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Ipi Success Stories and/or Thoughts
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Ipi Success Stories and/or Thoughts

› Forums › General Melanoma Community › Ipi Success Stories and/or Thoughts

  • Post
    • July 31, 2010 at 4:25 pm
    Sharon in Reno
    Participant

      Hello Friends,

      Im serioulsy considering Ipi over BARF and was looking for Ipi success stories and or anyt thoughts or comments on Ipi. Thanks, love, Sharon in Reno, Stage IV

      Hello Friends,

      Im serioulsy considering Ipi over BARF and was looking for Ipi success stories and or anyt thoughts or comments on Ipi. Thanks, love, Sharon in Reno, Stage IV

    Viewing 5 reply threads
    • Replies
        • August 1, 2010 at 2:00 am
        Carver
        Participant

          Hi Sharon,

          You probably already know this but if you check the archives or profiles, you might try checking with MDX, MDX-010 and MDX-101 as well as with ipilimumab. Also CTLA-4 would be another way to check. I’m sure you’ll get responses but there have been MPIP participants for as long as I’ve been here that have done some of the earlier trials and I think 4 and 5 years ago MDX was often the trial name used. I think that’s because initially Mederex was developing it with Bristol Meyer Squibb before they were bought out by BMS or that’s my recollection of the chain of events.

          Best of Luck, Carver

          • August 1, 2010 at 9:41 pm
          KatyWI
          Participant

            Sharon, I don’t know anything to help you…but did you mean BRAF or did you write BARF on purpose?  Either way thanks for the laugh!  Most of the available treatments for melasuckanoma involve a lot of BARFing…

            KatyWI

              • August 1, 2010 at 9:53 pm
              Sharon in Reno
              Participant

                yep meant BRAF, they don’t have spell check on this new site so Im probably gonna have typos from now on and your right BARF works too…hehe

              • August 2, 2010 at 1:52 am
              bcforce
              Participant

                Sharon,

                All I can offer is my experience through the Angeles Clinic (John Wayne Cancer Clinic) over the last few months.  The lead investigators at Angeles (Dr. O’Day & Dr. Hamid) recently presented a paper to the American Society of Clinical Oncologists convention on the successes they have documented in Ipi trials.  I will sure be leaning that way if I need to change meds. 

                Bob F in CA

                • December 4, 2011 at 1:28 am
                Theresa123
                Participant

                  Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

                  • December 4, 2011 at 1:28 am
                  Theresa123
                  Participant

                    Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

                    • December 4, 2011 at 1:28 am
                    Theresa123
                    Participant

                      Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

                        • December 5, 2011 at 7:43 pm
                        Lisa13
                        Participant

                          Hi Sharon,

                          I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                          If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                          We also have Anti PD-1, so we have more options to try which gives us more hope.

                          All the best to you.

                          Lisa

                          • December 5, 2011 at 7:43 pm
                          Lisa13
                          Participant

                            Hi Sharon,

                            I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                            If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                            We also have Anti PD-1, so we have more options to try which gives us more hope.

                            All the best to you.

                            Lisa

                            • December 5, 2011 at 7:43 pm
                            Lisa13
                            Participant

                              Hi Sharon,

                              I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                              If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                              We also have Anti PD-1, so we have more options to try which gives us more hope.

                              All the best to you.

                              Lisa

                              • December 5, 2011 at 7:43 pm
                              Lisa13
                              Participant

                                Hi Sharon,

                                I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                We also have Anti PD-1, so we have more options to try which gives us more hope.

                                All the best to you.

                                Lisa

                                • December 5, 2011 at 7:43 pm
                                Lisa13
                                Participant

                                  Hi Sharon,

                                  I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                  If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                  We also have Anti PD-1, so we have more options to try which gives us more hope.

                                  All the best to you.

                                  Lisa

                                  • December 5, 2011 at 7:43 pm
                                  Lisa13
                                  Participant

                                    Hi Sharon,

                                    I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                    If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                    We also have Anti PD-1, so we have more options to try which gives us more hope.

                                    All the best to you.

                                    Lisa

                                    • December 5, 2011 at 7:44 pm
                                    Lisa13
                                    Participant

                                      Hi Sharon,

                                      I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                      If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                      We also have Anti PD-1, so we have more options to try which gives us more hope.

                                      All the best to you.

                                      Lisa

                                      • December 5, 2011 at 7:44 pm
                                      Lisa13
                                      Participant

                                        Hi Sharon,

                                        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                        We also have Anti PD-1, so we have more options to try which gives us more hope.

                                        All the best to you.

                                        Lisa

                                        • December 5, 2011 at 7:44 pm
                                        Lisa13
                                        Participant

                                          Hi Sharon,

                                          I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                          If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                          We also have Anti PD-1, so we have more options to try which gives us more hope.

                                          All the best to you.

                                          Lisa

                                          • December 5, 2011 at 7:44 pm
                                          Lisa13
                                          Participant

                                            Hi Sharon,

                                            I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                            If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                            We also have Anti PD-1, so we have more options to try which gives us more hope.

                                            All the best to you.

                                            Lisa

                                            • December 5, 2011 at 7:44 pm
                                            Lisa13
                                            Participant

                                              Hi Sharon,

                                              I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                              If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                              We also have Anti PD-1, so we have more options to try which gives us more hope.

                                              All the best to you.

                                              Lisa

                                              • December 5, 2011 at 7:44 pm
                                              Lisa13
                                              Participant

                                                Hi Sharon,

                                                I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

                                                If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

                                                We also have Anti PD-1, so we have more options to try which gives us more hope.

                                                All the best to you.

                                                Lisa

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