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Good news

Forums General Melanoma Community Good news

  • Post

    Hi All,

    Just wanted to share that after a very long and intense year and 5 months of very scary ups and downs with this disease my last CT scan showed only ground glass areas.  The oncologist was happy to announce she considers me NED!  She then told me that since I had the brain tumor the last time I was off treatment that we needed to continue with the Opdivo at least another year.  

    Despite the great news I'm hesitant to be too happy and reluctant to consider myself in the clear.  I worry that this will not be my last dance with this devil.  I'm still bearing the scars from the brain surgery and radiation.   My right foot is still numb from the crainiotomy.  I'm still not mentally whole.  

    Thanks to all of you who have helped me carry on and stay strong.  Your guidance and support have meant the world.  To those who feel like they are in the worst of it please stay strong and keep fighting.  May your NED diagnosis be just around the corner.  

    Good wishes to you all,

    Jennifer

     

Viewing 13 reply threads
  • Replies
      sister of patient
      Participant

      Yayyyy!! Congratulations Jennifer – so pleased for you, you've been through enough!! May this be your forever diagnosis!! Best wishes always!

      Barb

      jennunicorn
      Participant

      So happy to hear the good news!!

      Sharon93065
      Participant

      Jennifer, my first petscan showed lung mass, following two metscans showed groundglass, and the 4th one two weeks ago showed NO groundglass.  Thank you for letting us know.  My MRI June '17 was clear, the M
      ​RI two weeks ago showed two small dots in brain, praying that next MRI in two weeks will be better.  But knowing what you went thru with  your brain give me hope. I do get Opdivo every other week now.   Thank you for sharing your journey. Sharon

      Scooby123
      Participant

      So so pleased for you Jennifer. Long may you be NED.

      Scooby❤️

      TexMelanomex
      Participant

      YESSSSSSSS!! Nice work Warrior!

      jbronicki
      Participant

      Now that's the kind of news we like to hear on this board!  Wonderful news Jennifer, congrats.  Tex is right, you are warrior.

      Best,
      Jackie

      CancerSpouse
      Participant

      Jennifer, Great news! I think your cautions optimism is a smart approach, especially since you seem to be forging on with work and the rest of your life. Hoping that this really will be the last dance with the devil for you. ~ carol

      CancerSpouse
      Participant

      Jennifer, Great news! I think your cautions optimism is a smart approach, especially since you seem to be forging on with work and the rest of your life. Hoping that this really will be the last dance with the devil for you. ~ carol

      CancerSpouse
      Participant

      Jennifer, Great news! I think your cautions optimism is a smart approach, especially since you seem to be forging on with work and the rest of your life. Hoping that this really will be the last dance with the devil for you. ~ carol

      Mat
      Participant

      Jennifer, great news!

      marta010
      Participant

      Wonderful news!  Thanks for sharing your story.  As each day passes, the past traumas will lessen the grip on you – hope you are able to view the glass as half full soon!  One day at a time……

      Ann

      WithinMySkin
      Participant

      Congrats on the GREAT news!! Hoping your 'mental' battle with melanoma will fade away just as the physical scars will. Don't be too hard on yourself – you're doing amazing!!

      Bubbles
      Participant

      Congrats, Jennifer.  Good news you certainly deserve!!  celeste

      nep2
      Participant

      Way to go, stay strong!  I’m very happy for you.

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