Its right around the corner
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Its right around the corner

› Forums › General Melanoma Community › Its right around the corner

  • Post
    • February 1, 2013 at 7:21 pm
    Richard_K
    Participant

     

    I haven’t been checking in lately but I thought I would post an update on my current status.  I have now completed 35 months on Zelboraf, PET scans still showing no activity and my doctor is convinced what shows up on the CT scan is just scar tissue.  I no longer stress as much when I go for new scans (except for fighting the morning traffic getting into New York City).

     

    I haven’t been checking in lately but I thought I would post an update on my current status.  I have now completed 35 months on Zelboraf, PET scans still showing no activity and my doctor is convinced what shows up on the CT scan is just scar tissue.  I no longer stress as much when I go for new scans (except for fighting the morning traffic getting into New York City).

    I continue to have some problems with my bilirubin though.  I’m reduced to 720mg twice a day and I’ll have my fingers crossed for good blood work at next check-up; it was up a little last time and I hope it was due to some over the counter cold medicine I was taking.

    March 3rd will be three years on Zelboraf!

    Dick

Viewing 20 reply threads
  • Replies
      • February 1, 2013 at 7:55 pm
      Tina D
      Participant

      That is so incredible! I feel like we should all have a party to celebrate smiley

      So glad things are continuing to go so well!

      Tina

      • February 1, 2013 at 7:55 pm
      Tina D
      Participant

      That is so incredible! I feel like we should all have a party to celebrate smiley

      So glad things are continuing to go so well!

      Tina

      • February 1, 2013 at 7:55 pm
      Tina D
      Participant

      That is so incredible! I feel like we should all have a party to celebrate smiley

      So glad things are continuing to go so well!

      Tina

      • February 1, 2013 at 8:11 pm
      JakeinNY
      Participant

      Congratulations Dick!

      Keep up the good work and keep posting after your scans.

      Dr. Pavlick and her Nurse Practitioners are great people, aren't they?

      • February 1, 2013 at 8:11 pm
      JakeinNY
      Participant

      Congratulations Dick!

      Keep up the good work and keep posting after your scans.

      Dr. Pavlick and her Nurse Practitioners are great people, aren't they?

      • February 1, 2013 at 8:11 pm
      JakeinNY
      Participant

      Congratulations Dick!

      Keep up the good work and keep posting after your scans.

      Dr. Pavlick and her Nurse Practitioners are great people, aren't they?

      • February 1, 2013 at 8:38 pm
      aldakota22
      Participant

      Way to go Dick.Like you I am responding Super to "Z".This month i get scans and see Dr. Pavaluck.Hopefully another 6 month refill for "Z".I am into treatment for 17 months as of Feb. 10th.Feeling fantastic and thanking God everyday for it.Still think of the recent losses of MRF members and those who have much harder time fighting this f__king desease.Praying that each and everyone here  complete victory.Keeping my PMA .Beat the Beast .Al

        PS :  Happy to see your posts.

      • February 1, 2013 at 8:38 pm
      aldakota22
      Participant

      Way to go Dick.Like you I am responding Super to "Z".This month i get scans and see Dr. Pavaluck.Hopefully another 6 month refill for "Z".I am into treatment for 17 months as of Feb. 10th.Feeling fantastic and thanking God everyday for it.Still think of the recent losses of MRF members and those who have much harder time fighting this f__king desease.Praying that each and everyone here  complete victory.Keeping my PMA .Beat the Beast .Al

        PS :  Happy to see your posts.

        • February 1, 2013 at 9:43 pm
        JakeinNY
        Participant

        "Pavaluck". That's a good one, Al.

        She is a great woman…..extremely down to earth, straight shooter…..I can't say enough about how great it is to deal with her. I wish that other physicians could see her at work!!!

        • February 1, 2013 at 9:43 pm
        JakeinNY
        Participant

        "Pavaluck". That's a good one, Al.

        She is a great woman…..extremely down to earth, straight shooter…..I can't say enough about how great it is to deal with her. I wish that other physicians could see her at work!!!

        • February 1, 2013 at 9:43 pm
        JakeinNY
        Participant

        "Pavaluck". That's a good one, Al.

        She is a great woman…..extremely down to earth, straight shooter…..I can't say enough about how great it is to deal with her. I wish that other physicians could see her at work!!!

