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Immunotherapy combo side effects

Forums General Melanoma Community Immunotherapy combo side effects

  • Post
    zfishberg
    Participant

      Hello!

      My husband started the ipi/nivo combo 2 weeks ago.

      initially – no major side effects other than fatigue.

      in about 8-9 days he started feeling soreness in this troat.

      The pain and soreness keep getting worse.

      Sometimes he complains that even air when passing thru the throat irritates it and causes pain.

      Did anybody experience this kind of symptoms ?

       

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    • Replies
        Christine.P
        Participant

          Does he have any sores in his mouth or throat? Have you noticed if his tongue is sort of white? I had both thrush and mouth and throat sores when I first started the combo. You should definitely call your doctor; there is a "magic mouthwash" that he can use to help with the pain. Good luck!

            zfishberg
            Participant

              Thank you Christine!

              Hs the Nguyen is normal and no sores in the mouth.

              We have a visit with the doctor today, so will check

              zfishberg
              Participant

                Sorry – IPhone substitutions.

                I wanted to say that his tongue is normal

              smiller
              Participant

                   My husband has a problem with his entire mouth hurting to the point where it is difficult to eat.  He has lost 26 lbs.  He just had his third round of the ipi/nivo combo 05/16/17.

                   Other than fatigue and a minor rash, these are his only side effects.

                 His doctor said the mouth issue was not a common side effect except in people having radiation.  He suggested gargling with  salt and water.  This has helped somewhat–better than it has been anyway. So maybe ask your doctor if this could be something to try…hope he finds relief!

                smiller
                Participant

                     My husband has a problem with his entire mouth hurting to the point where it is difficult to eat.  He has lost 26 lbs.  He just had his third round of the ipi/nivo combo 05/16/17.

                     Other than fatigue and a minor rash, these are his only side effects.

                   His doctor said the mouth issue was not a common side effect except in people having radiation.  He suggested gargling with  salt and water.  This has helped somewhat–better than it has been anyway. So maybe ask your doctor if this could be something to try…hope he finds relief!

                  I haven't had any mouth/throat soreness while on Ipi/Nivo but had to stop due to hepatitis after my second dose.  I wonder if your husband could try using Sucrets or Chloroseptic. Anyway maybe it is worth it to ask the dr if it would be OK to try.  Good wishes to you both.

                    zfishberg
                    Participant

                      Thanks to everybody for recommendations.

                      we visited dr. Yesterday and she prescribed mouthwash and 

                      Ranitidine.

                      Hope he will feel better.

                       

                       

                       

                       

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