The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Just saying hello :)

Forums General Melanoma Community Just saying hello :)

  • Post
    Guten Tag
    Participant

      I finally registred an account on melanoma.org and I thought I would say hello and give a quick update.  I've been NED since my last surgery and radiation treatment sometime in 2003.  For those of you who don't know, I was originally diagnosed as either Stage IIIC or Stage IV — I had a total of 16 of 19 lymph nodes from my right axilla test positive for melanoma.  

      I finally registred an account on melanoma.org and I thought I would say hello and give a quick update.  I've been NED since my last surgery and radiation treatment sometime in 2003.  For those of you who don't know, I was originally diagnosed as either Stage IIIC or Stage IV — I had a total of 16 of 19 lymph nodes from my right axilla test positive for melanoma.  

      I had  3 surgeries: a surgical biopsy, a WLE, and a final surgery (I had a recurrence about a year after original dx).  I did the high dose interferon for the first month, but did not do the 1 year long treatment.

      I feel extremely fortunate to be alive and to also have a great quality of life.  Other than a few scars, I haven't had any complications, except that lymphedema in my right (also dominant) arm showed up last year — over 7 years after final surgery and radiation.  It was a bit surprising, but I won't complain, given that I had a canteloupe sized mass removed on my 2nd surgery, plus radiation treatment, I was lucky to not have it right away.

      I'm back in Austin, TX and a full time student at the University of Texas — studying Psychology and Computer Science — with about 1 year left.  I have a girlfriend of a little over 3 years now, who has a 9 year old daughter.  I adore them both.  I've also started a new company, Predictable Data, and it is going well.

      OK, just wanted to say hello to old friend and give an update. 

      -Dwayne

    Viewing 17 reply threads
    • Replies
        JerryfromFauq
        Participant
          Sehr gut. Always love to read posts like this. They help show so many others that there is hope!
            Guten Tag
            Participant

              Exactly why I wanted to post. I'm sooooo fortunate — sharing my story is the *least* I can do.

              Guten Tag
              Participant

                Exactly why I wanted to post. I'm sooooo fortunate — sharing my story is the *least* I can do.

                Guten Tag
                Participant

                  Exactly why I wanted to post. I'm sooooo fortunate — sharing my story is the *least* I can do.

                JerryfromFauq
                Participant
                  Sehr gut. Always love to read posts like this. They help show so many others that there is hope!
                  JerryfromFauq
                  Participant
                    Sehr gut. Always love to read posts like this. They help show so many others that there is hope!
                    aldakota22
                    Participant

                      Life is good,Consider yourself one of the lucky ones.Praying that everyone  here is twice as lucky as you are.There are so many tough stories posted that it always gives inspiration to the rest of us there there is hope .The people here are always on my mind .Till we are all NED all the best tou you.  Al

                      aldakota22
                      Participant

                        Life is good,Consider yourself one of the lucky ones.Praying that everyone  here is twice as lucky as you are.There are so many tough stories posted that it always gives inspiration to the rest of us there there is hope .The people here are always on my mind .Till we are all NED all the best tou you.  Al

                        aldakota22
                        Participant

                          Life is good,Consider yourself one of the lucky ones.Praying that everyone  here is twice as lucky as you are.There are so many tough stories posted that it always gives inspiration to the rest of us there there is hope .The people here are always on my mind .Till we are all NED all the best tou you.  Al

                          Janner
                          Participant

                            Guten Morgen, Guten Tag!  Nice to see you posting.  It's been a while since we've heard from you!  Glad things seem to be going well – both melanoma-wise and life-wise!!!

                            Best wishes,

                            Janner

                            Janner
                            Participant

                              Guten Morgen, Guten Tag!  Nice to see you posting.  It's been a while since we've heard from you!  Glad things seem to be going well – both melanoma-wise and life-wise!!!

                              Best wishes,

                              Janner

                                Guten Tag
                                Participant

                                  Hey Janner!   Yes, long time no chat. πŸ™‚  How are you?

                                  Guten Tag
                                  Participant

                                    Hey Janner!   Yes, long time no chat. πŸ™‚  How are you?

                                    Guten Tag
                                    Participant

                                      Hey Janner!   Yes, long time no chat. πŸ™‚  How are you?

                                    Janner
                                    Participant

                                      Guten Morgen, Guten Tag!  Nice to see you posting.  It's been a while since we've heard from you!  Glad things seem to be going well – both melanoma-wise and life-wise!!!

                                      Best wishes,

                                      Janner

                                      DebbieH
                                      Participant

                                        Dwayne!  It's great to see you – so happy to hear everything is going well with you.  Good luck with your studies and your new company – stay in touch!

                                        DebbieH

                                        DebbieH
                                        Participant

                                          Dwayne!  It's great to see you – so happy to hear everything is going well with you.  Good luck with your studies and your new company – stay in touch!

                                          DebbieH

                                            Snickers60
                                            Participant

                                              Oh my goodness……………YOU JUST MADE THIS GIRL'S DAY !   

                                              I give many thanks for your NED report for sooooo long !    OH MY – thanks a MILLION for

                                              coming back to visit and tell some of us oldies, but newbies again that there is HOPE for

                                              long term health !

                                              WOW……..I hope you get a go-zillion years.   πŸ™‚   

                                               

                                              Nancy (devoted wife of #3 X Warrior Wayne) 

                                              Thank you – thank you – thank you………………!!!    πŸ™‚

                                              Snickers60
                                              Participant

                                                Oh my goodness……………YOU JUST MADE THIS GIRL'S DAY !   

                                                I give many thanks for your NED report for sooooo long !    OH MY – thanks a MILLION for

                                                coming back to visit and tell some of us oldies, but newbies again that there is HOPE for

                                                long term health !

