Humble apologies, many thanks
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Humble apologies, many thanks

› Forums › General Melanoma Community › Humble apologies, many thanks

  • Post
    • October 27, 2016 at 2:22 pm
    Mamapegela
    Participant

    Hi everyone-  I want to apologize for my previous post. I replied on it too but wanted to make a new post in case people don't go back that far.  Thank you for your posts particularly Ed, momof4boys, starts, debwray, snow white, bubbles…I took them to heart. 

    I really need this online community.  Maybe I needed my little meltdown, too.  Thank you for reaching out to me and supporting me through it.  I have gotten so much and learned really everything I know about melanoma from the resources provided here.  You are all remarkable people. 

    We are strangers walking along the same path, sharing our experiences, bumping into each other at times, pulling each other up when we fall.  Thanks for not leaving me laying there amongst the autumn leaves.

    Much love and gratitude

Viewing 29 reply threads
  • Replies
      • October 27, 2016 at 2:24 pm
      Mamapegela
      Participant

      I DID NOT mean to post anon…. 

      Peggy

      • October 27, 2016 at 2:24 pm
      Mamapegela
      Participant

      I DID NOT mean to post anon…. 

      Peggy

      • October 27, 2016 at 2:24 pm
      Mamapegela
      Participant

      I DID NOT mean to post anon…. 

      Peggy

      • October 27, 2016 at 2:26 pm
      Mamapegela
      Participant

      I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

      • October 27, 2016 at 2:26 pm
      Mamapegela
      Participant

      I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

      • October 27, 2016 at 2:26 pm
      Mamapegela
      Participant

      I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

      • October 27, 2016 at 2:45 pm
      Bubbles
      Participant

      Hey Peggy!

      Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

      Love, c

      • October 27, 2016 at 2:45 pm
      Bubbles
      Participant

      Hey Peggy!

      Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

      Love, c

      • October 27, 2016 at 2:45 pm
      Bubbles
      Participant

      Hey Peggy!

      Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

      Love, c

      • October 27, 2016 at 3:07 pm
      imgonnabeatthis
      Participant

      Peggy,

      I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

      Matt

       

      • October 27, 2016 at 3:07 pm
      imgonnabeatthis
      Participant

      Peggy,

      I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

      Matt

       

      • October 27, 2016 at 3:07 pm
      imgonnabeatthis
      Participant

      Peggy,

      I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

      Matt

       

      • October 27, 2016 at 3:21 pm
      debwray
      Participant

      Hi Peggy,

      Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

      NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

      So hard to do when dealing with your own pain……

      Deb

       

      • October 27, 2016 at 3:21 pm
      debwray
      Participant

      Hi Peggy,

      Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

      NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

      So hard to do when dealing with your own pain……

      Deb

       

      • October 27, 2016 at 3:21 pm
      debwray
      Participant

      Hi Peggy,

      Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

      NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

      So hard to do when dealing with your own pain……

      Deb

       

