ippi /yervoy
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ippi /yervoy

› Forums › General Melanoma Community › ippi /yervoy

  • Post
    • January 28, 2016 at 3:01 pm
    gregor913
    Participant
    If I’m taking yervoy and have no side effects does that mean it’s not working. I mean do you have to have side effects for it to be working. Anon
Viewing 8 reply threads
  • Replies
      • January 28, 2016 at 3:31 pm
      jamieth29
      Participant
      The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
      • January 28, 2016 at 3:31 pm
      jamieth29
      Participant
      The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
        • January 28, 2016 at 5:17 pm
        JuTMSY4
        Participant

        This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

        • January 28, 2016 at 5:17 pm
        JuTMSY4
        Participant

        This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

        • January 28, 2016 at 5:17 pm
        JuTMSY4
        Participant

        This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

      • January 28, 2016 at 3:31 pm
      jamieth29
      Participant
      The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
      • January 28, 2016 at 4:37 pm
      Scooby123
      Participant

      Hi there,

      i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

      Hope it goes well for you ❤️

      scooby123❤️

      • January 28, 2016 at 4:37 pm
      Scooby123
      Participant

      Hi there,

      i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

      Hope it goes well for you ❤️

      scooby123❤️

      • January 28, 2016 at 4:37 pm
      Scooby123
      Participant

      Hi there,

      i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

      Hope it goes well for you ❤️

      scooby123❤️

      • January 29, 2016 at 1:28 am
      sayres
      Participant

      How long have you been on ipi? It takes a while to build up in your system as well.

      • January 29, 2016 at 1:28 am
      sayres
      Participant

      How long have you been on ipi? It takes a while to build up in your system as well.

        • January 29, 2016 at 4:07 pm
        gregor913
        Participant
        2 doses of 10mg
        • January 29, 2016 at 4:07 pm
        gregor913
        Participant
        2 doses of 10mg
        • January 29, 2016 at 4:07 pm
        gregor913
        Participant
        2 doses of 10mg
        • January 30, 2016 at 5:00 am
        Marianne quinn
        Participant

        My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

        • January 30, 2016 at 5:00 am
        Marianne quinn
        Participant

        My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

        • January 31, 2016 at 5:44 pm
        buffcody
        Participant

        Could you describe the "fading of skin spots"?

        • January 31, 2016 at 5:44 pm
        buffcody
        Participant

        Could you describe the "fading of skin spots"?

        • January 31, 2016 at 9:04 pm
        ed williams
        Participant

        It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

        • January 31, 2016 at 9:04 pm
        ed williams
        Participant

        It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

        • January 31, 2016 at 9:15 pm
        ed williams
        Participant

        I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

        • January 31, 2016 at 9:15 pm
        ed williams
        Participant

        I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

        • February 7, 2016 at 12:20 am
        Squash
        Participant

        With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

        Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

        But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

        • February 7, 2016 at 12:20 am
        Squash
        Participant

        With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

        Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

        But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

        • February 7, 2016 at 12:20 am
        Squash
        Participant

        With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

        Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

        But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

        • January 31, 2016 at 9:15 pm
        ed williams
        Participant

        I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

        • January 31, 2016 at 9:04 pm
        ed williams
        Participant

        It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

        • January 31, 2016 at 5:44 pm
        buffcody
        Participant

        Could you describe the "fading of skin spots"?

        • January 30, 2016 at 5:00 am
        Marianne quinn
        Participant

        My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

      • January 29, 2016 at 1:28 am
      sayres
      Participant

      How long have you been on ipi? It takes a while to build up in your system as well.

Viewing 8 reply threads
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