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It’s baaaaa-ack
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It’s baaaaa-ack

› Forums › General Melanoma Community › It’s baaaaa-ack

  • Post
    • February 24, 2012 at 7:01 pm
    WalterA
    Participant

      I had a PET/CT scan yesterday (Thursday), and it showed four lesions in/on my right lung. They are of recent origin, and they are very small. Because they are so small, my doctor believes they can be treated with chemotherapy. (My two previous recurrences — one lesion in my left lung and one in my liver — were successfully dealt with by CyberKnife and RFA treatment, but these are two small.) I'm not sure when things will get rolling, but I'm back in the lair of the beast.

      I had a PET/CT scan yesterday (Thursday), and it showed four lesions in/on my right lung. They are of recent origin, and they are very small. Because they are so small, my doctor believes they can be treated with chemotherapy. (My two previous recurrences — one lesion in my left lung and one in my liver — were successfully dealt with by CyberKnife and RFA treatment, but these are two small.) I'm not sure when things will get rolling, but I'm back in the lair of the beast. Next week, I will "celebrate" the 10th anniversary of my initial diagnosis, so this is an interesting time.

    Viewing 11 reply threads
    • Replies
        • February 25, 2012 at 2:33 pm
        boot2aboot
        Participant

          I am sorry that the beast is back.

          That is interesting that you got your liver and lung met eradicated by cyber knife…hmmmm…i have never heard of cyber knife used for anything but brain mets.  Maybe i ought to go see the radiation onc again.

          are you braf positive? will you do cyber knife again since it worked so well for you thus far?

          boots

          • February 25, 2012 at 2:33 pm
          boot2aboot
          Participant

            I am sorry that the beast is back.

            That is interesting that you got your liver and lung met eradicated by cyber knife…hmmmm…i have never heard of cyber knife used for anything but brain mets.  Maybe i ought to go see the radiation onc again.

            are you braf positive? will you do cyber knife again since it worked so well for you thus far?

            boots

            • February 25, 2012 at 2:33 pm
            boot2aboot
            Participant

              I am sorry that the beast is back.

              That is interesting that you got your liver and lung met eradicated by cyber knife…hmmmm…i have never heard of cyber knife used for anything but brain mets.  Maybe i ought to go see the radiation onc again.

              are you braf positive? will you do cyber knife again since it worked so well for you thus far?

              boots

              • February 25, 2012 at 9:45 pm
              BethA in VA
              Participant

                I am sorry you have to go thru this again.  We are never truly safe, but any NED time is a blessing.  I went 10 1/2 yrs NED and it came back.  But now its been more than 7 yrs again, so I breathe a bit easier each day.   Let us know how you are and what the treatment is.  I hope you do well, and will send prayers for your return to health.  Beth 3/B

                  • February 26, 2012 at 12:08 am
                  NYKaren
                  Participant
                    Walter,
                    I too am sorry you’re going through this again. I had forgotten that you were the person who has his ear removed. My satellites are growing in my ear and I’m mighty scared. Scheduled to begin ipi reinduction march 8.
                    I just realized that I’ve had active disease for 12 of the past 14 months, and that’s not even considering all time it was on my scalp growing. I hope and pray we can all be NED soon. Sorry, this was supposed to be all about you and it turned out mostly about me!
                    take care,
                    Karen
                    • February 27, 2012 at 12:55 am
                    WalterA
                    Participant

                      Yeah, Karen, I'm the guy who went the Van Gogh way. I really do hope you can beat the stuff back and enjoy a long period of NED. I've had active disease five times in the last 10 years and three times in the last four. It does get old. Keep my posted.

                      • February 27, 2012 at 12:55 am
                      WalterA
                      Participant

                        Yeah, Karen, I'm the guy who went the Van Gogh way. I really do hope you can beat the stuff back and enjoy a long period of NED. I've had active disease five times in the last 10 years and three times in the last four. It does get old. Keep my posted.

                        • February 27, 2012 at 12:55 am
                        WalterA
                        Participant

                          Yeah, Karen, I'm the guy who went the Van Gogh way. I really do hope you can beat the stuff back and enjoy a long period of NED. I've had active disease five times in the last 10 years and three times in the last four. It does get old. Keep my posted.

                          • February 26, 2012 at 12:08 am
                          NYKaren
                          Participant
                            Walter,
                            I too am sorry you’re going through this again. I had forgotten that you were the person who has his ear removed. My satellites are growing in my ear and I’m mighty scared. Scheduled to begin ipi reinduction march 8.
                            I just realized that I’ve had active disease for 12 of the past 14 months, and that’s not even considering all time it was on my scalp growing. I hope and pray we can all be NED soon. Sorry, this was supposed to be all about you and it turned out mostly about me!
                            take care,
                            Karen
                            • February 26, 2012 at 12:08 am
                            NYKaren
                            Participant
                              Walter,
                              I too am sorry you’re going through this again. I had forgotten that you were the person who has his ear removed. My satellites are growing in my ear and I’m mighty scared. Scheduled to begin ipi reinduction march 8.
                              I just realized that I’ve had active disease for 12 of the past 14 months, and that’s not even considering all time it was on my scalp growing. I hope and pray we can all be NED soon. Sorry, this was supposed to be all about you and it turned out mostly about me!
                              take care,
                              Karen
                            • February 25, 2012 at 9:45 pm
                            BethA in VA
                            Participant

