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Hello everyone, new here!

Forums General Melanoma Community Hello everyone, new here!

  • Post
    rosa1
    Participant

      Hi everyone, I have been reading these boards for a long time but never posted before.  I initially had some hesitation posting my story, since many on these boards are having really rough times,  but finally I decided today to share my good news with the rest of you, as to give hope that we all need!

      Hi everyone, I have been reading these boards for a long time but never posted before.  I initially had some hesitation posting my story, since many on these boards are having really rough times,  but finally I decided today to share my good news with the rest of you, as to give hope that we all need! Please read my profile to get my story.  On Friday, 24 August 2012, I went to Moffitt in Tampa to do the prescreening for the PD-1 clinical trial that doctor Weber suggested me to join.  I did brain MRI, blood work, CT of the neck, chest, abdomen and pelvis.  End of the day, I met with Dr. Weber to go over the consent and the first thing he said when he came in the room was "I want you to read something my nurse wrote for me".  He showed me a yellow sticky note on top of my CT report that read" Hmm!?, no disease?"  When I read that I was in disbielief.  I did not know what to say except "Are you sure?"  He told me that the only thing visible on the scan was the scar left behind from the SRS.  His clinical impression of the disease was complete response/no evidence of disease.   i was in shock! 

      I was ineligible to go on the trial as I no longer have a measurable disease.  Dr. Weber is advising a repeat scan in 3 months.

      God is good!

    Viewing 17 reply threads
    • Replies
        dellriol
        Participant

          Yay!!!!!

          dellriol
          Participant

            Yay!!!!!

            dellriol
            Participant

              Yay!!!!!

              aldakota22
              Participant

                God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

                aldakota22
                Participant

                  God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

                  aldakota22
                  Participant

                    God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

                    Ali
                    Participant

                      I love these kind of stories!  Thanks for sharing, and good luck!

                      Ali
                      Participant

                        I love these kind of stories!  Thanks for sharing, and good luck!

                        Ali
                        Participant

                          I love these kind of stories!  Thanks for sharing, and good luck!

                          BrianP
                          Participant

                            Awesome news!  Thanks for sharing.

                            BrianP
                            Participant

                              Awesome news!  Thanks for sharing.

                              BrianP
                              Participant

                                Awesome news!  Thanks for sharing.

                                washoegal
                                Participant

                                  We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

                                  washoegal
                                  Participant

                                    We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

                                    washoegal
                                    Participant

                                      We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

                                      frankMill
                                      Participant

                                        Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

                                        Thanks and God Bless!

                                        Frank

                                        frankMill
                                        Participant

                                          Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

                                          Thanks and God Bless!

                                          Frank

                                          frankMill
                                          Participant

                                            Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

                                            Thanks and God Bless!

                                            Frank

                                        Viewing 17 reply threads
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