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High dose IL2..vitiligo…why now?
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High dose IL2..vitiligo…why now?

› Forums › General Melanoma Community › High dose IL2..vitiligo…why now?

  • Post
    • October 22, 2011 at 1:30 am
    Karin L
    Participant

      I finished my last bag/4th week of IL2 on June 14.  Within a few weeks I noticed some vitiligo on my hands, forearms, and a spot on my face. That was it until yesterday when I noticed a large area on my inner thigh (size of a lemon) that just showed up.  It's been 4mos.+ since treatment.  Anyone else have this happen this long after treatment?  Just seems…strange. 

      Thank you for any and all replies.

       

      Karin

      I finished my last bag/4th week of IL2 on June 14.  Within a few weeks I noticed some vitiligo on my hands, forearms, and a spot on my face. That was it until yesterday when I noticed a large area on my inner thigh (size of a lemon) that just showed up.  It's been 4mos.+ since treatment.  Anyone else have this happen this long after treatment?  Just seems…strange. 

      Thank you for any and all replies.

       

      Karin

    Viewing 14 reply threads
    • Replies
        • October 22, 2011 at 2:28 am
        jag
        Participant

          Vitiligo is usually a good thing.

          http://www.ncbi.nlm.nih.gov/pubmed/21911918

          • October 22, 2011 at 2:28 am
          jag
          Participant

            Vitiligo is usually a good thing.

            http://www.ncbi.nlm.nih.gov/pubmed/21911918

            • October 22, 2011 at 2:28 am
            jag
            Participant

              Vitiligo is usually a good thing.

              http://www.ncbi.nlm.nih.gov/pubmed/21911918

              • October 22, 2011 at 2:38 am
              debbieVA
              Participant

                Karin…

                Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

                Wishing you the best and continued response to Il-2.  

                 

                Debbie Stage 4 NED

                • October 22, 2011 at 2:38 am
                debbieVA
                Participant

                  Karin…

                  Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

                  Wishing you the best and continued response to Il-2.  

                   

                  Debbie Stage 4 NED

                  • October 22, 2011 at 2:38 am
                  debbieVA
                  Participant

                    Karin…

                    Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

                    Wishing you the best and continued response to Il-2.  

                     

                    Debbie Stage 4 NED

                    • October 22, 2011 at 3:45 am
                    Karin L
                    Participant

                      Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

                       

                      Karin

                      • October 22, 2011 at 3:45 am
                      Karin L
                      Participant

                        Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

                         

                        Karin

                        • October 22, 2011 at 3:45 am
                        Karin L
                        Participant

                          Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

                           

                          Karin

                          • October 22, 2011 at 1:12 pm
                          MariaH
                          Participant

                            Karin,

                            Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

                            Best wishes,

                            Maria

                            • October 22, 2011 at 1:12 pm
                            MariaH
                            Participant

                              Karin,

                              Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

                              Best wishes,

                              Maria

                              • October 22, 2011 at 1:12 pm
                              MariaH
                              Participant

                                Karin,

                                Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

                                Best wishes,

                                Maria

                                • October 23, 2011 at 4:50 am
                                LynnLuc
                                Participant

                                  I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

                                  • October 23, 2011 at 4:50 am
                                  LynnLuc
                                  Participant

                                    I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

                                    • October 23, 2011 at 4:50 am
                                    LynnLuc
                                    Participant

                                      I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

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