                              I am sorry you have to go thru this again.  We are never truly safe, but any NED time is a blessing.  I went 10 1/2 yrs NED and it came back.  But now its been more than 7 yrs again, so I breathe a bit easier each day.   Let us know how you are and what the treatment is.  I hope you do well, and will send prayers for your return to health.  Beth 3/B

                              • February 25, 2012 at 9:45 pm
                              BethA in VA
                              Participant

                                I am sorry you have to go thru this again.  We are never truly safe, but any NED time is a blessing.  I went 10 1/2 yrs NED and it came back.  But now its been more than 7 yrs again, so I breathe a bit easier each day.   Let us know how you are and what the treatment is.  I hope you do well, and will send prayers for your return to health.  Beth 3/B

                                • February 26, 2012 at 1:14 am
                                DonW
                                Participant

                                  Hi, Walter. I remember you from the old days and I'm sorry to hear about the apparent recurrance. Hopefully this can be dealt with fairly easily. They don't want to confirm the mets with any kind of biopsy?

                                  • February 26, 2012 at 1:14 am
                                  DonW
                                  Participant

                                    Hi, Walter. I remember you from the old days and I'm sorry to hear about the apparent recurrance. Hopefully this can be dealt with fairly easily. They don't want to confirm the mets with any kind of biopsy?

                                    • February 26, 2012 at 1:14 am
                                    DonW
                                    Participant

                                      Hi, Walter. I remember you from the old days and I'm sorry to hear about the apparent recurrance. Hopefully this can be dealt with fairly easily. They don't want to confirm the mets with any kind of biopsy?

                                        • February 27, 2012 at 12:51 am
                                        WalterA
                                        Participant

                                          Don, I'm going to be breaking in a new oncologist for this, so I'm still not exactly what will happen. The doctor I'm leaving behind in Charleston — simply for logistical reasons and not because I'm dissatisfied — is pretty certain, but acknowledged that the doctor he's referred me to in Columbia might want to confirm that it's melanoma. What I do know is that it was melanoma in left lung and in my liver, and if this is something else, I'll be surprised.

                                          • February 27, 2012 at 12:51 am
                                          WalterA
                                          Participant

                                            Don, I'm going to be breaking in a new oncologist for this, so I'm still not exactly what will happen. The doctor I'm leaving behind in Charleston — simply for logistical reasons and not because I'm dissatisfied — is pretty certain, but acknowledged that the doctor he's referred me to in Columbia might want to confirm that it's melanoma. What I do know is that it was melanoma in left lung and in my liver, and if this is something else, I'll be surprised.

                                            • February 27, 2012 at 12:51 am
                                            WalterA
                                            Participant

                                              Don, I'm going to be breaking in a new oncologist for this, so I'm still not exactly what will happen. The doctor I'm leaving behind in Charleston — simply for logistical reasons and not because I'm dissatisfied — is pretty certain, but acknowledged that the doctor he's referred me to in Columbia might want to confirm that it's melanoma. What I do know is that it was melanoma in left lung and in my liver, and if this is something else, I'll be surprised.

                                            • February 29, 2012 at 10:06 am
                                            BarbieGirl
                                            Participant

                                              Hey Walter!!  It's been a long time!  I hardly ever come here anymore, but decided to stop by tonight when I couldn't sleep..  I'm so sorry to hear you're back in the battle…. I hate melasuckanoma!   You've been kicking it's ass for 10 yrs now, I have no doubt you'll continue to do so!!

                                              Love ya guy, and I'll be looking for an update!  *hugz*

                                              ~Lisa~

                                              • February 29, 2012 at 10:06 am
                                              BarbieGirl
                                              Participant

                                                Hey Walter!!  It's been a long time!  I hardly ever come here anymore, but decided to stop by tonight when I couldn't sleep..  I'm so sorry to hear you're back in the battle…. I hate melasuckanoma!   You've been kicking it's ass for 10 yrs now, I have no doubt you'll continue to do so!!

                                                Love ya guy, and I'll be looking for an update!  *hugz*

                                                ~Lisa~

                                                • February 29, 2012 at 10:06 am
                                                BarbieGirl
                                                Participant

                                                  Hey Walter!!  It's been a long time!  I hardly ever come here anymore, but decided to stop by tonight when I couldn't sleep..  I'm so sorry to hear you're back in the battle…. I hate melasuckanoma!   You've been kicking it's ass for 10 yrs now, I have no doubt you'll continue to do so!!

                                                  Love ya guy, and I'll be looking for an update!  *hugz*

                                                  ~Lisa~

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