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ipi is the new plan.Great appt in St Louis
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ipi is the new plan.Great appt in St Louis

› Forums › General Melanoma Community › ipi is the new plan.Great appt in St Louis

  • Post
    • December 13, 2012 at 3:20 am
    Tina D
    Participant

      We saw Dr Linette at Barnes-Jewish Hospital/Siteman Cancer center today. Cant exxagerate how impressed we are. I will spare long details, which are prob interesting only to us 🙂 . Bottom line is: I am starting ipi next week. We are very comfortable with this & I am having Dr Linette oversee the treatments, so we will travel to St Louis for treatment days.It is only a 3 1/2 hr trip! Thank you to those who let me know abt him. We really couldn't be happier with the choice of Drs. And… we left the appt feeling encouraged- something neither of us really expected to feel. SO…

      We saw Dr Linette at Barnes-Jewish Hospital/Siteman Cancer center today. Cant exxagerate how impressed we are. I will spare long details, which are prob interesting only to us 🙂 . Bottom line is: I am starting ipi next week. We are very comfortable with this & I am having Dr Linette oversee the treatments, so we will travel to St Louis for treatment days.It is only a 3 1/2 hr trip! Thank you to those who let me know abt him. We really couldn't be happier with the choice of Drs. And… we left the appt feeling encouraged- something neither of us really expected to feel. SO… we have a plan!

      I appreciate the people on this board SO much. What a wealth of encouragement,advice,experience,support and help you all are. 

      Tina

    Viewing 17 reply threads
    • Replies
        • December 13, 2012 at 3:56 am
        POW
        Participant

          I'm so happy that you found yourself a great doctor and within reasonable driving distance of your home, too. Good for you! I'm glad you decided on Ipi and will be starting the treatments soon. I'll be praying for you. Please do keep us posted about your progress. 

          • December 13, 2012 at 3:56 am
          POW
          Participant

            I'm so happy that you found yourself a great doctor and within reasonable driving distance of your home, too. Good for you! I'm glad you decided on Ipi and will be starting the treatments soon. I'll be praying for you. Please do keep us posted about your progress. 

            • December 13, 2012 at 3:56 am
            POW
            Participant

              I'm so happy that you found yourself a great doctor and within reasonable driving distance of your home, too. Good for you! I'm glad you decided on Ipi and will be starting the treatments soon. I'll be praying for you. Please do keep us posted about your progress. 

              • December 13, 2012 at 1:51 pm
              awillett1991
              Participant
                It’s always good to have a plan, best of luck Tina!

                Amy

                • December 13, 2012 at 1:51 pm
                awillett1991
                Participant
                  It’s always good to have a plan, best of luck Tina!

                  Amy

                  • December 13, 2012 at 1:51 pm
                  awillett1991
                  Participant
                    It’s always good to have a plan, best of luck Tina!

                    Amy

                    • December 13, 2012 at 4:12 pm
                    aldakota22
                    Participant

                      Tina stay as I say pma (positive mind attitude).Great news that there is a plan you feel really encouraged with.As always in my prayers.Keep us posted.and good luck.Beat the Beast.  Al

                      • December 13, 2012 at 4:12 pm
                      aldakota22
                      Participant

                        Tina stay as I say pma (positive mind attitude).Great news that there is a plan you feel really encouraged with.As always in my prayers.Keep us posted.and good luck.Beat the Beast.  Al

                        • December 13, 2012 at 4:12 pm
                        aldakota22
                        Participant

                          Tina stay as I say pma (positive mind attitude).Great news that there is a plan you feel really encouraged with.As always in my prayers.Keep us posted.and good luck.Beat the Beast.  Al

                          • December 13, 2012 at 4:20 pm
                          bigb0624
                          Participant

                            Dr. Linette is the best.  I have been seeing him since August 2012 and i have been on Zelboraf since then, which has been working better than expected.  But we did discuss IPPI on Tues. so i can be ready when Z becomes immune to my syystem.  You are in good hands.

                            • December 13, 2012 at 4:20 pm
                            bigb0624
                            Participant

                              Dr. Linette is the best.  I have been seeing him since August 2012 and i have been on Zelboraf since then, which has been working better than expected.  But we did discuss IPPI on Tues. so i can be ready when Z becomes immune to my syystem.  You are in good hands.

