I spoke too soon…
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I spoke too soon…

› Forums › General Melanoma Community › I spoke too soon…

  • Post
    • April 29, 2017 at 9:27 pm
    Julie in SoCal
    Participant

    Hi there Melahomies!

    This morning while putting lotion on my arms, I noticed two new lumps next to my SNB scar.  I had thought that I was a complete responder to Pembro but alas, it's back. I just thought I was done with Mel. Guess not.

    A week from Monday I'll have a VATs procedure for lung cancer. The surgeon will take the offending lung lobe (with Larry) and some lymph nodes and hopefully, that will be it for me.  I can't imagine fighting this on two fronts. 

    I'm just complaining at this point. I won't really know anything until Larry the lung tumor comes out and we get a better look at him.

    Thanks for listening,

    Shalom,

    Julie

Viewing 8 reply threads
  • Replies
      • April 29, 2017 at 9:40 pm
      Scooby123
      Participant

      Julie , So sorry Hun you are having to deal with the lung cancer and now Mel yet again. You are a strong lady and once you op for the lung cancer been done and you feeling better lets get back fighting that Mel . Keep strong you can do it one step at a time.

      keep us posted Hun.

      scooby x❤️

      • April 29, 2017 at 9:49 pm
      casagrayson
      Participant

      Bless you, Julie!  I do love your indomitable spirit. You've got this!

      • April 29, 2017 at 10:37 pm
      Bubbles
      Participant

      MAN!!!  More smelly green hairy wizard balls!!!  Hang in there sweetie!  Keep us posted.  celeste

        • April 29, 2017 at 10:47 pm
        Bubbles
        Participant

        Intralesionals for the lumps you can feel?????  Just thinking out loud.  Here's a bunch of reports:

        http://chaoticallypreciselifeloveandmelanoma.blogspot.com/search?q=intralesional&max-results=20&by-date=true  

        PV-10?  T-VEC?  They have even combined t-vec with pembro.  Maybe something to think about?  c

        • April 29, 2017 at 11:19 pm
        Julie in SoCal
        Participant

        Thanks Celeste!

        Yes, these are intralesionals or intransits.  I've had them before but either ipi or pembro has melted them.  It's just that they keep coming back in different spots.  

        I'll take a look at PV-10 and T-VEC.  It sounds promising!

        Thanks so much!

        blessings,

        Julie

      • April 30, 2017 at 3:43 am
      miaka618
      Participant
      Larry is a free loading son of a you know what. Kick Larry to the curb!
      • April 30, 2017 at 4:11 am
      jennunicorn
      Participant

      Sending positive vibes your way Julie. Larry is getting evicted and Mel.. well, she should know better.. you'll kick her to the curb again! 

      All the best,

      • April 30, 2017 at 10:00 pm
      Momofjake
      Participant

      I always admire your attitude! This is hard stuff…if anyone can handle it, it's you! One day, then one more day….Hoping Larry gets lost and Mel follows! 

      Stay tough!!

      kerri

      • May 1, 2017 at 4:25 am
      Casitas1
      Participant
      Julie, you will dump Mel and Larry and hook up with Ned… Gonna give Pembro another go? Ah sh!t the joints the joints! Keep hanging tough… Best,Paul
        • May 1, 2017 at 2:55 pm
        Julie in SoCal
        Participant

        Ha! Paul this is pretty funny!

        I don't know what I'm going to do.  I've got a vats surgery scheduled for May 8th.  After that I should find out what stage I am for lung cancer.  If I'm stage 1 I shouldn't need any more treatment.  If not well… that's a whole new kettle of fish.  

        I don't know if I'd do Pembro again.  I am finally down to 10mg prednisone and am still feeling the aches (oh yea and I walk with a cane now).  But I'll cross this when I get to it. First things first. And right now lung cancer is first.

        Thanks for the laugh!!

        Trust you're well,

        Julie

        • May 1, 2017 at 8:47 pm
        Mat
        Participant

        Julie, sorry to hear.  On the arthritis front, I'm 6 weeks into methotrexate and over the past week have started to see some good results.  Much less stiffness and pain in my knees and ankles and back to almost normal walking speed.  I'm still on 15mg prednisone but feel like I'll be able to taper soon.  You might discuss methotrexate with your doctors.

        • May 1, 2017 at 11:12 pm
        Julie in SoCal
        Participant

        Thanks Mat, I'll ask the good arthritis doc about methotrexate, but probably after next week's surgery.  I'm just going to walk like an old lady for a little while longer 

        Julie 

        • May 2, 2017 at 12:11 am
        Casitas1
        Participant
        Thanks Julie, I am well. On a slow taper as well. Down to 4 mg. 1mg. every 2 weeks according to Dr.T. Will ask Rock Star for some Pt. for the knees on Wed. Hope your surgery goes well… At St. John’s?
        • May 2, 2017 at 1:51 am
        Julie in SoCal
        Participant

        Ahh I see we have the whole contingent of slow prednisone taper club.  Ugh!

        So glad you're doing well.  

        yes the surgery will be at St John's and with the guy that invented the procedure.  How awesome is that.!?! When the Rock Star says he knows a guy… he really knows a guy!

        I've got a script for PT, but I haven't used it yet.  I figure after lung surgery, then the knees will get some badly needed attention.  Meanwhile I just keep moving (ouch) and stretch as often as I can.  I almost have 90 degrees in them.  Almost…

      • May 2, 2017 at 3:15 pm
      jbronicki
      Participant

      Jeez Julie, I can't think of anyone that makes me laugh like you do and I'm amazed by how you fight Melanoma and any other stupid cancer they throw your way, you should get an award just for creating the phrase "Melahomies".  You make me laugh with every post,  that's a miracle, and I'm hoping Larry dies quickly and that you get through this at warp speed.  You have my prayers, thoughts and giggles from your wicked sense of humor!  Many hugs Julie. 

        • May 2, 2017 at 11:38 pm
        Julie in SoCal
        Participant

        Thanks Jackie! I love it when I make people laugh!

        But i have to admit, "Melahomies" isn't original (wish it was – I'd e really witty then!) but I picked it up from someone here.

        Thanks for the smile!

        Julie

      • May 3, 2017 at 1:17 am
      jenny22
      Participant

      Hi Julie- Cant believe all you are dealing with these days….my husband had a VATS lobectomy, (upper left lobe) 8 years ago for what turned out to be stage III lung cancer…..we're quite a pair arent we…..stage III lung and stage III melanoma…….

      Hoping your VATS procedure will be the end of Larry and then you can get back to getting rid of melanoma….

      Thinking about you and wishing you all the best!!!!!!

      Jenny

       

       

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