      • October 27, 2016 at 3:30 pm
      snow white
      Participant

      Hi Peggy,

      So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

      🙂

      • October 27, 2016 at 3:30 pm
      snow white
      Participant

      Hi Peggy,

      So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

      🙂

      • October 27, 2016 at 3:30 pm
      snow white
      Participant

      Hi Peggy,

      So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

      🙂

      • October 27, 2016 at 3:52 pm
      Polymath
      Participant

      Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

      Gary

      • October 27, 2016 at 3:52 pm
      Polymath
      Participant

      Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

      Gary

      • October 27, 2016 at 3:52 pm
      Polymath
      Participant

      Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

      Gary

      • October 27, 2016 at 8:20 pm
      ed williams
      Participant

      Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

      • October 27, 2016 at 8:20 pm
      ed williams
      Participant

      Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

      • October 27, 2016 at 8:20 pm
      ed williams
      Participant

      Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

        • October 27, 2016 at 10:57 pm
        Bubbles
        Participant

        Amen, my favorite mouse! C

        • October 27, 2016 at 10:57 pm
        Bubbles
        Participant

        Amen, my favorite mouse! C

        • October 27, 2016 at 10:57 pm
        Bubbles
        Participant

        Amen, my favorite mouse! C

        • October 28, 2016 at 2:01 pm
        ed williams
        Participant

        Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

        • October 28, 2016 at 2:01 pm
        ed williams
        Participant

        Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

        • October 28, 2016 at 4:25 pm
        Bubbles
        Participant

        will do, sir!!  c

        • October 28, 2016 at 4:25 pm
        Bubbles
        Participant

        will do, sir!!  c

        • October 28, 2016 at 4:35 pm
        Bubbles
        Participant

        Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

        http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

        Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

        Love, c

        • October 28, 2016 at 4:35 pm
        Bubbles
        Participant

        Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

        http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

        Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

        Love, c

        • October 28, 2016 at 4:48 pm
        ed williams
        Participant

        Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

        • October 28, 2016 at 4:48 pm
        ed williams
        Participant

        Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

        • October 29, 2016 at 9:40 pm
        ed williams
        Participant

        Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

        • October 29, 2016 at 9:40 pm
        ed williams
        Participant

        Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

        • October 30, 2016 at 12:39 am
        Bubbles
        Participant

        Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

        1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

        2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

        3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

        4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

        5.  Mice rule.  Ratties would be lost without them!!!

        Much love my personal mouseketeer!!! Thanks! c

         

        • October 30, 2016 at 12:39 am
        Bubbles
        Participant

        Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

        1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

        2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

        3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

        4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

        5.  Mice rule.  Ratties would be lost without them!!!

        Much love my personal mouseketeer!!! Thanks! c

         

        • October 30, 2016 at 12:39 am
        Bubbles
        Participant

        Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

        1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

        2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

        3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

        4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

        5.  Mice rule.  Ratties would be lost without them!!!

        Much love my personal mouseketeer!!! Thanks! c

         

        • October 29, 2016 at 9:40 pm
        ed williams
        Participant

        Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

        • October 28, 2016 at 4:48 pm
        ed williams
        Participant

        Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

        • October 28, 2016 at 4:35 pm
        Bubbles
        Participant

        Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

        http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

        Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

        Love, c

        • October 28, 2016 at 4:25 pm
        Bubbles
        Participant

        will do, sir!!  c

        • October 28, 2016 at 2:01 pm
        ed williams
        Participant

        Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

        • October 31, 2016 at 3:39 am
        Mamapegela
        Participant

        I get that!  And thanks 🙂

        • October 31, 2016 at 3:39 am
        Mamapegela
        Participant

        I get that!  And thanks 🙂

        • October 31, 2016 at 3:39 am
        Mamapegela
        Participant

        I get that!  And thanks 🙂

        • October 31, 2016 at 3:40 am
        Mamapegela
        Participant

        I guess I deserve that 🙂 and thanks!

        • October 31, 2016 at 3:40 am
        Mamapegela
        Participant

        I guess I deserve that 🙂 and thanks!

        • October 31, 2016 at 3:40 am
        Mamapegela
        Participant

        I guess I deserve that 🙂 and thanks!

      • October 31, 2016 at 3:38 am
      Mamapegela
      Participant

      So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

      • October 31, 2016 at 3:38 am
      Mamapegela
      Participant

      So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

      • October 31, 2016 at 3:38 am
      Mamapegela
      Participant

      So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

      • November 2, 2016 at 3:49 am
      Momofjake
      Participant

      Peggy,

      We are a tough and loyal bunch! You have us thick or thin:)

      kerri–momofjake

      • November 2, 2016 at 3:49 am
      Momofjake
      Participant

      Peggy,

      We are a tough and loyal bunch! You have us thick or thin:)

      kerri–momofjake

      • November 2, 2016 at 3:49 am
      Momofjake
      Participant

      Peggy,

      We are a tough and loyal bunch! You have us thick or thin:)

      kerri–momofjake

Viewing 29 reply threads
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