                                • December 14, 2012 at 3:36 pm
                                Snickers60
                                Participant

                                  WHOOP WHOOP……..way to go TINA D !!!    I prayed for you and prayed you would like them and they would be good and very skilled and knowledgeable DOCS !!!!    I am so happy to hear about this plan and hear wonderful things about IPI

                                  This is going to be excting to watch !    GOD IS GOOD and HAS A "GOOD PLAN" for your life. 

                                  HANG IN THERE and KEEP THE FAITH !   🙂

                                  THINKING OF YOU OFTEN !

                                  Nancy (devoted wife of 3 X Warrior Wayne)   <><

                                  • December 14, 2012 at 3:36 pm
                                  Snickers60
                                  Participant

                                    WHOOP WHOOP……..way to go TINA D !!!    I prayed for you and prayed you would like them and they would be good and very skilled and knowledgeable DOCS !!!!    I am so happy to hear about this plan and hear wonderful things about IPI

                                    This is going to be excting to watch !    GOD IS GOOD and HAS A "GOOD PLAN" for your life. 

                                    HANG IN THERE and KEEP THE FAITH !   🙂

                                    THINKING OF YOU OFTEN !

                                    Nancy (devoted wife of 3 X Warrior Wayne)   <><

                                    • December 14, 2012 at 3:36 pm
                                    Snickers60
                                    Participant

                                      WHOOP WHOOP……..way to go TINA D !!!    I prayed for you and prayed you would like them and they would be good and very skilled and knowledgeable DOCS !!!!    I am so happy to hear about this plan and hear wonderful things about IPI

                                      This is going to be excting to watch !    GOD IS GOOD and HAS A "GOOD PLAN" for your life. 

                                      HANG IN THERE and KEEP THE FAITH !   🙂

                                      THINKING OF YOU OFTEN !

                                      Nancy (devoted wife of 3 X Warrior Wayne)   <><

                                    • December 13, 2012 at 4:20 pm
                                    bigb0624
                                    Participant

                                      Dr. Linette is the best.  I have been seeing him since August 2012 and i have been on Zelboraf since then, which has been working better than expected.  But we did discuss IPPI on Tues. so i can be ready when Z becomes immune to my syystem.  You are in good hands.

                                      • December 18, 2012 at 12:00 am
                                      lrkg1234
                                      Participant

                                        Hi Tina,

                                         

                                        I'm very happy for you and your new found Dr. in St. Louis.  I'll be praying for you. 

                                         

                                        Lisa in Indy

                                          • December 18, 2012 at 7:57 pm
                                          Tina D
                                          Participant

                                            Thank you, Lisa… how are things going for you guys??

                                            • December 18, 2012 at 7:57 pm
                                            Tina D
                                            Participant

                                              Thank you, Lisa… how are things going for you guys??

                                              • January 5, 2013 at 8:21 pm
                                              lrkg1234
                                              Participant

                                                Hi Tina,

                                                We are doing OK.  Scott just had his second IL-2 treatment around Christmas and is recovering well.  He will get a scan in a couple of weeks to see if it has worked.  We are going to Community North, Dr. Bhatia now.  No more IU Health. 

                                                One thing that seems positive about theIL-2  treatment is that his overall smell/ body odor has improved. I wonder if cancer has a smell?? It seems like it sort of does to me.  Before the IL-2 he had night sweats sometimes and I swear it was a weird odor.  He smells different now, better.  I hope that means something good. 

                                                How is the IPI going?  Any side effects?  When do they do a scan to see if it's working for you? 

                                                Hope you had a nice Christmas.  Let me know how it's going. 

                                                Lisa

                                                • January 5, 2013 at 8:21 pm
                                                lrkg1234
                                                Participant

                                                  Hi Tina,

                                                  We are doing OK.  Scott just had his second IL-2 treatment around Christmas and is recovering well.  He will get a scan in a couple of weeks to see if it has worked.  We are going to Community North, Dr. Bhatia now.  No more IU Health. 

                                                  One thing that seems positive about theIL-2  treatment is that his overall smell/ body odor has improved. I wonder if cancer has a smell?? It seems like it sort of does to me.  Before the IL-2 he had night sweats sometimes and I swear it was a weird odor.  He smells different now, better.  I hope that means something good. 

                                                  How is the IPI going?  Any side effects?  When do they do a scan to see if it's working for you? 

                                                  Hope you had a nice Christmas.  Let me know how it's going. 