      • February 1, 2013 at 8:38 pm
      aldakota22
      Participant

      Way to go Dick.Like you I am responding Super to "Z".This month i get scans and see Dr. Pavaluck.Hopefully another 6 month refill for "Z".I am into treatment for 17 months as of Feb. 10th.Feeling fantastic and thanking God everyday for it.Still think of the recent losses of MRF members and those who have much harder time fighting this f__king desease.Praying that each and everyone here  complete victory.Keeping my PMA .Beat the Beast .Al

        PS :  Happy to see your posts.

      • February 1, 2013 at 11:04 pm
      H555
      Participant
      I love reading these posts. I’m waiting to hear how my 9 month scans went. See the onc next wed and while I wish it were otherwise it will be a twitchy 5 days till then I’m so keeping my hopes that ill continue to respond like you Dick and Al and other longer term zelboraf patients
      • February 1, 2013 at 11:04 pm
      H555
      Participant
      I love reading these posts. I’m waiting to hear how my 9 month scans went. See the onc next wed and while I wish it were otherwise it will be a twitchy 5 days till then I’m so keeping my hopes that ill continue to respond like you Dick and Al and other longer term zelboraf patients
      • February 1, 2013 at 11:04 pm
      H555
      Participant
      I love reading these posts. I’m waiting to hear how my 9 month scans went. See the onc next wed and while I wish it were otherwise it will be a twitchy 5 days till then I’m so keeping my hopes that ill continue to respond like you Dick and Al and other longer term zelboraf patients
      • February 2, 2013 at 12:23 am
      awillett1991
      Participant
      Great job Dick! I always appreciate you taking the time to post!

      Amy

      • February 2, 2013 at 12:23 am
      awillett1991
      Participant
      Great job Dick! I always appreciate you taking the time to post!

      Amy

      • February 2, 2013 at 12:23 am
      awillett1991
      Participant
      Great job Dick! I always appreciate you taking the time to post!

      Amy

      • February 2, 2013 at 1:41 am
      Kellie-T
      Participant

      Dick,

       

      I speak of you often regarding your 3-year mark. I'm shortly coming up on one year of taking Zelboraf. I have scans on February 5th so as always hoping for the same news as the last time. No evidence of metastatic disease present. The scan anxiety has gotten better but anytime it is coupled with a brain MRI I tend to freak a bit. I'm am so happy to read your and Al's posts. I also love to read in my clinic notes "complete response".  Keep fighting and living life. I know I am.

       

      Take care!

      • February 2, 2013 at 1:41 am
      Kellie-T
      Participant

      Dick,

       

      I speak of you often regarding your 3-year mark. I'm shortly coming up on one year of taking Zelboraf. I have scans on February 5th so as always hoping for the same news as the last time. No evidence of metastatic disease present. The scan anxiety has gotten better but anytime it is coupled with a brain MRI I tend to freak a bit. I'm am so happy to read your and Al's posts. I also love to read in my clinic notes "complete response".  Keep fighting and living life. I know I am.

       

      Take care!

        • February 3, 2013 at 6:22 am
        NYKaren
        Participant
        You go, Dick! Fantastic news and thank you for sharing it.
        Party at Penn Station?
        Karen
        • February 3, 2013 at 6:22 am
        NYKaren
        Participant
        You go, Dick! Fantastic news and thank you for sharing it.
        Party at Penn Station?
        Karen
        • February 3, 2013 at 6:22 am
        NYKaren
        Participant
        You go, Dick! Fantastic news and thank you for sharing it.
        Party at Penn Station?
        Karen
      • February 2, 2013 at 1:41 am
      Kellie-T
      Participant

      Dick,

       

      I speak of you often regarding your 3-year mark. I'm shortly coming up on one year of taking Zelboraf. I have scans on February 5th so as always hoping for the same news as the last time. No evidence of metastatic disease present. The scan anxiety has gotten better but anytime it is coupled with a brain MRI I tend to freak a bit. I'm am so happy to read your and Al's posts. I also love to read in my clinic notes "complete response".  Keep fighting and living life. I know I am.

       

      Take care!

      • February 3, 2013 at 2:25 pm
      Linny
      Participant

      Congratulations, Dick!!!! laugh

      • February 3, 2013 at 2:25 pm
      Linny
      Participant

      Congratulations, Dick!!!! laugh

      • February 3, 2013 at 2:25 pm
      Linny
      Participant

      Congratulations, Dick!!!! laugh

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