The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Ipi Success Stories and/or Thoughts

Forums General Melanoma Community Ipi Success Stories and/or Thoughts

  • Post
    Sharon in Reno
    Participant

    Hello Friends,

    Im serioulsy considering Ipi over BARF and was looking for Ipi success stories and or anyt thoughts or comments on Ipi. Thanks, love, Sharon in Reno, Stage IV

    Hello Friends,

    Im serioulsy considering Ipi over BARF and was looking for Ipi success stories and or anyt thoughts or comments on Ipi. Thanks, love, Sharon in Reno, Stage IV

    Loading spinner
Viewing 5 reply threads
  • Replies
      Carver
      Participant

      Hi Sharon,

      You probably already know this but if you check the archives or profiles, you might try checking with MDX, MDX-010 and MDX-101 as well as with ipilimumab. Also CTLA-4 would be another way to check. I’m sure you’ll get responses but there have been MPIP participants for as long as I’ve been here that have done some of the earlier trials and I think 4 and 5 years ago MDX was often the trial name used. I think that’s because initially Mederex was developing it with Bristol Meyer Squibb before they were bought out by BMS or that’s my recollection of the chain of events.

      Best of Luck, Carver

      Loading spinner
      KatyWI
      Participant

      Sharon, I don’t know anything to help you…but did you mean BRAF or did you write BARF on purpose?  Either way thanks for the laugh!  Most of the available treatments for melasuckanoma involve a lot of BARFing…

      KatyWI

      Loading spinner
        Sharon in Reno
        Participant

        yep meant BRAF, they don’t have spell check on this new site so Im probably gonna have typos from now on and your right BARF works too…hehe

        Loading spinner
      bcforce
      Participant

      Sharon,

      All I can offer is my experience through the Angeles Clinic (John Wayne Cancer Clinic) over the last few months.  The lead investigators at Angeles (Dr. O’Day & Dr. Hamid) recently presented a paper to the American Society of Clinical Oncologists convention on the successes they have documented in Ipi trials.  I will sure be leaning that way if I need to change meds. 

      Bob F in CA

      Loading spinner
      Theresa123
      Participant

      Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

      Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
        Lisa13
        Participant

        Hi Sharon,

        I just had my 16th week ct scan after ipi and my lung mets have shrunk by 50% – some have also remained stable or disappeared.  I think the less tumour burden, this drug seems to work quite well.  If I was BRAF positive, I'd save it till later as I know it works fast – unlike ipi.

        If you've got 3 months to wait to see if ipi works – then I'm a firm believer in it.  Don't get too caught up in the statistic of this drug because all these newer drugs will change as more and more people try them.

        We also have Anti PD-1, so we have more options to try which gives us more hope.

        All the best to you.

        Lisa

        Loading spinner
      Theresa123
      Participant

      Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

      Loading spinner
      Theresa123
      Participant

      Hi,  I was told to do Ipi first and then BARF….I mean BRAF, ha ha.  Braf is usually used last since the duration is usually 6-9 months.  I had a partial reaction to Ipi so now I am doing it again.  The Angeles Clinic is great.

      Loading spinner
Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.