› Forums › General Melanoma Community › Husband stage 4 12 years after stage 2b negative node biopsy
- This topic has 12 replies, 3 voices, and was last updated 11 years, 2 months ago by
Charlie S.
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- February 18, 2013 at 6:58 pm
Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I
was on often, but over the years I really felt it was OK. He had a chest xray with us thinking
he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and
several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and
found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58
Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I
was on often, but over the years I really felt it was OK. He had a chest xray with us thinking
he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and
several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and
found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58
we have one daughter age 20, we went to her college yesterday and told her, but downplayed it
so as to not worry her. I am so scared because he seems so sick and because of the stomach.
I have a call in to Sylvester Center in Miami as well where he went the first time – he did a year of
interferon then. But the oncologist has a good reputation as well so I guess we will start there. I
imagine they will do a brain ct to check for brain mets? Primary says they will probably remove
lung mass via surgery. I have a list of questions – what about liver, is he braf positive, ive read
about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.
Thanks for any advice. He is 58 fit and healthy otherwise..
Vicki his loving wife
- Replies
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- February 18, 2013 at 10:57 pm
Hi Vicki,
I'm sorry to read about your husband. Being that it looks like your in Florida. Without a doubt I would call Dr. Weber's offfice at Moffit Cancer Center in Tampa at the University of South Florida right away. So much hadsimproved since 2001 and Dr. Webster is one of the best Melanoma Dr's in the country. You will see his name mentioed all of the boards. I would get an appointment with him right away. Hopefully someone will post his direct office number.
All my best,
Wendy
H. Lee Moffitt Cancer Center & Research Institute
12902 Magnolia Drive
Tampa, FL 33612Phone: 1-888-MOFFITT (1-888-663-3488)
Moffitt Cancer Center Switchboard:
813-745-4673 or 800-456-3434-
- February 18, 2013 at 11:07 pm
Vikki,
Since your husband is young and in good shape. Take a second and do an internet google search on a patient named, TJ. He has a blog called, Patient #1. (just put in patient #1 and his blog should come up) He's from Florida and a patient of Dr. Weber's. He is doing Chemo, TIL, IL2 and Yervoy all at the same time. This is why he's named Patient #1. I'm not saying what your husbands treatment plan would be, but I just want to show you how many new and promising treatment options are available since 2001. It's amazing!!! Try to take a deep breath and reach out to Moffitt.
Regards,
Wendy
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- February 19, 2013 at 2:38 am
Thank you so much for the reply. I will contact Moffitt first thing in the morning.
I had put a call into Sylvester Center at UM Miami but didnt hear anything yet.
We did visit Moffit the first go-around and were very impressed with their facility.
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- February 19, 2013 at 2:38 am
Thank you so much for the reply. I will contact Moffitt first thing in the morning.
I had put a call into Sylvester Center at UM Miami but didnt hear anything yet.
We did visit Moffit the first go-around and were very impressed with their facility.
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- February 19, 2013 at 2:38 am
Thank you so much for the reply. I will contact Moffitt first thing in the morning.
I had put a call into Sylvester Center at UM Miami but didnt hear anything yet.
We did visit Moffit the first go-around and were very impressed with their facility.
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- February 18, 2013 at 11:07 pm
Vikki,
Since your husband is young and in good shape. Take a second and do an internet google search on a patient named, TJ. He has a blog called, Patient #1. (just put in patient #1 and his blog should come up) He's from Florida and a patient of Dr. Weber's. He is doing Chemo, TIL, IL2 and Yervoy all at the same time. This is why he's named Patient #1. I'm not saying what your husbands treatment plan would be, but I just want to show you how many new and promising treatment options are available since 2001. It's amazing!!! Try to take a deep breath and reach out to Moffitt.
