The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Husband, Rudy, still NED!

Forums General Melanoma Community Husband, Rudy, still NED!

  • Post
    GAngel
    Participant

      Hi all!

      I just wanted to share the results of Rudy's recent Pet scan which showed that he remains NED. He has now been on the Braf /MEK combo for 10 months. He is doing intermittent dosing of 3 weeks on 1 week off…and so far so good, thank goodness.  We are feeling blessed beyond measure and living life to the fullest every day! You all are in my daily prayers! FIGHT ON WARRIORS!

      Love and blessings,

      Gina

    Viewing 17 reply threads
    • Replies
        Mat
        Participant

          Gina, great news for you, Rudy and your family!  I'm also still on the combo, but worked in ipi late last year/early this year.  Not yet NED, but stable with relatively small mets (and getting minor reduction in some mets).

          Mat
          Participant

            Gina, great news for you, Rudy and your family!  I'm also still on the combo, but worked in ipi late last year/early this year.  Not yet NED, but stable with relatively small mets (and getting minor reduction in some mets).

            Mat
            Participant

              Gina, great news for you, Rudy and your family!  I'm also still on the combo, but worked in ipi late last year/early this year.  Not yet NED, but stable with relatively small mets (and getting minor reduction in some mets).

              Aussielyn
              Participant

                Wonderful news Gina – so happy for you & your family!

                I'm soon due to have my 10 month scan ( on combo too but reduced dose of dabrafenib ) – hope I get the same great results! Best wishes, Lynette

                Aussielyn
                Participant

                  Wonderful news Gina – so happy for you & your family!

                  I'm soon due to have my 10 month scan ( on combo too but reduced dose of dabrafenib ) – hope I get the same great results! Best wishes, Lynette

                  Aussielyn
                  Participant

                    Wonderful news Gina – so happy for you & your family!

                    I'm soon due to have my 10 month scan ( on combo too but reduced dose of dabrafenib ) – hope I get the same great results! Best wishes, Lynette

                    JerryfromFauq
                    Participant

                      Great going for all of you!

                      JerryfromFauq
                      Participant

                        Great going for all of you!

                        JerryfromFauq
                        Participant

                          Great going for all of you!

                          shanemcdonald99
                          Participant

                            Thats excellent news !

                            May blessings continue for you !

                             

                            shane

                            shanemcdonald99
                            Participant

                              Thats excellent news !

                              May blessings continue for you !

                               

                              shane

                              shanemcdonald99
                              Participant

                                Thats excellent news !

                                May blessings continue for you !

                                 

                                shane

                                JoshF
                                Participant

                                  Simply awesome Gina! How long NED now?

                                   

                                  Josh

                                  JoshF
                                  Participant

                                    Simply awesome Gina! How long NED now?

                                     

                                    Josh

                                    JoshF
                                    Participant

                                      Simply awesome Gina! How long NED now?

                                       

                                      Josh

                                        GAngel
                                        Participant

                                          Thanks all! Matt, I am happy to hear of your success so far and tumor stability…keep fighting and I know you will soon reach NED also! Lynn, praying for great results for you and every one else fighting this battle. Josh, Rudy has been NED for 6 months. He's been taking hemp oil for over a year in addition to traditional meds and he truly.believes that the oil is the key factor in his success so far.

                                          Again, thanks to you all for sharing in our joy!

                                          GAngel
                                          Participant

                                            Thanks all! Matt, I am happy to hear of your success so far and tumor stability…keep fighting and I know you will soon reach NED also! Lynn, praying for great results for you and every one else fighting this battle. Josh, Rudy has been NED for 6 months. He's been taking hemp oil for over a year in addition to traditional meds and he truly.believes that the oil is the key factor in his success so far.

                                            Again, thanks to you all for sharing in our joy!

                                            GAngel
                                            Participant

                                              Thanks all! Matt, I am happy to hear of your success so far and tumor stability…keep fighting and I know you will soon reach NED also! Lynn, praying for great results for you and every one else fighting this battle. Josh, Rudy has been NED for 6 months. He's been taking hemp oil for over a year in addition to traditional meds and he truly.believes that the oil is the key factor in his success so far.

                                              Again, thanks to you all for sharing in our joy!

                                            jualonso
                                            Participant

                                              Hi GAngel,

                                              Why did your doc. decide intermittent treatment?

                                              Im taking the same drug and NED as well and im in a full dose.

                                              Thanks and beat the Beast

                                               

                                              jualonso
                                              Participant

                                                Hi GAngel,

                                                Why did your doc. decide intermittent treatment?

                                                Im taking the same drug and NED as well and im in a full dose.

                                                Thanks and beat the Beast

                                                 

                                                jualonso
                                                Participant

                                                  Hi GAngel,

                                                  Why did your doc. decide intermittent treatment?

                                                  Im taking the same drug and NED as well and im in a full dose.

                                                  Thanks and beat the Beast

                                                   

                                              Viewing 17 reply threads
                                              • You must be logged in to reply to this topic.
                                              About the MRF Patient Forum

                                              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                              Popular Topics