                                                  Lisa

                                                  • January 5, 2013 at 8:21 pm
                                                  lrkg1234
                                                  Participant

                                                    Hi Tina,

                                                    We are doing OK.  Scott just had his second IL-2 treatment around Christmas and is recovering well.  He will get a scan in a couple of weeks to see if it has worked.  We are going to Community North, Dr. Bhatia now.  No more IU Health. 

                                                    One thing that seems positive about theIL-2  treatment is that his overall smell/ body odor has improved. I wonder if cancer has a smell?? It seems like it sort of does to me.  Before the IL-2 he had night sweats sometimes and I swear it was a weird odor.  He smells different now, better.  I hope that means something good. 

                                                    How is the IPI going?  Any side effects?  When do they do a scan to see if it's working for you? 

                                                    Hope you had a nice Christmas.  Let me know how it's going. 

                                                    Lisa

                                                    • December 18, 2012 at 7:57 pm
                                                    Tina D
                                                    Participant

                                                      Thank you, Lisa… how are things going for you guys??

                                                    • December 18, 2012 at 12:00 am
                                                    lrkg1234
                                                    Participant

                                                      Hi Tina,

                                                       

                                                      I'm very happy for you and your new found Dr. in St. Louis.  I'll be praying for you. 

                                                       

                                                      Lisa in Indy

                                                      • December 18, 2012 at 12:00 am
                                                      lrkg1234
                                                      Participant

                                                        Hi Tina,

                                                         

                                                        I'm very happy for you and your new found Dr. in St. Louis.  I'll be praying for you. 

                                                         

                                                        Lisa in Indy

                                                        • December 18, 2012 at 1:47 am
                                                        lhaley
                                                        Participant

                                                          Tina,

                                                          I'm glad you found a Dr that you really like. 

                                                          I stopped Zelboraf 2 weeks ago. Doing WBR right now (20+ brain mets) and starting Ipi on Dec 31st. Sounds like we are both starting around the same time. 

                                                          I hope this works for both of us!

                                                          Linda

                                                          • December 18, 2012 at 1:47 am
                                                          lhaley
                                                          Participant

                                                            Tina,

                                                            I'm glad you found a Dr that you really like. 

                                                            I stopped Zelboraf 2 weeks ago. Doing WBR right now (20+ brain mets) and starting Ipi on Dec 31st. Sounds like we are both starting around the same time. 

                                                            I hope this works for both of us!

                                                            Linda

                                                            • December 18, 2012 at 1:47 am
                                                            lhaley
                                                            Participant

                                                              Tina,

                                                              I'm glad you found a Dr that you really like. 

                                                              I stopped Zelboraf 2 weeks ago. Doing WBR right now (20+ brain mets) and starting Ipi on Dec 31st. Sounds like we are both starting around the same time. 

                                                              I hope this works for both of us!

                                                              Linda

                                                                • December 18, 2012 at 8:06 pm
                                                                Tina D
                                                                Participant

                                                                  Linda.. we will be within a couple of weeks of each other. How are you doing with the WBR? How many treatments does that involve? I hope the side effects are not bad for you… sounds like many people do very very well throughout.

                                                                  Yes, I am sure praying that this will be the thing so many of us respond to. Several others are a couple months ahead on the ipi. The oncologist was very upbeat about it!

                                                                  May 2013 be the year we kiss melanoma good bye and good riddance 🙂

                                                                  Tina

                                                                  • December 18, 2012 at 8:06 pm
                                                                  Tina D
                                                                  Participant

                                                                    Linda.. we will be within a couple of weeks of each other. How are you doing with the WBR? How many treatments does that involve? I hope the side effects are not bad for you… sounds like many people do very very well throughout.

                                                                    Yes, I am sure praying that this will be the thing so many of us respond to. Several others are a couple months ahead on the ipi. The oncologist was very upbeat about it!

                                                                    May 2013 be the year we kiss melanoma good bye and good riddance 🙂

                                                                    Tina

                                                                    • December 18, 2012 at 8:06 pm
                                                                    Tina D
                                                                    Participant

                                                                      Linda.. we will be within a couple of weeks of each other. How are you doing with the WBR? How many treatments does that involve? I hope the side effects are not bad for you… sounds like many people do very very well throughout.

                                                                      Yes, I am sure praying that this will be the thing so many of us respond to. Several others are a couple months ahead on the ipi. The oncologist was very upbeat about it!

                                                                      May 2013 be the year we kiss melanoma good bye and good riddance 🙂

                                                                      Tina

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