disappear because they are "nothing" but there is no awareness of it because they arent scanned every 3-4 months!
Always love hearing from you.
Tina
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- March 12, 2013 at 12:33 pm
Al,
WONDERFUL milestone 🙂 !! Congratulations on this and thanks so much for always being so faithful to post! I am so happy to hear abt your nearly NED status. I hope your low iron levels aren't sapping your energy too much & that they can figure a way to keep that up for you so you can feel well.Hoping along with you that the MRI concern will be nothing. That is the one thing abt having such frequent scans…many people have little things that would show up, then disappear because they are "nothing" but there is no awareness of it because they arent scanned every 3-4 months!
Always love hearing from you.
Tina
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- March 12, 2013 at 12:33 pm
Al,
WONDERFUL milestone 🙂 !! Congratulations on this and thanks so much for always being so faithful to post! I am so happy to hear abt your nearly NED status. I hope your low iron levels aren't sapping your energy too much & that they can figure a way to keep that up for you so you can feel well.Hoping along with you that the MRI concern will be nothing. That is the one thing abt having such frequent scans…many people have little things that would show up, then disappear because they are "nothing" but there is no awareness of it because they arent scanned every 3-4 months!
Always love hearing from you.
Tina
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