                                                WOW……..I hope you get a go-zillion years.   πŸ™‚   

                                                 

                                                Nancy (devoted wife of #3 X Warrior Wayne) 

                                                Thank you – thank you – thank you………………!!!    πŸ™‚

                                                Snickers60
                                                Participant

                                                  Oh my goodness……………YOU JUST MADE THIS GIRL'S DAY !   

                                                  I give many thanks for your NED report for sooooo long !    OH MY – thanks a MILLION for

                                                  coming back to visit and tell some of us oldies, but newbies again that there is HOPE for

                                                  long term health !

                                                  WOW……..I hope you get a go-zillion years.   πŸ™‚   

                                                   

                                                  Nancy (devoted wife of #3 X Warrior Wayne) 

                                                  Thank you – thank you – thank you………………!!!    πŸ™‚

                                                  Guten Tag
                                                  Participant

                                                    Thanks Debbie!  How are you?!

                                                     

                                                    -Dwayne

                                                    Guten Tag
                                                    Participant

                                                      Thanks Debbie!  How are you?!

                                                       

                                                      -Dwayne

                                                      Guten Tag
                                                      Participant

                                                        Thanks Debbie!  How are you?!

                                                         

                                                        -Dwayne

                                                      DebbieH
                                                      Participant

                                                        Dwayne!  It's great to see you – so happy to hear everything is going well with you.  Good luck with your studies and your new company – stay in touch!

                                                        DebbieH

                                                        Charlie S
                                                        Participant

                                                          Hey Dwayne !  Seems like forever since seeing you in Dallas now six years ago.  Glad to hear you are doing well.

                                                          Now, about that girfriend, guess this one of three is not the same one six years ago?  (chuckle)

                                                          Either way, my best to you.

                                                          Charlie S

                                                          Charlie S
                                                          Participant

                                                            Hey Dwayne !  Seems like forever since seeing you in Dallas now six years ago.  Glad to hear you are doing well.

                                                            Now, about that girfriend, guess this one of three is not the same one six years ago?  (chuckle)

                                                            Either way, my best to you.

                                                            Charlie S

                                                            Charlie S
                                                            Participant

                                                              Hey Dwayne !  Seems like forever since seeing you in Dallas now six years ago.  Glad to hear you are doing well.

                                                              Now, about that girfriend, guess this one of three is not the same one six years ago?  (chuckle)

                                                              Either way, my best to you.

                                                              Charlie S

                                                                Guten Tag
                                                                Participant

                                                                  Heya Charlie,

                                                                  It's so hard to believe that was 6 years ago!  And nope, different girlfriend. πŸ™‚

                                                                  My best also back to you!

                                                                   

                                                                  -Dwayne

                                                                  Guten Tag
                                                                  Participant

                                                                    Heya Charlie,

                                                                    It's so hard to believe that was 6 years ago!  And nope, different girlfriend. πŸ™‚

                                                                    My best also back to you!

                                                                     

                                                                    -Dwayne

                                                                    Guten Tag
                                                                    Participant

                                                                      Heya Charlie,

                                                                      It's so hard to believe that was 6 years ago!  And nope, different girlfriend. πŸ™‚

                                                                      My best also back to you!

                                                                       

                                                                      -Dwayne

                                                                    Angelica Camargo
                                                                    Participant

                                                                      Thank you so much for taking the time to tell us about your amazing journey! This give us all strength to fight and to be positive. 

                                                                       

                                                                      Angelica Camargo
                                                                      Participant

                                                                        Thank you so much for taking the time to tell us about your amazing journey! This give us all strength to fight and to be positive. 

                                                                         

                                                                        Angelica Camargo
                                                                        Participant

                                                                          Thank you so much for taking the time to tell us about your amazing journey! This give us all strength to fight and to be positive. 

                                                                           

                                                                            Guten Tag
                                                                            Participant

                                                                              Angelica,

                                                                              I'm glad if in any small way I can help.  I have been so fortunate.  Even when it was hard, I've always kept a positivie attitude and I do believe my attitude has helped keep me alive and kicking for so long.  

                                                                              I mean, I could either make the best of it or be miserable; it's not a hard choice. πŸ™‚

                                                                               

                                                                              -Dwayne

                                                                              Irish girl
                                                                              Participant

                                                                                As a newly diganosed melanoma warrior, its such an inspiration to read your story. Thank you for taking the time to share…

                                                                                Irish girl
                                                                                Participant

                                                                                  As a newly diganosed melanoma warrior, its such an inspiration to read your story. Thank you for taking the time to share…

                                                                                  Irish girl
                                                                                  Participant

                                                                                    As a newly diganosed melanoma warrior, its such an inspiration to read your story. Thank you for taking the time to share…

                                                                                    Guten Tag
                                                                                    Participant

                                                                                      Angelica,

                                                                                      I'm glad if in any small way I can help.  I have been so fortunate.  Even when it was hard, I've always kept a positivie attitude and I do believe my attitude has helped keep me alive and kicking for so long.  

                                                                                      I mean, I could either make the best of it or be miserable; it's not a hard choice. πŸ™‚

                                                                                       

                                                                                      -Dwayne

                                                                                      Guten Tag
                                                                                      Participant

                                                                                        Angelica,

                                                                                        I'm glad if in any small way I can help.  I have been so fortunate.  Even when it was hard, I've always kept a positivie attitude and I do believe my attitude has helped keep me alive and kicking for so long.  

                                                                                        I mean, I could either make the best of it or be miserable; it's not a hard choice. πŸ™‚

                                                                                         

                                                                                        -Dwayne

                                                                                  Viewing 17 reply threads
                                                                                  • You must be logged in to reply to this topic.
                                                                                  About the MRF Patient Forum

                                                                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide byΒ MRF posting policies.

                                                                                  Popular Topics