Regards,
Wendy
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- February 18, 2013 at 11:07 pm
Vikki,
Since your husband is young and in good shape. Take a second and do an internet google search on a patient named, TJ. He has a blog called, Patient #1. (just put in patient #1 and his blog should come up) He's from Florida and a patient of Dr. Weber's. He is doing Chemo, TIL, IL2 and Yervoy all at the same time. This is why he's named Patient #1. I'm not saying what your husbands treatment plan would be, but I just want to show you how many new and promising treatment options are available since 2001. It's amazing!!! Try to take a deep breath and reach out to Moffitt.
Regards,
Wendy
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- February 18, 2013 at 10:57 pm
Hi Vicki,
I'm sorry to read about your husband. Being that it looks like your in Florida. Without a doubt I would call Dr. Weber's offfice at Moffit Cancer Center in Tampa at the University of South Florida right away. So much hadsimproved since 2001 and Dr. Webster is one of the best Melanoma Dr's in the country. You will see his name mentioed all of the boards. I would get an appointment with him right away. Hopefully someone will post his direct office number.
All my best,
Wendy
H. Lee Moffitt Cancer Center & Research Institute
12902 Magnolia Drive
Tampa, FL 33612Phone: 1-888-MOFFITT (1-888-663-3488)
Moffitt Cancer Center Switchboard:
813-745-4673 or 800-456-3434 -
- February 18, 2013 at 10:57 pm
Hi Vicki,
I'm sorry to read about your husband. Being that it looks like your in Florida. Without a doubt I would call Dr. Weber's offfice at Moffit Cancer Center in Tampa at the University of South Florida right away. So much hadsimproved since 2001 and Dr. Webster is one of the best Melanoma Dr's in the country. You will see his name mentioed all of the boards. I would get an appointment with him right away. Hopefully someone will post his direct office number.
All my best,
Wendy
H. Lee Moffitt Cancer Center & Research Institute
12902 Magnolia Drive
Tampa, FL 33612Phone: 1-888-MOFFITT (1-888-663-3488)
Moffitt Cancer Center Switchboard:
813-745-4673 or 800-456-3434 -
- February 19, 2013 at 3:13 am
What follows may seem offensive to you and others; but I am not good at hand wringing, whispering with hushed voices all the while ignoring the obvious.
That said. Your husband has advanced melanoma. Unique to him is now that it t is presenting 12 years later.
Know this: it does happen.
Know this too: It is not the end of the world.
It could be, but that is a thought alone and is often based in fear and not fact.
Just my own observation, but people who recurr later sometimes live longer..
This is not meant to blow smoke up your rear end, but rather to say that the longer to recurr sometimes means longer to live,
Not always, but sometimes.
And when it seems the end of the world is near, not always but soetimes is just enough.
Cheers,
Charlie S
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- February 19, 2013 at 3:13 am
What follows may seem offensive to you and others; but I am not good at hand wringing, whispering with hushed voices all the while ignoring the obvious.
That said. Your husband has advanced melanoma. Unique to him is now that it t is presenting 12 years later.
Know this: it does happen.
Know this too: It is not the end of the world.
It could be, but that is a thought alone and is often based in fear and not fact.
Just my own observation, but people who recurr later sometimes live longer..
This is not meant to blow smoke up your rear end, but rather to say that the longer to recurr sometimes means longer to live,
Not always, but sometimes.
And when it seems the end of the world is near, not always but soetimes is just enough.
Cheers,
Charlie S
-
- February 19, 2013 at 3:13 am
What follows may seem offensive to you and others; but I am not good at hand wringing, whispering with hushed voices all the while ignoring the obvious.
That said. Your husband has advanced melanoma. Unique to him is now that it t is presenting 12 years later.
Know this: it does happen.
Know this too: It is not the end of the world.
It could be, but that is a thought alone and is often based in fear and not fact.
Just my own observation, but people who recurr later sometimes live longer..
This is not meant to blow smoke up your rear end, but rather to say that the longer to recurr sometimes means longer to live,
Not always, but sometimes.
And when it seems the end of the world is near, not always but soetimes is just enough.
Cheers,
Charlie S
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