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Hello everyone, new here!

› Forums › General Melanoma Community › Hello everyone, new here!

  • Post
    • September 3, 2012 at 8:48 pm
    rosa1
    Participant

    Hi everyone, I have been reading these boards for a long time but never posted before.  I initially had some hesitation posting my story, since many on these boards are having really rough times,  but finally I decided today to share my good news with the rest of you, as to give hope that we all need!

    Hi everyone, I have been reading these boards for a long time but never posted before.  I initially had some hesitation posting my story, since many on these boards are having really rough times,  but finally I decided today to share my good news with the rest of you, as to give hope that we all need! Please read my profile to get my story.  On Friday, 24 August 2012, I went to Moffitt in Tampa to do the prescreening for the PD-1 clinical trial that doctor Weber suggested me to join.  I did brain MRI, blood work, CT of the neck, chest, abdomen and pelvis.  End of the day, I met with Dr. Weber to go over the consent and the first thing he said when he came in the room was "I want you to read something my nurse wrote for me".  He showed me a yellow sticky note on top of my CT report that read" Hmm!?, no disease?"  When I read that I was in disbielief.  I did not know what to say except "Are you sure?"  He told me that the only thing visible on the scan was the scar left behind from the SRS.  His clinical impression of the disease was complete response/no evidence of disease.   i was in shock! 

    I was ineligible to go on the trial as I no longer have a measurable disease.  Dr. Weber is advising a repeat scan in 3 months.

    God is good!

Viewing 17 reply threads
  • Replies
      • September 3, 2012 at 11:55 pm
      dellriol
      Participant

      Yay!!!!!

      • September 3, 2012 at 11:55 pm
      dellriol
      Participant

      Yay!!!!!

      • September 3, 2012 at 11:55 pm
      dellriol
      Participant

      Yay!!!!!

      • September 4, 2012 at 12:26 am
      aldakota22
      Participant

      God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

      • September 4, 2012 at 12:26 am
      aldakota22
      Participant

      God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

      • September 4, 2012 at 12:26 am
      aldakota22
      Participant

      God is good.Happy for such fantastic news.Keep the NED sacns comming.Beat the Beast.   Al

      • September 4, 2012 at 4:06 am
      Ali
      Participant

      I love these kind of stories!  Thanks for sharing, and good luck!

      • September 4, 2012 at 4:06 am
      Ali
      Participant

      I love these kind of stories!  Thanks for sharing, and good luck!

      • September 4, 2012 at 4:06 am
      Ali
      Participant

      I love these kind of stories!  Thanks for sharing, and good luck!

      • September 4, 2012 at 10:34 pm
      BrianP
      Participant

      Awesome news!  Thanks for sharing.

      • September 4, 2012 at 10:34 pm
      BrianP
      Participant

      Awesome news!  Thanks for sharing.

      • September 4, 2012 at 10:34 pm
      BrianP
      Participant

      Awesome news!  Thanks for sharing.

      • September 4, 2012 at 11:23 pm
      washoegal
      Participant

      We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

      • September 4, 2012 at 11:23 pm
      washoegal
      Participant

      We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

      • September 4, 2012 at 11:23 pm
      washoegal
      Participant

      We love to hear this.  Let's hope this is all you ever see of the beast.  Keep us up to date.  Never hesitate to post good news!

      • September 6, 2012 at 1:38 am
      frankMill
      Participant

      Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

      Thanks and God Bless!

      Frank

      • September 6, 2012 at 1:38 am
      frankMill
      Participant

      Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

      Thanks and God Bless!

      Frank

      • September 6, 2012 at 1:38 am
      frankMill
      Participant

      Thanks for your post, it made me very happy!  I was just diagnosed with melanoma on 8-17. Had the WLE and SNB last Friday.   I live in Jacksonville and have been going to Baptist Hospital.  Guess what? I made an appt to meet with Dr. Weber at Moffitt in a couple of days.  I think the trip to Tampa is going to be worth it.  Your story affirms that I should meet with Dr. Weber and there is so much hope.

      Thanks and God Bless!

      Frank

Viewing 17 reply threads
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