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Great News today !

Forums General Melanoma Community Great News today !

  • Post
    Rebecca and Bob
    Participant

      MRI and CTSCANS clear.  15 months NED hoping to keep hearing that news. Still on every 2 month but they said we can come back mid – January after the holidays… So happy, so happy.

      Thanks everyone on this board for always being there!

      Rebecca

      MRI and CTSCANS clear.  15 months NED hoping to keep hearing that news. Still on every 2 month but they said we can come back mid – January after the holidays… So happy, so happy.

      Thanks everyone on this board for always being there!

      Rebecca

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        molly
        Participant

          Wonderful news…I'm so happy for both of you!!

          molly

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          molly
          Participant

            Wonderful news…I'm so happy for both of you!!

            molly

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            glewis923
            Participant

              Congradulations Rebecca & Bob!    Ya'll from Gainesville FL or GA area?  I noticed on past posts you did IL-2.  As i corrently have multiple lung nodules…..all less than 7 mm. so far…..i was wondering where your IL-2 treatment took place? I have been regularly getting my CT scans at Mayo, JAX, FL. and 1 yr.I-feron at local- Waycross, GA.- Dr.     Did you have "histological" proof of lung mets before "they" allowed you to go on IL-2?   Any input/advice is appreciated.

               

              Hope -n- Pray for Us ALL,   Shady- Grady.

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              glewis923
              Participant

                Congradulations Rebecca & Bob!    Ya'll from Gainesville FL or GA area?  I noticed on past posts you did IL-2.  As i corrently have multiple lung nodules…..all less than 7 mm. so far…..i was wondering where your IL-2 treatment took place? I have been regularly getting my CT scans at Mayo, JAX, FL. and 1 yr.I-feron at local- Waycross, GA.- Dr.     Did you have "histological" proof of lung mets before "they" allowed you to go on IL-2?   Any input/advice is appreciated.

                 

                Hope -n- Pray for Us ALL,   Shady- Grady.

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                  Rebecca and Bob
                  Participant

                    Shady – Grady,

                    I remember your posts. I did not realize you are Stage IV, I thought you were still Stage III. We are in Virginia and my husband is treated at NIH. Started there as Stage III vaccine trial. They moved him into IL-2 after watching two nodules appear in his lungs. They never did a biopsy, just watched for growth and when they grew they moved quickly.  One was the size of a dime the other a quarter.  Now looking back we also realize he had a subcutaneous lesion on his right flank. The IL-2 did kill the lung tumors and the subq. He had one left in his lung that had shrunk and after a year it was removed. They examined it and there were no live cells. Then unfortunately July 2009 they found intestinal tumors (3) which they did surgery to remove. Since that date we have had clear scans, but it's been scary.

                    I did meet a woman who had done the TIL treatment at NIH today. She said she had great first scan results. It sounds like they are improving on the TIL treatment. She said it was easier then going through IL-2.

                    NIH has been great for us. I have heard IL-2 has a better chance on working on lung mets and sub q's but I don't know, this disease is a mystery. The only advice I can even offer is that as long as you feel you have a good doctor that will move quickly and make good decisions that is all that matters. You never know what's going to work.

                    Good luck and God Bless!

                    Rebecca

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                    Rebecca and Bob
                    Participant

                      Shady – Grady,

                      I remember your posts. I did not realize you are Stage IV, I thought you were still Stage III. We are in Virginia and my husband is treated at NIH. Started there as Stage III vaccine trial. They moved him into IL-2 after watching two nodules appear in his lungs. They never did a biopsy, just watched for growth and when they grew they moved quickly.  One was the size of a dime the other a quarter.  Now looking back we also realize he had a subcutaneous lesion on his right flank. The IL-2 did kill the lung tumors and the subq. He had one left in his lung that had shrunk and after a year it was removed. They examined it and there were no live cells. Then unfortunately July 2009 they found intestinal tumors (3) which they did surgery to remove. Since that date we have had clear scans, but it's been scary.

                      I did meet a woman who had done the TIL treatment at NIH today. She said she had great first scan results. It sounds like they are improving on the TIL treatment. She said it was easier then going through IL-2.

                      NIH has been great for us. I have heard IL-2 has a better chance on working on lung mets and sub q's but I don't know, this disease is a mystery. The only advice I can even offer is that as long as you feel you have a good doctor that will move quickly and make good decisions that is all that matters. You never know what's going to work.

                      Good luck and God Bless!

                      Rebecca

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                    jag
                    Participant

                      Thanks for the update Rebecca, very happy for you.

                      John

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                      jag
                      Participant

                        Thanks for the update Rebecca, very happy for you.

                        John

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                        BethA in VA
                        Participant

                          Yea…I celebrate with you.  Thanks for sharing good news and Congratulations.  Enjoy NED!!  Beth 3/B

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                          BethA in VA
                          Participant

                            Yea…I celebrate with you.  Thanks for sharing good news and Congratulations.  Enjoy NED!!  Beth 3/B

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                            Wendi Lynn
                            Participant

                              So happy for you both!  Congratulations!

                              Wendi

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                              Wendi Lynn
                              Participant

                                So happy for you both!  Congratulations!

                                Wendi

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                                King
                                Participant

                                  Yeah, yeah, yeah!!!  Happy to hear it.  Celebrate this victory.  What a difference a day can make….

                                   

                                  Stay Strong
                                  King

                                  Stage IV 7/05 Liver mets

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                                  King
                                  Participant

                                    Yeah, yeah, yeah!!!  Happy to hear it.  Celebrate this victory.  What a difference a day can make….

                                     

                                    Stay Strong
                                    King

                                    Stage IV 7/05 Liver mets

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                                    bill58
                                    Participant

                                      Congrats on the Great news.

                                      We can always use some positive news on this board.

                                      Hope for continued clean scans and NED for many years to come.

                                      Bill.

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                                      bill58
                                      Participant

                                        Congrats on the Great news.

                                        We can always use some positive news on this board.

                                        Hope for continued clean scans and NED for many years to come.

                                        Bill.

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                                        lhaley
                                        Participant

                                          Wonderful, wonderful news!!!  Happy dancing for you both tonight!  Well, actually still sore from my surgery but in my mind I'm dancing for you.

                                          Linda

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                                          lhaley
                                          Participant

                                            Wonderful, wonderful news!!!  Happy dancing for you both tonight!  Well, actually still sore from my surgery but in my mind I'm dancing for you.

                                            Linda

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                                            Sherron
                                            Participant

                                              Rebecca & Bob – very, very happy for the both of you!

                                              Take Care,

                                              Sherron, wife to Jim

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                                              Sherron
                                              Participant

                                                Rebecca & Bob – very, very happy for the both of you!

                                                Take Care,

                                                Sherron, wife to Jim

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